People in the database who are from Australia or NZ

[Guest guest]

Hi

Here is a list of people who are in the part of the group called

“database”, who live in Australia or New Zealand. There are nearly

800 members in our group. About 150 have chosen to put some information

about themselves in the section of the site called “Database”.

I hope you find it useful … and feel encouraged to

add your name, and as little / most information about yourselves.

Regards

Shireen Mohandes

London, England

Name

Email

Address

& City

State

Country

People

in my family with BPES

Year

of birth / Gender

Surgery

information

Would

like to meet others in area

My

ID for Messenger

Antonia

Collin

nicoleacollin@...

Sydney

NSW

Austraila

Antonia

2005

yes

Bridget

Armitage

pcarmitage@...

Canberra

ACT

Australia

None

2006\,Female

Yes

pc_armitage

Ky

kylie@...

Sydney

NSW

Australia

Just

me.

1986/female

10

and counting

Sure

Rob

r.watson@...

Sydney

NSW

Australia

Father\,

aunty\, me\, son

1961

/ Male

Slings\,

canthoplasties\, squints\, tear ducts

Yes

ally

kaldi@...

Gold

coast

Queensland

Australia

Myself+2

of my sons.

1967

Female

8

opps from the age of 2 to 16.

yes

allygirl

Bree

Hills

breehills@...

Brisbane

Queensland

Australia

My

2nd daughter\, Hannah Mei

2005

/ Female

ophthalmologist

says we start talking around 3rd birthday

Yes

Jessie

H. (mum machaela)

machaela@...

Ballarat

Australia

only

Jessie

2005

F

planned

for Dec.'07

definately

macster74@...

kerry

bennett

mnmom1325@...

Sale

Australia

Daughter\,husband\,father

inlaw the list goes on

Daughter

2002 husband 1969

husband

had surgury when he was a child didn't work daughter having her first surgery

later this year.

yes

please

a

and Charlie Schneider

mepas@...

Melbourne

Australia

Just

charlie

2002/male

none

yet

yes

charlie

Karolin

Demircian

karolin_demircian@...

2

Close Endeavour Hill\, Melbourne

3802

Australia

Myself\,

daughter 5 yrs son 10mths

1975

Female

Surgery

x 3

Yes

Home

phone = 613- 9700 7321; work = 0413 936188

Robyn

Fortune

drtfortune@...

Perth

Western

Australia

Australia

Son\,

Tyler

2006\,

Male

First

surgery planned for mid 2007.

Yes\,

definitely.

drtfortune

Kaleb Pook (toddler)

v.pook@...

Picton

New Zealand

Me

2005 Male

Due for temporary eyelift 3rd december 07

Yes

v.pook

Maree

gourley@...

Waihi Beach

Bay of Plenty

NZ

2 - me & my daughter

1957 / Female

as a baby & 15yrs

yes

maree

kandigirl414@...

Waihi Beach

Bay of Plenty

NZ

2 - me & my mum

1986 / Female

at 13yrs old & 18yrs

yes please

skittle

(baby) Alyssa

Auckland

NZ

Just me

2002 / Female

Yes

andreajoyf@...

Wellington

NZ

just me

1968/F

lots

yes

andrewh@...

Gisborne

NZ

Father\, Brother and Daughter (6)

1966

Baylee (My Daughter) has had Trans-nasal wiring and brow lift

from thigh tissue

Yes

Rebekah Omelvena

rebekah.o@...

Mokau\, North Taranaki

NZ

just me

1980/female

Have had 7 surgeries. Ages: 3\, 4\, 6\, 12\, 17 and two

at 18yrs. All done at Waikato Hospital by Dr Beehan and Dr

Stuart McNicoll.

yes

beckao2000

Roselover

naturebent@...

Christchurch

NZ

son and me

F/52 and M/71

ME: plastic slings/skin graft from outer knee @ 7yrs.

Adjustment @ 10yrs. 1 sling now detached\, the other too tight. Wish

for more corrective surgury. SON - loop tightening of the bilateral

muscles considered successful Mr Tarr Christchurch

yes please - by my email

mainland4wd

ETHAN

tltne@...

Christchurch

NZ

None

2003 / Male

Yes

[Guest guest]

I did this list on the 1st Jan … so it may be a

little out of date … but will give you an idea.

