Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Charlene, Great news about Chyanne! I hope her asthma stays under control as well as her JRA! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Charlene, Good to hear from you. I'm so glad Chyannes sed rate is normal. How is she feeling ? Is the asthma under control now ? Give your angel a kiss from us. Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2000 Report Share Posted November 8, 2000 Charlene great shes doing better how are you doing? Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Teri and Robbin Well thanks for the kind words and all in all I'm doing fine considering every time I think chychys getting better something else happens. Her asthma is doing better but she came home from school today sick again. Her doctor has her wearing mask at school to protect her but I really dont think the school uses them. Another thing Chyanne woke up very stiff this morning and cannot bend her knee because of the swelling in her knee. So can someone please explain to me how she can have a sed rate of 7 and still be flaring so badly? I'm truly confused and any help would be appreciated. Thanks again, Charlene (chychys mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Charlene s sed rate was 3 and her knee and hip was swollen her knee was 3 times the size of her right knee she also has asthma even now we have good days and bad days and it dont just stay in that same hip and knee the other knee swells her wrists swells hands also her back is also affected since your child has asthma you know how unpredictable they can be this is also unpredictable honey its something we have to deal with on a day to day bases i thought everything was goin ok great 2 weeks no problems shes out playing no pain ummm wrong dang just like a cat sneaking up on you she wakes and its mom i am so stiff and hurting i remember back years ago when i was awaked with her barely breathein and gasping for air a severe asthma attack but i am cautious with her ummm protective YES as with every parent its my child and when they are sick you protect them more but i also know to make her do chores and be as normal as possible shes doing good shes my angel but charlene a moms job is hard and i can understand how you feel about the sed rate cause my hubbys dr took his sed rate lolol his was 40 no swelling no pain but melissas sed rate was 3 then 6 and she was hurting and swelling weird yes Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Hi Charlene I'm sorry to hear that your little one is not doing well right now. The ups and downs of this disease can be so frustrating!! Unfortunately, SED rate is not always a good indicator of disease activity in our kids, if I understand correctly. So a normal SED rate does not necessarily mean that your child will not have any inflammation. If I'm wrong, I know someone will set me straight! Wish I could help more. Liz chychysworld@... wrote: > > Teri and Robbin > > Well thanks for the kind words and all in all I'm doing fine considering > every time I think chychys getting better something else happens. Her asthma > is doing better but she came home from school today sick again. Her doctor > has her wearing mask at school to protect her but I really dont think the > school uses them. > > Another thing Chyanne woke up very stiff this morning and cannot bend her > knee because of the swelling in her knee. So can someone please explain to me > how she can have a sed rate of 7 and still be flaring so badly? I'm truly > confused and any help would be appreciated. > > Thanks again, > Charlene (chychys mom) > > > For links to websites with JRA info please visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > To manage your subscription settings, visit: > subscribe/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 ...where do you live? I have a 2yr boy () with pauci, and have been trying to get a support group together too...what kind of JRA does have? (Mom to Will, Pauci, 2yrs. old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 my step dad was born in gary w Virgina you live close by there? Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Hi ,I live in West Virginia.'s dr. hasn't decided what type of JRA she has.She says it's either poly or systemic.She had allot of high fevers for about 5 months before she started limping.But she never had the rash and such.Are you going to the conference?Her dr. is at Children's Hospital in Washington DC.I'm also trying to come up with a fundraising idea to do in the area to inform to public about jra.Well better go and get something done.Hope to hear from you soon. (mom to 20 months) Re: hi again ...where do you live? I have a 2yr boy () with pauci, and have been trying to get a support group together too...what kind of JRA does have? (Mom to Will, Pauci, 2yrs. old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Sorry to say I've never heard of it.We're in the forgotten part of the state.LOL Re: hi again my step dad was born in gary w Virgina you live close by there? Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Hi , I grew up in WV (Huntington and the surrounding area) - what part is the " forgotten part " We moved around a lot when I was a child and lived in Wheeling and Moundsville for a few years. Folks back in the Huntington area (at least our relatives there) would say, " why doesn't the Northern panhandle just become part of PA - that's where they think they live anyway " - I didn't really understand what they meant until I was older. (I'm not trying to pry into what town you live in - but I just wondered what part of the state. - I am thinking since you take to Childrens in DC that it is somewhere in the mid to southeastern part of the state. I work in DC - email me @ carneyval@... separately if you might want to get together sometime when you come in for an appt if you have time to work it in. I know that appt days aren't the best times for making other plans. Hope you and are having a good day today! Val Rob's Mom (4,systemic) In a message dated Sun, 16 Jun 2002 2:10:42 PM Eastern Daylight Time, mommyby3@... writes: > Sorry to say I've never heard of it.We're in the forgotten part of the state.LOL > Re: hi again > > > > my step dad was born in gary w Virgina > you live close by there? > Robbin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Hi ... sorry its taken me so long to respond.....I can not go the conference, I wish we could but its just not affordable for us ( my husband is a full time student getting his masters)....we applied for a scholarship...but did not get one...maybe next year! How is ? Any news yet on what type of arthritis? (Mom to Will, Pauci, 2yrs. old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 hi penny, i take 20mg of arava a day. i am still in pain, i have not had an outbreak of p i still have to take pain killers and vioxx but they just switched me to bextra. i think i need a second opinion i am not getting much better. i just had a real bad three weeks. almost as bad when it first hit me. i have been very tired, can hardly get out of bed and hurt evrywhere. he mentioned remicade so we will see. the arava has not hurt my liver. i have taken it for about a year. i am sure i would be worse without it but cant see a big change. i wish you luck...kyle > Hi everybody, I'm a mostly-lurker. You may remember me from a few > months ago, I asked for recommendations for a rheumy in my area. I live > in N. Florida. Well, I found one, in Pensacola. I had to wait a month > to see him but I expected that. I was pleasantly surprised, he seemed > to know all about PA and what he said matched up with what I've learned > from this group. It was also VERY nice to be taken seriously! OK, so > here's the deal. He said since we won't be able to get our hands on > Enbrel for a good long while, he wants to start me on Arava. He said > Arava can cause liver damage so I'll need to be monitered regularly to > watch for that. He also said it lowers the immune system so I'll need > to be vigilant about getting antibiotics if I get sick, especially since > I'm diabetic this is a big concern for him. I was sorta overwhelmed > while I was in his office and forgot to read my notes, I remembered most > questions but didn't ask all the right stuff about the new information I > got. So, is there anybody here that can tell me a little more about > Arava? How is it taken, and how often? Will it affect the P as well as > the PA? How dangerous is it? Has anybody been helped by it? Does it > help the pain or will I need to be on something like vioxx at the same > time? He says the same thing I've heard here, it's not enough to treat > the pain, the joints will be damaged permanently if this isn't treated > aggressively. He says one joint in my right hand is already permanently > damaged. I asked him about some sort of braces to support my fingers > and wrists so I could function more normally. He said to use a brace > would be a bad idea. It would stop me from moving those joints at all > and make permanent damage more likely than if I continue to try and use > them. Is this what other rheumys advise? Makes sense, but I sure would > get thru the day easier, I think, if I had some strength in my hands and > wrists. At the same time, I don't want to cause further damage. > > I see him again on October 24th, and I assume I will get the Arava > then. I appreciate anything you can tell me about this!!! > > Penny > > _______________________________________________________________ > Be Unique! Get your personalized email address at www.NamePlanet.com > <http://www.NamePlanet.com> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 Judi, Between a broken ankle, working and helping with your 3 new grandchildren, it's no wonder you have time to eat! I'm sorry you are in so much pain. Hopefully now that your cast is not broken, it will calm down. I don't see how you can possibly watch 3 newborns. I had to give up watching my grandson and he's only ONE