People in the database who are from the UK

[Guest guest]

Hi

Here is a list of people who are in the part of the group

called “database”, who live in the UK. There are nearly 800

members in our group. About 150 have chosen to put some information about

themselves in the section of the site called “Database”.

I hope you find it useful … and feel encouraged to

add your name, and as little / most information about yourselves.

Regards

Shireen Mohandes

London, England

Name

Email

Address

& City

State

Country

People

in my family with BPES

Year

of birth / Gender

Surgery

information

Would

like to meet others in area

My

ID for Messenger

Filbey

scottfilbey@...

truro

cornwall

UK

me

yes

add

my email

therese

daniell

theresedaniell@...

Tiverton

Devon

UK

my

daughter Esme

07/10/2004

female

planned

for 2007/8

yes

Singer

.Singer@...

South

London\, SE19

England

UK

Brother\,

Daughter and Nephew

1961

/ Male

Sure\,

why not :-)

South_London_Man2003

Vickie

Goodman

vickiepinkandrew@...

41

Springfields\, Braintree\, Essex

Essex

UK

Husband\,

Daughter\, Father-in-law and sister -in-law

25/09/2006

Female

None

yet

Essex

Parsons

parsonsfamily108@...

Colchester

Essex

UK

1\,

my daughter Kirsten

2002/

Female

Temporary

lid lift at 2 years old. Y-V canthoplasty at 3 years done at Moorfields. 2nd and

final lid lift using fascia at 4yrs. Surgeon Mr Collin

Yes

Hannah

Hampshire

UK

sister\,

dad\, uncle\, cousins\, grandad

1979

/ Female

yes

sadieben2000

Holly

Chidgey

lcgosport@...

Gosport

Hampshire

UK

None

2005/Female

Eye

lift Sept 2006 aged 18 months

Yes

definitely

Clair

Coy

claircoy@...

Eversley

Hampshpire

UK

Me

26/02/1984

Female

(ptosis)

Bilateral Y-V medial canthoplasty + transnasal wire 29 Aug 1997 (13 years old)

Bilateral brow suspension with autogenous fascia and lacrimal syringing 1 Apr

1998 (14 years old) I never had the 3rd surgery which he thought was

unnessary. Mr Colin\, Moorfields.

Mandy

Naylor (nee Goode)

bilmansamjam@...

Hereford

Herefordshire

UK

loads

1969

/ F

2

ops at 6 and 8 years old\, none for daughter yet. Consultant at Queens

in Birmingham.

yes

spuduk33

Imogen

martin@...

Ormskirk

Lancashire

UK

just

me

1991

Female

None

Maybe

mjdheffernan@...

Shireen

shireen@...

London

London

UK

1.

just me.

1961

/ Female

at

ages 2.5\, 12\, 18. All three were done by Mr s at Great

Ormond Street Hospital for Children\, in London\, England.

Yes

shireenimohandes

Bryony

bryony2@...

Oxford

UK

LOTS!!!!

1978

Female

Lots

at Great Ormond Street with Mr Collin

Yes

Cameron

denisecam1@...

Glasgow

Scotland

UK

Son\,

Father\, Sister\, Neice

1975

Female

Yes

Nadine Duncan

birrellnadine@...

Gateshead

Tyne

& Wear

UK

me

21.5.77

Female

2

operations at Moorfields at age 9 & 10 yrs

yes

birrellnadine@...

Grace

Horsley

nicola_horsley@...

Bingley

West

Yorkshire

UK

Just

Grace

2005

Female

None

as yet

Joyce

Ibitoye

joyceaibitoye@...

London

Westminster

UK

Both

daugters Mayowa and Tina

1994/1997

females

Mayowa

2 surgeries at 6 and 11. Tina 1 surgery @ 8 years old. BPES runs in their

dad's family.

Already

met a few will like to meet as many as possible

haribo.molly@...

83

dicconson lane

wigan.

England

UK

just

molly

2006

none

yet

yes

please

wendy673755

julie

kookie61@...

west

london

UK

just

me

1961

5

ops

yes

Suzanne

& Jeff Heatwole

jeff.heatwole@...

Harrogate

UK

1

Daughter Ella

2002

Female

Brow

suspension at 4 months

yes

suzanneheatwole

Todd

Obbard

carolineobbard@...

Ashford\,

Kent

UK

just

me

2002/male

none

to date

yes

Vicky\,

Mark &

vcash67@...

Macclesfield\,Cheshire

UK

Just

2005/male

None\,

yet

Yes

markvincent72

June

June3005@...

Warrington

Cheshire

UK

Son

& Grandson

1972Male/2006

Male

Son1976

/Grandson none yet

Yes

fall3005

abbie

gogarty

abbie_gog@...

west

midlands

UK

sister

and father

1975\,

female

bilateral

sling in 1993

yes

abbie_gog

Seville

patseville@...

Manchester

UK

My

daughter Nicola (also has Ohdo Syndrome)

14th

March 1988 - Female

None

Clare

Teale

clareteale@...

Hertford

UK

Me

and my daughter (8)

1968

female

2

ops at 14yrs\, daughter at 4yrs both by Mr Colin\, Moorfields

yes

Shena

Lawrence

shena.lawrence@...

Derby

UK

Molly - daughter

1996

Evie

had surgery when she was 6 - a brow sling to help her open her eyes

yes

shena

Anita

Holcroft

anita.holcroft@...

Leamington

Spa

UK

Me

and my mother

1966/Female

Surgery

every other year from age 2 -10. Lid surgery age 10. One final op at

age 21. Surgeon: Dr Lendrum at Manchester Royal Eye Hospital.

YES

Celine

celine180@...

Kent

UK

Just

me!

20

years old. female.

two

ops age 5 and 6

Yes

Ali

other.sodiqs@...

Leicester

UK

Just

me

2003/Male

Planned

for 2007 (age 4yrs)

Bipin

Mahey

tessamackenzie@...

London

UK

Father\,

uncle\, aunt\, grandfather

2005

male

none

yet

yes