Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hello , All I can say is that I can hear your pain when was real sick it was the worst year of or lives for maney reasons lack of sleep being one of them she was up at least three times a night and my youngest was only 6 months old so between the 2 of them my husband and I were up at least 5 times a night we were the walking dead > What we did I am sure a lot of people would disagree with is we put a toddler bed in our room after a while she felt better (safer to I think) and we finally got some sleep ,the down side to that is that she is still there and she nore my husband have any planes any time soon of changing these arrangments > but I guess well all get sleep :-) good luck >From: " Amy Fox " <foxpro@...> >Reply- onelist > " JRA " < onelist> >Subject: sleep deprived >Date: Thu, 27 Jan 2000 08:34:49 -0800 >MIME-Version: 1.0 >Received: from [208.48.218.13] by hotmail.com (3.2) with ESMTP id >MHotMailBA59BE400049D821979CD030DA0D5D82139; Thu Jan 27 08:35:32 2000 >Received: from [10.1.10.35] by hk. with NNFMP; 27 Jan 2000 >16:30:27 -0000 >Received: (qmail 9314 invoked from network); 27 Jan 2000 16:30:24 -0000 >Received: from unknown (10.1.10.26) by 10.1.10.35 with QMQP; 27 Jan 2000 >16:30:24 -0000 >Received: from unknown (HELO e4500b.callatg.com) (206.58.250.61) by >mta1.onelist.com with SMTP; 27 Jan 2000 16:30:24 -0000 >Received: (qmail 17517 invoked from network); 27 Jan 2000 16:30:22 -0000 >Received: from unknown (HELO amy) (206.58.253.82) by e4500b.callatg.com >with SMTP; 27 Jan 2000 16:30:22 -0000 >From sentto-80038-2867-shancna Thu Jan 27 08:38:38 2000 >X-eGroups-Return: sentto-80038-2867-shancna=hotmail.comreturns (DOT) onelist.com >Message-ID: <001801bf68e4$70087d60$52fd3ace@amy> >X-Priority: 3 >X-MSMail-Priority: Normal >X-Mailer: Microsoft Outlook Express 5.00.2615.200 >X-MimeOLE: Produced By Microsoft MimeOLE V5.00.2615.200 >Mailing-List: list onelist; contact -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: " Amy Fox " <foxpro@...> > >Hello! HeLp Me! > > (3 1/2 years old) is driving us crazy. She is getting up in the >middle of the night claiming she is hungry. I feed her crackers (saltines). >Well, lastnight she was awake in her room until almost 10:30 p.m. and then >I heard her cry out at 1 a.m. Then she got us up 3:30 a.m. She claimed she >was hungry. So, she only 2 saltines and then she wanted to read books in >our bed because she wasn't tired. She didn't go back to bed until close to >5 a.m. *aaahhh* Which wouldn't be so bad if she was an only child. But I >had my babies in 34 months (with her being the oldest). So, here I sit >tired at 8 a.m. while still sleeps. What do I do? >She takes an afternoon rest (sometimes she falls asleep) everyday when her >siblings do. I NEED that time by myself each day to recupporate. She >basically refuses to eat dinner but is hungry before bed. So, lastnight I >bad sure to feed her some oatmeal, then cheerios and then bread with >butter. When we shut her bedroom door she cried she was hungry again. >Anyone deal with this before? I don't know if she is really hungry or just >wanting to get out of bed! She is small for her age (weighs 26 pounds). > >Any suggestions?????????????? Someone told me that maybe she is having a >burning sensation (like when you have an ulcer) and she is mistaking that >for hunger. > >~Amy > >P.S. she takes MTX and we just took her off of naproxen to see if that >helps with the stomach pain. > >Mother to 3 1/2 years old (poly-jra) > >Mother to Andy 2 years old > > Mother to Maddie 8 months old > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 when tristan was taken off his prednisone and ibuprofen his appetite came back full force. he is constantly eating. is your daughter taking prednisone? that could be the cause of insomnia. my son stays up late too, i just put in a movie while we snuggle up on the couch and ill fall asleep with him next to me. by the time winnie the pooh is over, hes asleep too and if i happen to wake up i will move us to our rooms. my 7 year old gets jealous and its been difficult explaining to her why her little brother gets certain treatment. i told her if we didnt give in a little bit he'd drive us all crazy. haha she is a great kid though and is very understanding. cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Dear Amy, I know that sometimes n will complain of insomnia. She will tell me that she wakes up at 3 a.m. and can't go back to sleep. Maybe it is part of the disease. We have a 2 1/2 year old little boy that doesn't sleep too well. He doesn't take a nap anymore. I know it is a trade off between daytime sanity, or night time sleep. If took a nap, he would be running around the house until midnight. You may want to try no nap. I know you don't want to hear that, but you could try it. Good luck. sleep deprived From: " Amy Fox " <foxpro@...