3rd sling surgery

[Guest guest]

Just wanted to give an update on our son's latest surgery and see if

anyone has had an experience similiar to ours. Our son Rowan, who

will be 3 in August, had his first bi-lateral sling surgery using

donated fascia at 10 months of age. The right lid was not lifted

high enough, so at 19 months he had a second sling surgery using the

donated fascia (again with no success). We interviewed another

surgeon (Dr. Ted. Wojno in Atlanta) on 2 occasions and decided to let

him give it a try. During one of our consultations/interviews, Dr.

Wojno said that about a year ago it occurred to him to try taking two

5 centimeter pieces of fascia from a young patients leg (since at

this age they are too young to get a single 10 centimeter piece) and

then tie them together so that he could use the patient's own fascia

rather than the donated fascia. He said that he had not heard of

this approach and didn't know why he hadn't thought of it sooner. He

said that so far it has worked on that particular patient who is now

3 years old. So we decided to let him try this on Rowan last

Friday. We are back home in Florida now and Rowan is doing extremely

well, running around like nothing ever happened which is similiar to

his previous recoveries. It is too soon to tell if the surgery has

been successful, but we are hoping that his own fascia will be more

effective than the donated material. Has anyone heard of this

approach on the younger kids?

Kim

Tallahassee, FL

[Guest guest]

I hope this works well for Rowan, it seems like it should work fine.

My daughter is 2 yrs 10 mos. and has silicon slings, she also had

canthioplasty in Feb, she is doing well. She will have the slings

with her own fascia lata probaly this Jan (08) She is very tall so I

don't think 10 cm will be difficult to get from her legs.

However, her dr. has stressed to us that for Lily, fascia lata is the

best option, silicon just won't hold up long enough, she has a severe

case.

Beth

>

> Just wanted to give an update on our son's latest surgery and see

if

> anyone has had an experience similiar to ours. Our son Rowan, who

> will be 3 in August, had his first bi-lateral sling surgery using

> donated fascia at 10 months of age. The right lid was not lifted

> high enough, so at 19 months he had a second sling surgery using

the

> donated fascia (again with no success). We interviewed another

> surgeon (Dr. Ted. Wojno in Atlanta) on 2 occasions and decided to

let

> him give it a try. During one of our consultations/interviews, Dr.

> Wojno said that about a year ago it occurred to him to try taking

two

> 5 centimeter pieces of fascia from a young patients leg (since at

> this age they are too young to get a single 10 centimeter piece)

and

> then tie them together so that he could use the patient's own

fascia

> rather than the donated fascia. He said that he had not heard of

> this approach and didn't know why he hadn't thought of it sooner.

He

> said that so far it has worked on that particular patient who is

now

> 3 years old. So we decided to let him try this on Rowan last

> Friday. We are back home in Florida now and Rowan is doing

extremely

> well, running around like nothing ever happened which is similiar

to

> his previous recoveries. It is too soon to tell if the surgery has

> been successful, but we are hoping that his own fascia will be more

> effective than the donated material. Has anyone heard of this

> approach on the younger kids?

>

> Kim

> Tallahassee, FL

>