Re: Paige's Second Surgery

[Guest guest]

Paige looks gorgeous! Wishing her a trouble free and speedy healing process. and happyappykd <happyappykd@...> wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to

get affected.North Carolina, USA

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[Guest guest]

,

Paige looks incredible…how

absolutely beautiful she is!!!!! Best wishes on her recovery

Nick

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of happyappykd

Sent: Sunday, May 11, 2008 9:28 PM

blepharophimosis

Subject: blepharophimosis

Paige's Second Surgery

Hi all,

I wanted to let you know that Paige had her second surgery this past

Friday and I have posted pictures under " Paige and " . She had

the sling surgery this time (she had the inside corners done in

January). She is doing really well and seems to be healing just fine.

We opted to have the surgery done sooner than later as her vision was

beginning to get affected.

North Carolina, USA

[Guest guest]

:

Paige looks so wonderful and so happy! Congrats on

having surgery done and best wishes for continued

healing and recovery. She put a smile on my face for

Monday so thanks for sharing....

--Anne Weber--Chicago, IL USA

--- happyappykd <happyappykd@...> wrote:

> Hi all,

> I wanted to let you know that Paige had her second

> surgery this past

> Friday and I have posted pictures under " Paige and

> " . She had

> the sling surgery this time (she had the inside

> corners done in

> January). She is doing really well and seems to be

> healing just fine.

> We opted to have the surgery done sooner than later

> as her vision was

> beginning to get affected.

>

>

> North Carolina, USA

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

,

Paige is just a doll! She looks beautiful. Glad it

all went well.

April Eisele

Colorado, USA

--- Nicki Venable <nicki.venable@...>

wrote:

> ,

>

>

>

> Paige looks incredible...how absolutely beautiful

> she is!!!!! Best

> wishes on her recovery

>

>

>

> Nick

>

>

>

> ________________________________

>

> From: blepharophimosis

> [mailto:blepharophimosis ] On Behalf

> Of happyappykd

> Sent: Sunday, May 11, 2008 9:28 PM

> blepharophimosis

> Subject: blepharophimosis Paige's Second Surgery

>

>

>

> Hi all,

> I wanted to let you know that Paige had her second

> surgery this past

> Friday and I have posted pictures under " Paige and

> " . She had

> the sling surgery this time (she had the inside

> corners done in

> January). She is doing really well and seems to be

> healing just fine.

> We opted to have the surgery done sooner than later

> as her vision was

> beginning to get affected.

>

>

> North Carolina, USA

>

>

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Wow, what great results, Paige is a gorgeous girl! I wish her a

painless speedy recovery.

[Guest guest]

Hi , Thanks for sharing your photo's. Paige is gorgeous! and she looks very happy! I bet you are relieved to be on the "other side" of surgery. Looks like a fantastic result.Best wishes!! Machaela & Jessie (Aus.)happyappykd <happyappykd@...> wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in

January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA

Get the name you always wanted with the new y7mail email address.

[Guest guest]

, Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind! Our son is 13 and had the sling surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)? Thanks, Emalee Barrow Colorado, U.S.happyappykd <happyappykd@...> wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USAEmalee Barrow

[Guest guest]

Hi Emalee, I know you were directing your question to but I thought I'd be cheeky and tell you that my daughter who is 3, had the 'corner' sugery about 5weeks ago. It is day surgery and the operation takes about 45mins. It is to remove excess skin in the corners which widens the eyes. In our case it has been extremely successful and we are seeing a very noticable difference. We can now see the inside corners of Jessie's eyes and see alot more white beside the pupils. Our surgeon told us that each inside of the eye has been widened by 7mm's, which is a really good result. Jess is due to have the sling surgery in the next 12mths. You can check out her pics under "jessie-girl" Best wishes, Machaela & Jess (Aus)emalee <emaleebarrow@...> wrote: , Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind! Our son is 13 and had the sling surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)? Thanks, Emalee Barrow Colorado, U.S.happyappykd <happyappykd > wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA Emalee Barrow

Get the name you always wanted with the new y7mail email address.