> Hello! HeLp Me! (3 1/2 years old) is driving us crazy. She is getting up in the middle of the night claiming she is hungry. I feed her crackers (saltines). Well, lastnight she was awake in her room until almost 10:30 p.m. and then I heard her cry out at 1 a.m. Then she got us up 3:30 a.m. She claimed she was hungry. So, she only 2 saltines and then she wanted to read books in our bed because she wasn't tired. She didn't go back to bed until close to 5 a.m. *aaahhh* Which wouldn't be so bad if she was an only child. But I had my babies in 34 months (with her being the oldest). So, here I sit tired at 8 a.m. while still sleeps. What do I do? She takes an afternoon rest (sometimes she falls asleep) everyday when her siblings do. I NEED that time by myself each day to recupporate. She basically refuses to eat dinner but is hungry before bed. So, lastnight I bad sure to feed her some oatmeal, then cheerios and then bread with butter. When we shut her bedroom door she cried she was hungry again. Anyone deal with this before? I don't know if she is really hungry or just wanting to get out of bed! She is small for her age (weighs 26 pounds). Any suggestions?????????????? Someone told me that maybe she is having a burning sensation (like when you have an ulcer) and she is mistaking that for hunger. ~Amy P.S. she takes MTX and we just took her off of naproxen to see if that helps with the stomach pain. Mother to 3 1/2 years old (poly-jra) Mother to Andy 2 years old Mother to Maddie 8 months old ---------------------------------------------------------------------------- Please click above to support our sponsor ---------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 You are probably right (no nap). I didn't realize you had a son. My little Andy will have someone to play with at the JRA get together In March. We sent our invite back today. I don't know what there is to do in Portland so I said, the zoo, Omsi or Chuck-e-cheeses (for fun places to get together). I don't remember them doing this last year. ~Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 In a message dated 1/27/00 3:58:51 PM Eastern Standard Time, shancna@... writes: << What we did I am sure a lot of people would disagree with is we put a toddler bed in our room after a while she felt better (safer to I think) and we finally got some sleep >> I don't disagree at all. Tally still sleeps with me even though he is 5. His 5th birthday was going to be the big day when he was suppose to finally sleep by himself but I decided that the stress of the disease was enough for him to handle. He sleeps good now and when he cries out in the middle of the night, I'm close by to hear him and cuddle and kiss him back to sleep. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 well I must say now I feel better to know that I am not the only one who still has my almost 4 year old child in the room with us when I ever tell people that we went as far as to put a bed in there for her well you can just imagine ha ha well have a good one >From: Ajaomom@... >Reply- onelist > onelist >Subject: Re: sleep deprived >Date: Thu, 27 Jan 2000 21:56:39 EST >MIME-Version: 1.0 >Received: from [208.48.218.21] by hotmail.com (3.2) with ESMTP id >MHotMailBA5A506C00ADD82197B1D030DA156C3293; Thu Jan 27 18:58:20 2000 >Received: from [10.1.10.37] by ch. with NNFMP; 28 Jan 2000 >02:56:46 -0000 >Received: (qmail 6068 invoked from network); 28 Jan 2000 02:56:44 -0000 >Received: from unknown (10.1.10.26) by 10.1.10.37 with QMQP; 28 Jan 2000 >02:56:44 -0000 >Received: from unknown (HELO imo15.mx.aol.com) (152.163.225.5) by >mta1.onelist.com with SMTP; 28 Jan 2000 02:56:44 -0000 >Received: from Ajaomom@... by imo15.mx.aol.com (mail_out_v24.6.) id >h.5f.c0c89d (4197) for < onelist>; Thu, 27 Jan 2000 21:56:39 >-0500 (EST) >From sentto-80038-2882-shancna Thu Jan 27 19:02:14 2000 >X-eGroups-Return: sentto-80038-2882-shancna=hotmail.comreturns (DOT) onelist.com >Message-ID: <5f.c0c89d.25c25f67@...