Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hi Awdrey. Its Machaela here, from Australia. I really felt for you, reading your message. I can relate to how you are feeling though my daughter is now 2yrs old. I guess I just wanted to say " Hang in there!! " It is hard enough having a new baby, especially with other kids as well, but to be faced with other discoveries can be very overwhelming. I felt very alone when I found out Jess had BPES. I felt very " in the dark " about it all until I found this group. I also felt,no matter how understanding my freinds were that they just had no idea what I was feeling. I would dearly love to create more awareness of this syndrome, so that more people can be aware of it, and I just take one day at a time, because I dont really know what the future holds for my beautiful girl. I do feel lucky that she is healthy and happy and I really found that time really helps. It seemed so magnified when she was first diagnosed, but with time, comes acceptance, and also a better understanding of whats going on. Take care! and know that we are always here for a chat! Just take it day by day and I can promise you, it does get better...xoxoxoxoxo Quote Link to comment Share on other sites More sharing options...
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