[Guest guest]

HI Machaela, Thanks for the information! Here's another question does it aid/hamper the closing of the eye? 7 mm's is a lot. Is the cutie with pigtails? Thanks, Emaleemac 7 <macster74@...> wrote: Hi Emalee, I know you were directing your question to but I thought I'd be cheeky and tell you that my daughter who is 3, had the 'corner' sugery about 5weeks ago. It is day surgery and the operation takes about 45mins. It is

to remove excess skin in the corners which widens the eyes. In our case it has been extremely successful and we are seeing a very noticable difference. We can now see the inside corners of Jessie's eyes and see alot more white beside the pupils. Our surgeon told us that each inside of the eye has been widened by 7mm's, which is a really good result. Jess is due to have the sling surgery in the next 12mths. You can check out her pics under "jessie-girl" Best wishes, Machaela & Jess (Aus)emalee <emaleebarrow > wrote: , Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind! Our son is 13 and had the sling

surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)? Thanks, Emalee Barrow Colorado, U.S.happyappykd <happyappykd > wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA Emalee Barrow Get the name you always wanted with the new y7mail email address. Emalee Barrow

[Guest guest]

Hi Emalee,

Yes, I am so glad to have the surgery behind us. I had been preparing her as much as possible and she did great but it was something I had been anticipating for 4.5 years. The inside corner surgery and benefits of it are just as Machaela described. Another reason for the inside corner surgery (per Paige's surgeon) is that people with BPES don't have enough skin vertically. Therefore, by releasing some of the tension from the corners, it allows the eyelids to be opened more. I don't do his explanation justice, but hopefully you can get the idea. When I had my surgery, it was done the same way, inside corners first, then the lid-lift.

Paige continues to do extremely well and we are on her last day on antibiotoc ointment - YEA! I will try to post some additional pictures as she heals.

Thanks to everyone who emailed well-wishes for Paige. I am very thankful for this group!

North Carolina, USA

Re: blepharophimosis Paige's Second Surgery

,

Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind!

Our son is 13 and had the sling surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)?

Thanks,

Emalee Barrow

Colorado, U.S.happyappykd <happyappykd> wrote:

Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA

Emalee Barrow

[Guest guest]

, your explanation makes since. What age were you when you had yours done, and are you satisfied with the out come? Any reservations? What a blessing this group is in the amount and quality of information that is passed around! Thanks, Emalee Harvey <happyappykd@...> wrote: Hi

Emalee, Yes, I am so glad to have the surgery behind us. I had been preparing her as much as possible and she did great but it was something I had been anticipating for 4.5 years. The inside corner surgery and benefits of it are just as Machaela described. Another reason for the inside corner surgery (per Paige's surgeon) is that people with BPES don't have enough skin vertically. Therefore, by releasing some of the tension from the corners, it allows the eyelids to be opened more. I don't do his explanation justice, but hopefully you can get the idea. When I had my surgery, it was done the same way, inside corners first, then the lid-lift. Paige continues

to do extremely well and we are on her last day on antibiotoc ointment - YEA! I will try to post some additional pictures as she heals. Thanks to everyone who emailed well-wishes for Paige. I am very thankful for this group! North Carolina, USA Re: blepharophimosis Paige's Second Surgery , Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind! Our son is 13 and had the sling surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)? Thanks, Emalee Barrow Colorado, U.S.happyappykd <happyappykd> wrote: Hi all,I wanted to let you know that Paige had her

second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA Emalee Barrow Emalee Barrow

[Guest guest]

I was a year old when I had the inside corners done. I think now some surgeons like to wait as long as possible before doing the corners as the nasal bridge naturally narrows as children grow. My lid-lift surgery was completed when I was five years old. I am satisfied with my results, although I can't really recall what my vision was like before the surgery. My mother said I tilted my head pretty far back in order to see so I'm sure it made a huge difference. I had no reservations for Paige other than minimal pain, of course. I had two surgeries, like Paige, and I think they are holding up pretty well. I have had some drooping in one eye but overall it has been successful

for 28 years.

Re: blepharophimosis Paige's Second Surgery

,

Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind!

Our son is 13 and had the sling surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)?

Thanks,

Emalee Barrow

Colorado, U.S.happyappykd <happyappykd> wrote:

Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA

Emalee Barrow

Emalee Barrow

[Guest guest]

Hi Emalee, To answer your question, no it does not hamper the closing of the eyes at all. It is alot less involved than the sling surgery, and yes Jessie is the pigtail girl! I have posted a photo yesterday, which is 5weeks after the op. Not the best photo but in comparison to her before surgery photos, the result is definately noticable. I would have no hesitation in recommending anyone to having it done. We are so pleased with the result. It has always been the sling surgery that has worried me, for some reason, I guess because its more involved, with the taking of tendon out of her leg etc but our surgeon is strongly encouraging us to go ahead with it as her vision is deteriorating without it. Hope this helps a little, Machaela.emalee <emaleebarrow@...> wrote: HI Machaela, Thanks for the information! Here's another question does it aid/hamper the closing of the eye? 7 mm's is a lot. Is the cutie with pigtails? Thanks, Emaleemac 7 <macster74 .au> wrote: Hi Emalee, I know you were directing your question to but I thought I'd be cheeky and tell you that my daughter who is 3, had the 'corner' sugery about 5weeks ago. It is day surgery and the operation takes about 45mins.