> >X-Mailer: Windows AOL sub 45 >Mailing-List: list onelist; contact -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Ajaomom@... > >Okay well I am next in line to confess, that holly is still in our room and >she turned 6 in December. She wakes many, many times in the night and it is >just easier on all of us if she is in there. Although it has been stressful >at the same time, as there is not cuddle time for hubby and I with her in >the >middle, lol. So we finally have put a cough in our room and she can sleep >on >that for a while, I think she likes our waterbed, she seems to be most >comfortable there. TTYL n > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Okay well I am next in line to confess, that holly is still in our room and she turned 6 in December. She wakes many, many times in the night and it is just easier on all of us if she is in there. Although it has been stressful at the same time, as there is not cuddle time for hubby and I with her in the middle, lol. So we finally have put a cough in our room and she can sleep on that for a while, I think she likes our waterbed, she seems to be most comfortable there. TTYL n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hi, Sounds like a good solution to me. In time, will probably get tired of the sleeping arrangements and want her own space. Hopefully, before it gets too hard on you and your husband. At least you're all able to get better rest. Take care, Georgina SHANNON MARTINO wrote: > Hello , > All I can say is that I can hear your pain when was real sick > it was the worst year of or lives for maney reasons lack of sleep being one > of them she was up at least three times a night and my youngest was only 6 > months old so between the 2 of them my husband and I were up at least 5 > times a night we were the walking dead > What we did I am sure a lot of > people would disagree with is we put a toddler bed in our room after a while > she felt better (safer to I think) and we finally got some sleep ,the down > side to that is that she is still there and she nore my husband have any > planes any time soon of changing these arrangments > but I guess well all > get sleep :-) good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 sleep deprived From: " Amy Fox " <foxpro@...> Hello! HeLp Me! (3 1/2 years old) is driving us crazy. She is getting up in the middle of the night claiming she is hungry. I feed her crackers (saltines). Well, lastnight she was awake in her room until almost 10:30 p.m. and then I heard her cry out at 1 a.m. Then she got us up 3:30 a.m. She claimed she was hungry. So, she only 2 saltines and then she wanted to read books in our bed because she wasn't tired. She didn't go back to bed until close to 5 a.m. *aaahhh* Which wouldn't be so bad if she was an only child. But I had my babies in 34 months (with her being the oldest). So, here I sit tired at 8 a.m. while still sleeps. What do I do? She takes an afternoon rest (sometimes she falls asleep) everyday when her siblings do. I NEED that time by myself each day to recupporate. She basically refuses to eat dinner but is hungry before bed. So, lastnight I bad sure to feed her some oatmeal, then cheerios and then bread with butter. When we shut her bedroom door she cried she was hungry again. Anyone deal with this before? I don't know if she is really hungry or just wanting to get out of bed! She is small for her age (weighs 26 pounds). Any suggestions?????????????? Someone told me that maybe she is having a burning sensation (like when you have an ulcer) and she is mistaking that for hunger. ~Amy P.S. she takes MTX and we just took her off of naproxen to see if that helps with the stomach pain. Mother to 3 1/2 years old (poly-jra) Mother to Andy 2 years old Mother to Maddie 8 months old Amy: Talk with your MD first, but you could try giving her over the counter pepcid or zantac twice a day in case it is the naprosyn causing the prob. Tracey ------------------------------------------------------------------------------ Please click above to support our sponsor ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 yes, as soon as tristan was taken off prednisone, he started eating much