Thanks

[Guest guest]

Thanks to all who replied to my post. I appreciate it very much. I'm

so pleased to have come across this group. 16 years ago it was very

difficult for me to get information about ptosis and bleph. The first

doctor we went to told us our son had blepharophimosus (in a waiting

room) we had been there for 3 hours with a 1 month old baby-when I

asked him to please spell it for me- he said- " Why are you going to

look it up " in a very sarcastic manner. Needless to say we found

another doctor. It would of been nice to have people who had gone

through the process to talk to. I see the pictures of your little

bundles, toddlers, big kids, and it makes me smile-they too are

beautiful. You know I have never seen another child, person with bleph..

To hear the responses of you with bleph I appreciate your honesty. I

have another question, though..we don't talk alot about my son's eyes-

to us it is just part of the package that is him. He doesn't really

talk about it- only very occasionally...but as a kid do you think he

would like to talk more about his feelings around it..but in someway

are protecting us from some of the teasing I am sure he has received.