It is to remove excess skin in the corners which widens the eyes. In our case it has been extremely successful and we are seeing a very noticable difference. We can now see the inside corners of Jessie's eyes and see alot more white beside the pupils. Our surgeon told us that each inside of the eye has been widened by 7mm's, which is a really good result. Jess is due to have the sling surgery in the next 12mths. You can check out her pics under "jessie-girl" Best wishes, Machaela & Jess (Aus)emalee <emaleebarrow > wrote: , Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind! Our son is 13 and had the sling

surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)? Thanks, Emalee Barrow Colorado, U.S.happyappykd <happyappykd > wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA Emalee Barrow Get the name you always wanted with the new y7mail email address. Emalee Barrow

Get the name you always wanted with the new y7mail email address.

[Guest guest]

That is all positive! Our son is now 13, 20/20 vision but there are occasions were if he is sitting low he tilts his head more than his contemporaries. I am going to address this at his annual check-up. We had been told further operations would be cosmetic and up to him unless there was a change in vision. It has been good for him to see all these wonderful photos and know there are other kids like him. Thanks, Emalee Barrow Colorado U.S. Harvey <happyappykd@...> wrote: I was a year old when I had the inside corners done. I think now some surgeons like to wait as long as possible before doing the corners as the nasal bridge naturally narrows as children grow. My lid-lift surgery was completed when I was five years old. I am satisfied with my results, although I can't really recall what my vision was like before the surgery. My mother said I tilted my head pretty far back in order to see so I'm sure it made a huge difference. I had no reservations for Paige other than minimal pain, of course. I had two surgeries, like Paige, and I think they are holding up pretty well. I have had some drooping in one eye but overall it has been successful for 28 years. Re: blepharophimosis Paige's Second Surgery , Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind! Our son is 13 and had the sling surgery at 6months. Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by

lunch)? Thanks, Emalee Barrow Colorado, U.S.happyappykd <happyappykd> wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA Emalee Barrow Emalee Barrow Emalee Barrow

[Guest guest]

Hi Machaela, Our son had the sling surgery at 6months of age, has never had an issue with it. At 13 it is still functional and very little, if any change in its' elasticity. At the time we had been told he would have to have it re-placed later with thigh tissue. However at the annual check-up they advised they had found that the silicone actually did a better job. Since going this group I have learned people have failed slings, bad reactions, etc.. I feel for you and the decision to go ahead. It is so hard to say go a head. You will know when the time is right. For us we knew his vision would not progress properly and we had to go a head. Best Wishes, Emalee Barrow Colorado, U.S. mac 7 <macster74@...> wrote: Hi Emalee, To answer your question, no it does not hamper the closing of the eyes at all. It is alot less involved than the sling surgery, and yes Jessie is the pigtail girl! I have posted a photo yesterday, which is 5weeks after the op. Not the best photo but in comparison to her before surgery photos, the result is definately noticable. I would have no hesitation in recommending anyone to having it done. We are so pleased with the result. It has always been the sling surgery that has worried me, for some reason, I guess because its more involved, with the taking of tendon out of her leg etc but our surgeon is strongly encouraging us to

go ahead with it as her vision is deteriorating without it. Hope this helps a little, Machaela.emalee <emaleebarrow > wrote: HI Machaela, Thanks for the information! Here's another question does it aid/hamper the closing of the eye? 7 mm's is a lot. Is the cutie with pigtails? Thanks, Emaleemac 7 <macster74 .au> wrote: Hi Emalee, I know you were directing your question to but I thought I'd be cheeky and tell you that my daughter who is 3, had the 'corner' sugery about 5weeks ago. It is day surgery and the operation takes about 45mins. It is to remove excess skin

in the corners which widens the eyes. In our case it has been extremely successful and we are seeing a very noticable difference. We can now see the inside corners of Jessie's eyes and see alot more white beside the pupils. Our surgeon told us that each inside of the eye has been widened by 7mm's, which is a really good result. Jess is due to have the sling surgery in the next 12mths. You can check out her pics under "jessie-girl" Best wishes, Machaela & Jess (Aus)emalee <emaleebarrow > wrote: , Paige looks great! She looks like she will never need another surgery already. Isn't it great to see that smile and have the operation behind! Our son is 13 and had the sling surgery at 6months.

Could you tell me a little about the inside corner surgery: does this aid in opening length or wideness or both? Also is it a day operation like the sling(out of the hospital by lunch)? Thanks, Emalee Barrow Colorado, U.S.happyappykd <happyappykd > wrote: Hi all,I wanted to let you know that Paige had her second surgery this past Friday and I have posted pictures under "Paige and ". She had the sling surgery this time (she had the inside corners done in January). She is doing really well and seems to be healing just fine. We opted to have the surgery done sooner than later as her vision was beginning to get affected.North Carolina, USA Emalee Barrow Get the name you always wanted with the new y7mail email address. Emalee Barrow Get the name you always wanted with the new y7mail email address. Emalee Barrow

[Guest guest]

Hi

I was really interested reading your posts because I have a son who is

due to undergo surgery on July this year, he will be 4 and a half. He

will have the same as Paige but in one surgery. Ever since I got the

call from the hospital, it has been going through my head constantly

whether or not I get both done.