baby. I just can't pick him up. Finding a babysitter for triplets doesn't sound like an easy task. I hope she finds someone. Hope you feel better. a > Hello everyone, > > I haven't been on line much the last couple of days--helping > with the babies and working, plus dealing with this @% & ! ankle! They > put the new cast on Monday, and I'm supposed to be staying off it for > a full week--that's really no problem, except not moving around as > much is playing heck with my hips and knees. The pain is still > pretty intense, and when Dr. Mc (aka Dr. Cute) examined it > Monday, he said he figures I will be a long time in healing from > this. I just hope it doesn't cause problms when I go to IU on the > 12th. I'm going to cheat a bit Sunday for TJ's birthday, as I > promised I would help him plant his beans and corn in the garden. We > will have 's in-laws here, however many of them choose to show > up with whatever attitudes they show up with. > > Debs, sorry you are having so much trouble--you are always in my > prayers, and this HAS to end soon! > > a and , sorry I haven't been able to keep up with all the > interesting things you are sharing with us. Soon, though, I hope, > when finds some day care. If she doesn't, guess who will be > watching the babies? > > Peace and grace to you all, > Judi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 nne, PLEASE be sure to ask him about Celiac. With you losing weight, he would be justified in giving you the blood test to screen for Celiac…good luck. Debby [ ] hi again Miss all of you very much..hope all are doing well.quick scan and seems things not too bad for the most part. Hope Kels doing better. How is Tony? Have been on computer very little..still fighting the joint/muscle pain..still no def dx as to cause...now getting lumps/knots/bumpss-- don't know what-- near joints, mostly wrists elbows-they add to the fun..come and go. Makes it hard to do much. Fatigue another factor. Only good thing have lost a bit of weight...thingk just too much trouble to eat somedays. Seeing gastro fri...see what ideas he has. Will get back when can. Do take care...think of you all a lot. nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 Barb, Prednisone not only makes me cranky and crabby but the longer I am on it the worst it gets. Also high dosages for me (20mg or greater) make me pyschotic!!! So be careful. I no longer take prednisone. I also had the same problem with any hormonal type medication....even birth control pills. So I don't really have any helpful advice to offer on this one. Make sure you take your prednisone at the start of your day or it will keep you awake all nite. Also lots of water helps. I also would take mine with food. Ihave a very sensitve stomach and it use to make my stomach hurt. I was the only person that lost weight on prednisone. LOL Good luck on your MRI. That is cool that they can do only extremities these days without putting your whole body into the machine. Toni in Texas In a message dated 9/6/2005 4:56:30 A.M. Central Daylight Time, writes: Tue, 06 Sep 2005 00:10:39 -0000 From: " sassyone3173 " <bdciesinski@...> Subject: Hi Again Hi guys. I am not really good at the group thing, i never know what to say. One on one I am okay, but in a group I am a " chicken " . This Thursday I go for an MRI on both elbows, an hour each side! Ouch! My Rheumatologist asked if i could handle it, I just responded with " hope so. " They are using the new extremity MRI where only the joint being examined is placed in the machine, but holding my elbows that long is what concerns me. The prednisone they started me on last Tuesday is making me really moody. Has anyone else experienced that? If so how did you deal with it? Was there anything you did that helped it? I am usually a patient person and now I am crabbing at my kids and hubby a lot. Any imput would help greatly, I am new to this. Sincerely, Barb ( Sassyone3173) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 Barb, Prednisone not only makes me cranky and crabby but the longer I am on it the worst it gets. Also high dosages for me (20mg or greater) make me pyschotic!!! So be careful. I no longer take prednisone. I also had the same problem with any hormonal type medication....even birth control pills. So I don't really have any helpful advice to offer on this one. Make sure you take your prednisone at the start of your day or it will keep you awake all nite. Also lots of water helps. I also would take mine with food. Ihave a very sensitve stomach and it use to make my stomach hurt. I was the only person that lost weight on prednisone. LOL Good luck on your MRI. That is cool that they can do only extremities these days without putting your whole body into the machine. Toni in Texas In a message dated 9/6/2005 4:56:30 A.M. Central Daylight Time, writes: Tue, 06 Sep 2005 00:10:39 -0000 From: " sassyone3173 " <bdciesinski@...