I can also let you have a list of anyone that has an Australian

style email address …

I think it is great that everyone is planning a get together.

I think the very first one was in St Louis when 6 families met

up, then there was one in Boston, with 5 families …. I have the photos from

both in a box somewhere …

Good luck guys – and be sure to advertise it extensively – somebody

from another country may be in your neighbourhood … so they may like to come

along too.

Shireen Mohandes

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of Shireen Mohandes

Sent: 01 January 2009 10:06

blepharophimosis

Subject: blepharophimosis People in the database who are from

Australia or NZ

Name

Email

Address & City

State

Country

People in my family with BPES

Year of birth / Gender

Surgery information

Would like to meet others in area

My ID for Messenger

Antonia Collin

nicoleacollin@...

Sydney

NSW

Austraila

Antonia

2005

yes

Bridget Armitage

pcarmitage@...

Canberra

ACT

Australia

None

2006\,Female

Yes

pc_armitage

Ky

kylie@...

Sydney

NSW

Australia

Just me.

1986/female

10 and counting

Sure

Rob

r.watson@...

Sydney

NSW

Australia

Father\, aunty\, me\, son

1961 / Male

Slings\, canthoplasties\, squints\, tear ducts

Yes

ally

kaldi@...

Gold coast

Queensland

Australia

Myself+2 of my sons.

1967 Female

8 opps from the age of 2 to 16.

yes

allygirl

Bree Hills

breehills@...

Brisbane

Queensland

Australia

My 2nd daughter\, Hannah Mei

2005 / Female

ophthalmologist says we start talking around 3rd

birthday

Yes

Jessie H. (mum machaela)

machaela@...

Ballarat

Australia

only Jessie

2005 F

planned for Dec.'07

definately

macster74@...

kerry bennett

mnmom1325@...

Sale

Australia

Daughter\,husband\,father inlaw the list goes on

Daughter 2002 husband 1969

husband had surgury when he was a child didn't work

daughter having her first surgery later this year.

yes please

a and Charlie

Schneider

mepas@...

Melbourne

Australia

Just charlie

2002/male

none yet

yes

charlie

Karolin Demircian

karolin_demircian@...

2 Close Endeavour Hill\, Melbourne

3802

Australia

Myself\, daughter 5 yrs son 10mths

1975 Female

Surgery x 3

Yes

Home phone = 613- 9700 7321; work = 0413 936188

Robyn Fortune

drtfortune@...

Perth

Western Australia

Australia

Son\, Tyler

2006\, Male

First surgery planned for mid 2007.

Yes\, definitely.

drtfortune

Kaleb Pook

(toddler)

v.pook@...

Picton

New Zealand

Me

2005 Male

Due for temporary eyelift 3rd december

07

Yes

v.pook

Maree

gourley@...

Waihi Beach

Bay of Plenty

NZ

2 - me & my daughter

1957 / Female

as a baby & 15yrs

yes

maree

kandigirl414@...

Waihi Beach

Bay of Plenty

NZ

2 - me & my mum

1986 / Female

at 13yrs old & 18yrs

yes please

skittle

(baby) Alyssa

Auckland

NZ

Just me

2002 / Female

Yes

andreajoyf@...

Wellington

NZ

just me

1968/F

lots

yes

andrewh@...

Gisborne

NZ

Father\, Brother and Daughter (6)

1966

Baylee (My Daughter) has had

Trans-nasal wiring and brow lift from thigh tissue

Yes

Rebekah

Omelvena

rebekah.o@...

Mokau\, North Taranaki

NZ

just me

1980/female

Have had 7 surgeries. Ages: 3\,

4\, 6\, 12\, 17 and two at 18yrs. All done at Waikato Hospital by Dr

Beehan and Dr Stuart McNicoll.

yes

beckao2000

Roselover

naturebent@...

Christchurch

NZ

son and me

F/52 and M/71

ME: plastic slings/skin graft from

outer knee @ 7yrs. Adjustment @ 10yrs. 1 sling now detached\, the other too

tight. Wish for more corrective surgury. SON - loop tightening of

the bilateral muscles considered successful Mr Tarr Christchurch

yes please - by my email

mainland4wd

ETHAN

tltne@...

Christchurch

NZ

None

2003 / Male

Yes