I have BP like Sam and I have had the same surgery as yourself but

done in one operation. I had never thought twice about having both

done for Sam before until recently and then I read your explanation as

to why it is good to have the inner corners done. It is so hard to

change his appearance but at the same time....

Paige look amazing. The surgery is fantastic. Where did Paige have

this done?

, Glasgow x

[Guest guest]

,

Paige looks beautiful and I'm so happy she's doing well.

Best,

Debbie in NC

>

> Hi all,

> I wanted to let you know that Paige had her second surgery this past

> Friday and I have posted pictures under " Paige and " . She had

> the sling surgery this time (she had the inside corners done in

> January). She is doing really well and seems to be healing just fine.

> We opted to have the surgery done sooner than later as her vision was

> beginning to get affected.

>

>

> North Carolina, USA

>

[Guest guest]

Hi

Thanks very much. I have mentioned to the doctors previously about if

it is ok to be done in one surgery and they are happy with it. They

always say to me " well look at your own eyes, you had it done " So,

they seem pretty confident about it. I do like the idea of the

seperate surgeries too. It is so difficult.

I understand what you are saying about the eye sockets too. I think

the same.

Your photos of the girls are lovely. Thanks for putting them on to share.

Take care

xxxxxxxx

>

> Hi ,

> I will do my best to explain what the doctor told me but please note

that each doctor advises based on each patient individually.

Basically, Paige's doctor (Dr. Dutton at the UNC School of

Medicine in Chapel Hill, North Carolina, USA) said that he likes to

wait as long as possible before completing the inside corner surgery

because the nasal bridge will naturally narrow as children grow.

However, once the child is big enough (4-5 years of age) or if

eyesight is adversely affected, the corner surgery is completed first

as it releases some of the tension in the eyelid because people with

BPES don't have enough skin vertically.

>

> The following is my interpretation of what a person's eyelid is like

with BPES. Like a shade going up and down over a window, such is a

person's lid who has BPES. In a person without BPES, the open eyelid

will roll back over the eyeball creating a lid crease because of the

increase amount of skin and because the eyeball seems to stick out a

little further. Paige and I never had that crease until it was

surgically created by our doctors and I feel like in our case our

eyeballs are set back a little in our heads (thus the shade over a

window example). Like I said, this is ONLY my humble interpretation

of how I understand BPES. The doctors never described it like this to

me. I just noticed the difference when my second daughter was born

without BPES and I thought her eyeballs stuck out too far but I think

it was just me getting used to seeing someone without BPES. I also

remember seeing my second daughter's ultrasound pictures and I

> immediately noticed that her eye-sockets were huge when I compared

them to my first daughter's eye-sockets and I knew then that my second

daughter probably wouldn't have BPES. I haven't shared this

information with anyone else and if you think I'm crazy - I

apologize. They are only things that I have noticed.

>

> Anyway, back to what the doctor said... The other reason for doing

the surgeries separate in Dr. Dutton's opinion was that he didn't want

the two incisions working against each other (i.e. the stitches and

silicone strands) during her recovery. Not sure if it is due to

swelling or simply having 6 incisions on each eye. I just know that

doing it all in one surgery was not an option for Paige's doctor.

>

> I would encourage you to go with what your doctor advises for Sam,

especially since your surgery was successfully done in one surgery as

well. I just went with what I knew, and my surgery was done in two

separate surgeries. Also, maybe your doctor has another explanation

as to why the surgery is completed in one operation. If you have

that, please share because it would be interesting to hear that

perspective as well.

>

> Best wishes for Sam's upcoming surgery!

>

> Charlotte, NC, USA

>

>

>

> blepharophimosis Re: Paige's Second Surgery

>

>

> Hi

>

> I was really interested reading your posts because I have a son who is

> due to undergo surgery on July this year, he will be 4 and a half. He

> will have the same as Paige but in one surgery. Ever since I got the

> call from the hospital, it has been going through my head constantly

> whether or not I get both done.

>

> I have BP like Sam and I have had the same surgery as yourself but

> done in one operation. I had never thought twice about having both

> done for Sam before until recently and then I read your explanation as

> to why it is good to have the inner corners done. It is so hard to

> change his appearance but at the same time....

>

> Paige look amazing. The surgery is fantastic. Where did Paige have

> this done?

>

> , Glasgow x

>