> Subject: Hi Again Hi guys. I am not really good at the group thing, i never know what to say. One on one I am okay, but in a group I am a " chicken " . This Thursday I go for an MRI on both elbows, an hour each side! Ouch! My Rheumatologist asked if i could handle it, I just responded with " hope so. " They are using the new extremity MRI where only the joint being examined is placed in the machine, but holding my elbows that long is what concerns me. The prednisone they started me on last Tuesday is making me really moody. Has anyone else experienced that? If so how did you deal with it? Was there anything you did that helped it? I am usually a patient person and now I am crabbing at my kids and hubby a lot. Any imput would help greatly, I am new to this. Sincerely, Barb ( Sassyone3173) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 --Toni, Thanks for the advice about the prednisone. It is really frustrating because I am such a calm easy going person and these past couple of days the pain and I imagine the prednisone has made me a crazy person! I heard that the prednisone keeps you awake, so taking it in the morning is what I do. I have enough trouble sleeping without prednisone keeping me awake!! You know what is funny? A lot of people say that their appetite increases on this stuff, I found that I have no appetite. I have to make myself eat or I would go all day and night not eating at all. Guess I wont have to worry about getting over weight on this med. Thanks for the luck, could use it! I hope being on the prednisone is a totally temporary thing or I will be trying to sneak emails to you all from the nut hatch! LOL Barb - In , aclavern33@a... wrote: > > Barb, > Prednisone not only makes me cranky and crabby but the longer I am on it the > worst it gets. Also high dosages for me (20mg or greater) make me > pyschotic!!! So be careful. I no longer take prednisone. I also had the same > problem with any hormonal type medication....even birth control pills. So I don't > really have any helpful advice to offer on this one. > > Make sure you take your prednisone at the start of your day or it will keep > you awake all nite. Also lots of water helps. I also would take mine with > food. Ihave a very sensitve stomach and it use to make my stomach hurt. I > was the only person that lost weight on prednisone. LOL > > Good luck on your MRI. That is cool that they can do only extremities these > days without putting your whole body into the machine. > > Toni in Texas > > In a message dated 9/6/2005 4:56:30 A.M. Central Daylight Time, > writes: > > Tue, 06 Sep 2005 00:10:39 -0000 > From: " sassyone3173 " <bdciesinski@h...> > Subject: Hi Again > > Hi guys. I am not really good at the group thing, i never know what > to > say. One on one I am okay, but in a group I am a " chicken " . This > Thursday I go for an MRI on both elbows, an hour each side! Ouch! My > Rheumatologist asked if i could handle it, I just responded with > " hope > so. " They are using the new extremity MRI where only the joint being > examined is placed in the machine, but holding my elbows that long is > what concerns me. The prednisone they started me on last Tuesday is > making me really moody. Has anyone else experienced that? If so how > did you deal with it? Was there anything you did that helped it? I am > usually a patient person and now I am crabbing at my kids and hubby a > lot. Any imput would help greatly, I am new to this. > > Sincerely, > > Barb ( Sassyone3173) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 --Toni, Thanks for the advice about the prednisone. It is really frustrating because I am such a calm easy going person and these past couple of days the pain and I imagine the prednisone has made me a crazy person! I heard that the prednisone keeps you awake, so taking it in the morning is what I do. I have enough trouble sleeping without prednisone keeping me awake!! You know what is funny? A lot of people say that their appetite increases on this stuff, I found that I have no appetite. I have to make myself eat or I would go all day and night not eating at all. Guess I wont have to worry about getting over weight on this med. Thanks for the luck, could use it! I hope being on the prednisone is a totally temporary thing or I will be trying to sneak emails to you all from the nut hatch! LOL Barb - In , aclavern33@a... wrote: > > Barb, > Prednisone not only makes me cranky and crabby but the longer I am on it the > worst it gets. Also high dosages for me (20mg or greater) make me > pyschotic!!! So be careful. I no longer take prednisone. I also had the same > problem with any hormonal type medication....even birth control pills. So I don't > really have any helpful advice to offer on this one. > > Make sure you take your prednisone at the start of your day or it will keep > you awake all nite. Also lots of water helps. I also would take mine with > food. Ihave a very sensitve stomach and it use to make my stomach hurt. I > was the only person that lost weight on prednisone. LOL > > Good luck on your MRI. That is cool that they can do only extremities these > days without putting your whole body into the machine. > > Toni in Texas > > In a message dated 9/6/2005 4:56:30 A.M. Central Daylight Time, > writes: > > Tue, 06 Sep 2005 00:10:39 -0000 > From: " sassyone3173 " <bdciesinski@h...