Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 In a message dated 19/06/2003 10:10:55 GMT Daylight Time, Robv2000@... writes: > But I guess my main concern is whether I should fire my doctor and > treat myself with the DMSA I bought on the web (maybe with ALA > introduced in the second round?) > Yes and yes, but only AFTER your amalgams are all out, including any hiding under gold crowns. You need to go to the files section and have a read, here is the link:- /files/ you might find this interetsing too www.dmpsbackfire.com Good luck! Mandi in UK (DIYer) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Hi, Glad to have you with us, and the best of health to you! First, never, never, never chelate with amalgams in!! You can get very ill, since the chelator pulls the mercury from your teeth, and you have a lot of mercury in those fillings!!!! Much more than you would be pulling during a well-managed cycle. " Low and slow is the way to go. " So, even though it's hard on the pocketbook, you need to get the fillings out first. Look for a mercury-free dentist who can use the proper protocol to protect you from mercury released during the removal of your amalgams. Take lots of Vitamin C before, during and after this process. Second, my opinion, FWIW, after being on this list for about three years and hearing people's stories on different protocols, also chelating my son, is that DMPS IV is not your safest bet. Try oral DMSA first, then add ALA to that. Many people do three day cycles, every three hours during the day, four at night, with either a four-day rest period or an 11-day break. You need to take a lot of supplements all the time to replenish your body's reserves. And drink lots of water during each cycle. I've heard that walking and jumping on a trampoline also helps release toxins more easily. There is lots of information in the files to help you. Detoxing is safe if done appropriately, but can harm you if not. We are here to encourage and help each other throughout! Welcome! Barb P.S. Your symptoms definitely fit the picture! [ ] new member here! > Hi folks, > > Glad to be here. I just had a DMPS challenge test today and I'm a > little concerned about treatment options. I'm 36 years old, and I've > had symptoms going on four years now. They include: > > - Hypersensitivity to sound and light > > - body jerks in response to surprise stimulus (mainly loud noise) > > - Involuntary spasms > > - withdrawal and depression > > - vision shutting down, unable to focus, increasing floaters > > - always tired, even in morning after a restfull sleep. > > - slow/poor comprehension of ideas > > - Not in touch with physical environment. Feel like I'm living > inside a vaccuum. > > - Heavy saliva. Metalic taste in mouth. > > > Questions: > 1) My doctor seems to only chelate with DMPS (through I-V), but I > wonder if that's because of the financial incentive. I've ordered > DMSA (100 mg tabs) on the web, but does it have to be a certain > pharmaceutical grade or is it all standard? > > 2) DMSA vs. DMPS. If my concerns are mainly about safety, should I > stick with DMSA since it's FDA approved? > > 3) I had a childhood allergic reaction to Sulfa, and yet my doctor > chelated me with DMPS today. My reaction was mild (sweating and > confusion) Should I continue with his chelation protocol, or should > I consider myself lucky to be alive? At this point, I don't even > care. Although, I did read that DMSA is more tolerable than DMPS > when sulfur allergy is a possibility. Is that true or false? > > 4) And finally, I still have amalgam fillings in my teeth. Some say > you shouldn't chelate while mercury is still in the mouth. > Question: Why is that? And what scientific studies have ever shown > that DMSA or DMPS leeches mercury from the teeth? Common sense tells > me that even if it did, wouldn't it be " chelated " anyway? If a > chelating agent is strong enough to pull mercury away from enamel via > the circulatory system, wouldn't such a bond be strong enough to > carry it out of the body altogether, making it a moot point? And > furthermore, the mercury vapor is the real culprit here. It is the > low-level exposure over time that cripples the body. You would have > to demonstrate that a chelating agent somehow accelerates vapor > release, rather than absorbs physical metal. > > But I guess my main concern is whether I should fire my doctor and > treat myself with the DMSA I bought on the web (maybe with ALA > introduced in the second round?) > > Sincerely, > -Rob > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 I will give you ideas that worked for my family. No guarantee they will work for you tho, but things to consider. > - Hypersensitivity to sound and light My son has this problem when he eats a food/supplement he does not tolerate, or if he has a yeast problem http://www.danasview.net/yeast.htm He did go thru a stage when it was a good sign that his hearing was improving. > - Involuntary spasms Would this be like ataxia? > - withdrawal and depression Phenols for my family http://www.danasview.net/phenol.htm My son lost his phenol sensitivity during the first 10 rounds of ALA chelation. > > - vision shutting down, unable to focus, increasing floaters Vitamin A deficiency plus metals in the eyes [i think]. I use TwinLabs Allergy A because my son does not tolerate CLO. > > - always tired, even in morning after a restfull sleep. Phenols for my family. Chronic fatigue is a sign of phenol intolerance for adults. > > - slow/poor comprehension of ideas Phenols or yeast for us. > But I guess my main concern is whether I should fire my doctor and > treat myself with the DMSA I bought on the web (maybe with ALA > introduced in the second round?) I use ALA and don't use a doctor. Good luck. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Hi , my name is shirley I have lived with this condition for 54 yrs. it showed up in my father's father (my grandfather) and it is passed threw the males in our family. we were treaded as normal in our family just looked a little different. i have two sister and one brother that have eyes like me. and 3 sisters and 1 brother that doesn't. yes this support group will be very helpful to you. i only joined three days ago, i knew it was here but i came back to check it see if it was still here so i could tell someone about it that .has 2 children that has this condition her children are 8 and 13. is this your first experence with it? where do you live? i live in Ky. my older sister lives in Indiana and holds a good job and travels the world with her husband so life can be good . i don;t know much about the medical side of this or how well the operations works, 3o yrs ago they weren't wery good . i would be interested in hearing from you again when you have time, with two children i know time is limited. you may not get much for your money from the chromosome testing or the genetics but from this group you have found a gold mine.shirley in Ky.kellymconover <kellymconover@...> wrote: Hi, My name is and I am a 23 year old mother to 2 beautiful children. I have a 3 year old son and a 3 month old daughter. My 3 month old, Kaylee has this condition. I am absolutely ecstatic that I was able to find a support group for this because I am so in the dark. At first they sent me for chromosome testing and I am still currently seeing the Genetics department for other issues. Thankfully her chromosomes are fine and she is JUST starting to gain weight. She is beautiful by all means and so so smart. I just wanted to give everyone a little bit of info about myself and child in hopes that everyone could give me some tips/advice for her. She has some other problems as well but regardless she is perfect to me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 , Kaylee and Family: Welcome! I'm glad Kaylee is beginning to gain weight and that you have found some professionals to help navigate the medical problems she is facing. My family and I have found great comfort and advice through this group. My son is now 16 months old and we first found this group when he was 2 months old....I remember the great sense of relief we had as parents knowing we had someone else to ask questions and chat. Best wishes to you and Kaylee and welcome to the group! --Anne Weber--Chicago, IL (pictures posted under ) --- kellymconover <kellymconover@...> wrote: > Hi, My name is and I am a 23 year old mother > to 2 beautiful > children. I have a 3 year old son and a 3 month old > daughter. My 3 > month old, Kaylee has this condition. I am > absolutely ecstatic that I > was able to find a support group for this because I > am so in the dark. > At first they sent me for chromosome testing and I > am still currently > seeing the Genetics department for other issues. > Thankfully her > chromosomes are fine and she is JUST starting to > gain weight. She is > beautiful by all means and so so smart. I just > wanted to give everyone > a little bit of info about myself and child in hopes > that everyone > could give me some tips/advice for her. She has > some other problems as > well but regardless she is perfect to me! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Welcome : ) I'm sure you'll find lots of support and friends here. My daughter Naomi has BPES and will be going for surgery in a week's time. All the very best for Kaylee. SINGAPORE > > > Hi, My name is and I am a 23 year old mother > > to 2 beautiful > > children. I have a 3 year old son and a 3 month old > > daughter. My 3 > > month old, Kaylee has this condition. I am > > absolutely ecstatic that I > > was able to find a support group for this because I > > am so in the dark. > > At first they sent me for chromosome testing and I > > am still currently > > seeing the Genetics department for other issues. > > Thankfully her > > chromosomes are fine and she is JUST starting to > > gain weight. She is > > beautiful by all means and so so smart. I just > > wanted to give everyone > > a little bit of info about myself and child in hopes > > that everyone > > could give me some tips/advice for her. She has > > some other problems as > > well but regardless she is perfect to me! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Joy, My son is 15....a little addicted to Xbox, has a few friends but is angry and depressed. My son will not participate in any group and refuses wrap around services. Would your son go to groups? My son says he doesn't have AS ...he does realize he has ADHD though. My son has all the teen symptoms...attitude, lazy, doesn't want me involved, etc. But I have to be because he has been inappropriate at times. My son is in 9th grade and is interested in girls and wants a girlfriend. Friends come first to him. He hates school and does not apply himself. He just doesn't care about the consequences of failing...he just doesn't get it. What grade is your son in? j "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: joy O. <joy_zzz_94@...> Sent: Wed, April 13, 2011 7:11:13 PMSubject: Re: ( ) New member here! Thank you so much for the helpful links!! Funny, all I have found are groups for the younger kids. Joy From: SoCalVal <socalval@...> Sent: Tue, April 12, 2011 11:00:51 PMSubject: Re: ( ) New member here! Here is a link to ASA of San Diego http://www.sd-autism.org/ Look around the site for a lot of helpful resources and support groups. I seem to always find stuff for older kids/teens but never for the little ones like my son's age. Also here is one I just happened to come across today: http://respectrum.org/news-updates/rethink-aspergers-updates/ Welcome to CA. There seems to be a lot of resources but you really have to dig or get hooked up with a really good Dr that knows the ASA community and resources. We've lived here 3 years and unfortunately I'm still "digger". ( ) New member here! Hi, All! My name is Joy and my son who is 17yrs. old has high functioning autism. We just moved to Carlsbad, CA and am looking for parent support groups, and, an activity group that meets together so my son can make friends. I am having the hardest time right now because he is a TEENAGER with an attitude! And he is depressed because he has no friends because he is addicted to Xbox. Can anyone here offer any advice??? Thanks so much. No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.449 / Virus Database: 271.1.1/3569 - Release Date: 04/12/11 18:35:00 Quote Link to comment Share on other sites More sharing options...
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