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Hi, My name is and I am a 23 year old mother to 2 beautiful

children. I have a 3 year old son and a 3 month old daughter. My 3

month old, Kaylee has this condition. I am absolutely ecstatic that I

was able to find a support group for this because I am so in the dark.

At first they sent me for chromosome testing and I am still currently

seeing the Genetics department for other issues. Thankfully her

chromosomes are fine and she is JUST starting to gain weight. She is

beautiful by all means and so so smart. I just wanted to give everyone

a little bit of info about myself and child in hopes that everyone

could give me some tips/advice for her. She has some other problems as

well but regardless she is perfect to me!

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