> > Subject: Hi Again > > Hi guys. I am not really good at the group thing, i never know what > to > say. One on one I am okay, but in a group I am a " chicken " . This > Thursday I go for an MRI on both elbows, an hour each side! Ouch! My > Rheumatologist asked if i could handle it, I just responded with > " hope > so. " They are using the new extremity MRI where only the joint being > examined is placed in the machine, but holding my elbows that long is > what concerns me. The prednisone they started me on last Tuesday is > making me really moody. Has anyone else experienced that? If so how > did you deal with it? Was there anything you did that helped it? I am > usually a patient person and now I am crabbing at my kids and hubby a > lot. Any imput would help greatly, I am new to this. > > Sincerely, > > Barb ( Sassyone3173) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Hi Barb, We are your RA family, and soon you will feel so comfortable with the group, it just takes time. We all go through the same thing, and we stand strong to help each other. I hope the MRI goes alright tomorrow. I know this is so hard, two hours:( Maybe they can give you breaks, I hope so. The prednisone made me really moody, and I felt so out of control. I didn't like it at all, and I got off it. A short term taper isnt' too bad, but the long term, it would not be my choice. It does help a lot of people with the pain and swelling, but that is about it. The side effects just keeps me away from it. I noticed that Jerry lost about 80lbs after going off it. His face looked so awful when he was on it, and what a change, he looks so great now. Keep us posted how things go, and will keep you in my prayers, Tawny --- In , " sassyone3173 " <bdciesinski@h...> wrote: > Hi guys. I am not really good at the group thing, i never know what > to > say. One on one I am okay, but in a group I am a " chicken " . This > Thursday I go for an MRI on both elbows, an hour each side! Ouch! My > Rheumatologist asked if i could handle it, I just responded with > " hope > so. " They are using the new extremity MRI where only the joint being > examined is placed in the machine, but holding my elbows that long is > what concerns me. The prednisone they started me on last Tuesday is > making me really moody. Has anyone else experienced that? If so how > did you deal with it? Was there anything you did that helped it? I am > usually a patient person and now I am crabbing at my kids and hubby a > lot. Any imput would help greatly, I am new to this. > > Sincerely, > > Barb ( Sassyone3173) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Hi Barb, We are your RA family, and soon you will feel so comfortable with the group, it just takes time. We all go through the same thing, and we stand strong to help each other. I hope the MRI goes alright tomorrow. I know this is so hard, two hours:( Maybe they can give you breaks, I hope so. The prednisone made me really moody, and I felt so out of control. I didn't like it at all, and I got off it. A short term taper isnt' too bad, but the long term, it would not be my choice. It does help a lot of people with the pain and swelling, but that is about it. The side effects just keeps me away from it. I noticed that Jerry lost about 80lbs after going off it. His face looked so awful when he was on it, and what a change, he looks so great now. Keep us posted how things go, and will keep you in my prayers, Tawny > Hi guys. I am not really good at the group thing, i never know what > to > say. One on one I am okay, but in a group I am a " chicken " . This > Thursday I go for an MRI on both elbows, an hour each side! Ouch! My > Rheumatologist asked if i could handle it, I just responded with > " hope > so. " They are using the new extremity MRI where only the joint being > examined is placed in the machine, but holding my elbows that long is > what concerns me. The prednisone they started me on last Tuesday is > making me really moody. Has anyone else experienced that? If so how > did you deal with it? Was there anything you did that helped it? I am > usually a patient person and now I am crabbing at my kids and hubby a > lot. Any imput would help greatly, I am new to this. > > Sincerely, > > Barb ( Sassyone3173) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 Cosima, Dr. Kolb is terrific. The only question I have is how long it will take you to get in. The implanting surgeon is usually the worst choice. . .. They are reluctant to admit mistakes and are more likely to try to cover them up. Dr. Kolb's website is www.plastikos.com. Her pre-explant protocol can help you begin feeling better even before explant. I don't know her personally, but she's very popular with the women here who have been to her. Hugs and prayers, Rogene --- Cosima <cosimaf@...