Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Hello everyone - I can't express how thankful I am that this group exists and that all of you are so willing to share your experiences. I'm hoping that someone can help me. I am a new mommy of a 4-month old little boy who was just diagnosed with BPES. After meeting with a pediatric opth. at Wills Eye, we were referred to Dr. Katowitz of CHOP, and he recommended that my son get the sling surgery done because his ptosis was severe and would affect his vision. He also mentioned that he would not blink or be able to close his eyes after this sling surgery was completed. For those of you (or parents of affected children) who've had the surgery, could you still blink and close your eyes properly? And if not, how has that affected you with regards to sensitivity to light/wind/sun? Do your eyes stay lubricated and do you have trouble sleeping? I am so frightened and confused. My husband and I want to make the BEST decision for our son. There is no room for error - there's too much at stake. We are not convinced that this surgery is the best option. But we also don't want to do anything to jeapordize his vision, either. This is such a supportive board - we are hoping that someone can please share their experiences with us so that we can make the most informed decision based on real experience, not text book medical reference manuals. Thank you in advance to everyone who responds. Quote Link to comment Share on other sites More sharing options...
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