> wrote: > I was wondering if any of you here are familiar with > Dr. Kolb in > Atlanta.Has anyone here been to her or had > explantation surgery done > by her.I've just about decided that I can't wait the > 2 1/2-3 months > to see my original plastic surgeon and I don't trust > that he would do > a total capsulectomy. He's more into the business of > putting them in > but I/m sure he's also taken them out too. My chest > is really feeling > uncomfortable and achey right now. My breasts feel > sore and the skin > on them and my nipples have become sensitive.They > don't look red or > anything that would seem to indicate infection or > inflammation but > they feel inflamed.so I'm thinking that I might > could get in to see > Dr. Kolb sooner.Atlanta is only an hour and ahalf > further than from > me that ville, Fla. where my surgeon is.The > only thing is that > since I'm already an established patient with my > surgeon his fees > might be lower for both the consult($50 I was quoted > on phone)and the > surgery. I'm not able to work right now and don't > have health > insurance and neither does my husband. I did read on > her website > about payment arrangements but will the consult with > her cost a lot? > I don't get any more college loan money until > February and that is > basically what we live on in addition to my husbands > jobs. frankly, > I'm not sure how I'm making through grad school as > awful as I feel > most of the time.I just want these things out of my > body before > things either get worse or I end up in a crisis. I > did email Dr. Kolb > but I'm thinking about going ahead and calling her > office tomorrow > but maybe she might be too busy to actually talk to > me on the phone > and I'll just have to make an appointment.Please let > me know if any > of you have talked to/seen her. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 I'm glad you found Dr. Kolb - I didn't use her, I chose Dr. Feng instead because she was closer in location than Dr. Kolb, and I felt she was equally impressive, but Dr. Kolb has explanted many of the women on this site, and I'm sure you'll be getting alot of feedback on her. When I called Dr. Kolb while investigating explantation, she responded to my e-mail on a weekend and then called me during that same weekend, and spoke to me in great length. How many doctors do that? Sis > > I was wondering if any of you here are familiar with Dr. Kolb in > Atlanta.Has anyone here been to her or had explantation surgery done > by her.I've just about decided that I can't wait the 2 1/2-3 months > to see my original plastic surgeon and I don't trust that he would do > a total capsulectomy. He's more into the business of putting them in > but I/m sure he's also taken them out too. My chest is really feeling > uncomfortable and achey right now. My breasts feel sore and the skin > on them and my nipples have become sensitive.They don't look red or > anything that would seem to indicate infection or inflammation but > they feel inflamed.so I'm thinking that I might could get in to see > Dr. Kolb sooner.Atlanta is only an hour and ahalf further than from > me that ville, Fla. where my surgeon is.The only thing is that > since I'm already an established patient with my surgeon his fees > might be lower for both the consult($50 I was quoted on phone)and the > surgery. I'm not able to work right now and don't have health > insurance and neither does my husband. I did read on her website > about payment arrangements but will the consult with her cost a lot? > I don't get any more college loan money until February and that is > basically what we live on in addition to my husbands jobs. frankly, > I'm not sure how I'm making through grad school as awful as I feel > most of the time.I just want these things out of my body before > things either get worse or I end up in a crisis. I did email Dr. Kolb > but I'm thinking about going ahead and calling her office tomorrow > but maybe she might be too busy to actually talk to me on the phone > and I'll just have to make an appointment.Please let me know if any > of you have talked to/seen her. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 I live in South Florida, and I went to Dr. Kolb. I had my explant in April, 2004. Dr. Kolb will find time to talk with you on the phone. She is an excellent surgeon, and very concerned about implant issues... She takes the time required to do the job right. > > > > I was wondering if any of you here are familiar with Dr. Kolb in > > Atlanta.Has anyone here been to her or had explantation surgery > done > > by her.I've just about decided that I can't wait the 2 1/2-3 > months > > to see my original plastic surgeon and I don't trust that he would > do > > a total capsulectomy. He's more into the business of putting them > in > > but I/m sure he's also taken them out too. My chest is really > feeling > > uncomfortable and achey right now. My breasts feel sore and the > skin > > on them and my nipples have become sensitive.They don't look red > or > > anything that would seem to indicate infection or inflammation but > > they feel inflamed.so I'm thinking that I might could get in to > see > > Dr. Kolb sooner.Atlanta is only an hour and ahalf further than > from > > me that ville, Fla. where my surgeon is.The only thing is > that > > since I'm already an established patient with my surgeon his fees > > might be lower for both the consult($50 I was quoted on phone)and > the > > surgery. I'm not able to work right now and don't have health > > insurance and neither does my husband. I did read on her website > > about payment arrangements but will the consult with her cost a > lot? > > I don't get any more college loan money until February and that is > > basically what we live on in addition to my husbands jobs. > frankly, > > I'm not sure how I'm making through grad school as awful as I feel > > most of the time.I just want these things out of my body before > > things either get worse or I end up in a crisis. I did email Dr. > Kolb > > but I'm thinking about going ahead and calling her office tomorrow > > but maybe she might be too busy to actually talk to me on the > phone > > and I'll just have to make an appointment.Please let me know if > any > > of you have talked to/seen her. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 thanks to all of you for your feedback and support. I plan on calling Dr. Kolb's office tomorrow to make an appointment and hope they let me talk to her as well as I seem to becoming pretty ill real fast over the last few days. I feel like I have the flu but I don't have a fever like I usually do when I have the flu but in every other way I feel just like the flu except my chest/breasts are hurting a lot- feels like a lot of pressure in the middle of my chest and it makes it hard to breathe.But yet there's no redness or anything I can see. I hope and pray that she can see me before the pain becomes unbearable or something worse happens. --- In , " Molly Bloom " <mollyb54@b...> wrote: > > I live in South Florida, and I went to Dr. Kolb. I had my explant in April, 2004. > Dr. Kolb will find time to talk with you on the phone. She is an excellent surgeon, and very > concerned about implant issues... She takes the time required to do the job right. > > --- In , " auntsisnj " <auntsisnj@l...> wrote: > > > > I'm glad you found Dr. Kolb - I didn't use her, I chose Dr. Feng > > instead because she was closer in location than Dr. Kolb, and I felt > > she was equally impressive, but Dr. Kolb has explanted many of the > > women on this site, and I'm sure you'll be getting alot of feedback > > on her. When I called Dr. Kolb while investigating explantation, > > she responded to my e-mail on a weekend and then called me during > > that same weekend, and spoke to me in great length. How many > > doctors do that? > > > > Sis > > > > > > --- In , " Cosima " <cosimaf@b...> wrote: > > > > > > I was wondering if any of you here are familiar with Dr. Kolb in > > > Atlanta.Has anyone here been to her or had explantation surgery > > done > > > by her.I've just about decided that I can't wait the 2 1/2-3 > > months > > > to see my original plastic surgeon and I don't trust that he would > > do > > > a total capsulectomy. He's more into the business of putting them > > in > > > but I/m sure he's also taken them out too. My chest is really > > feeling > > > uncomfortable and achey right now. My breasts feel sore and the > > skin > > > on them and my nipples have become sensitive.They don't look red > > or > > > anything that would seem to indicate infection or inflammation but > > > they feel inflamed.so I'm thinking that I might could get in to > > see > > > Dr. Kolb sooner.Atlanta is only an hour and ahalf further than > > from > > > me that ville, Fla. where my surgeon is.The only thing is > > that > > > since I'm already an established patient with my surgeon his fees > > > might be lower for both the consult($50 I was quoted on phone) and > > the > > > surgery. I'm not able to work right now and don't have health > > > insurance and neither does my husband. I did read on her website > > > about payment arrangements but will the consult with her cost a > > lot? > > > I don't get any more college loan money until February and that is > > > basically what we live on in addition to my husbands jobs. > > frankly, > > > I'm not sure how I'm making through grad school as awful as I feel > > > most of the time.I just want these things out of my body before > > > things either get worse or I end up in a crisis. I did email Dr. > > Kolb > > > but I'm thinking about going ahead and calling her office tomorrow > > > but maybe she might be too busy to actually talk to me on the > > phone > > > and I'll just have to make an appointment.Please let me know if > > any > > > of you have talked to/seen her. > > > > > > Quote Link to comment Share on other sites More sharing options...
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