better. being taken off the ibuprofen could have something to do with it also. his nurse called me friday, as they had his lab results back and he is no longer anemic! i guess all the hard work has paid off. i started feeding him WHENEVER he wanted food, whether it was 6pm, 6am or any where in between. also, i put him on a vitamin with extra iron. thursaday he ate all day, and my kiddo eats healthy! he wanted salad, fruits, veggies, crackers, bread, etc and still at 10 pm he wanted a steak! so he got that too. haha well i hope everyone else is doing well. take care cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 Hi Cheri, Wow! That's amazing! When Tristan stopped taking prednsione, his appetite came back?!? Prednisone makes my son ravenous! At least when we raise his dose. Once he gets settled and adjusts to a certain dose, he's okay again but whenever it's raised, he starts eating like a madman Take care, Georgina Cheri97706@... wrote: > when tristan was taken off his prednisone and ibuprofen his appetite came > back full force. he is constantly eating. is your daughter taking prednisone? > that could be the cause of insomnia. my son stays up late too, i just put in > a movie while we snuggle up on the couch and ill fall asleep with him next to > me. by the time winnie the pooh is over, hes asleep too and if i happen to > wake up i will move us to our rooms. my 7 year old gets jealous and its been > difficult explaining to her why her little brother gets certain treatment. i > told her if we didnt give in a little bit he'd drive us all crazy. haha she > is a great kid though and is very understanding. cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 Quite a bit of confessions on the sleep deprived topic! Elliot awakes very frequently in the middle of the night. But we don't let him sleep in our bed. I probably would have caved several years ago with that, but Rena is very strict about that with the kids. However, Elliot will come trapsing into our room at any hour of the night with no apparent reason, while our older son usually has a pretty good reason if he comes in. So we don't get the best nights of sleep, and I see from the list that we're not alone. Charlie _______________________________________________________ Get 100% FREE Internet Access powered by Excite Visit http://freeworld.excite.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2000 Report Share Posted February 2, 2000 Hi Cheri, Great news, about the recent blood work. Anemia has been a recurring problem for Josh too but his last labs showed some improvement. Sounds like Tristan has a great appetite these days Take care, Georgina Cheri97706@... wrote: > yes, as soon as tristan was taken off prednisone, he started eating much > better. being taken off the ibuprofen could have something to do with it > also. his nurse called me friday, as they had his lab results back and he is > no longer anemic! i guess all the hard work has paid off. i started > feeding him WHENEVER he wanted food, whether it was 6pm, 6am or any where in > between. also, i put him on a vitamin with extra iron. thursaday he ate all > day, and my kiddo eats healthy! he wanted salad, fruits, veggies, crackers, > bread, etc and still at 10 pm he wanted a steak! so he got that too. haha > well i hope everyone else is doing well. take care cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Ann- I don't think there is anything wrong with suggestions that have helped...whether someone sells it or not as long as one is not 'recruiting'. I offer products too, which some you can purchase @ your health food stores. I am doing this with the intent of helping people attain better health as I have. I lived the hell of lyme since 1996 and today am FREE of it!!! My husband has nearly died of this, all 6 of my kids were very ill. This is a support group....sharing info, support, anything to get us through this hell. I have tremendous knowledge with lyme and love sharing what I know. sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Pleaseeeeeee tell me how you get a good nights sleep...I was diagnoised about a year and a half ago with RA, OA, and fibroy.. and I've been sleep deprived for the past year really bad..I'm going around in a fog most of the time...I take 2 gravol tablets and .5mg of an ativan each night...it knocks me out but when i wake up I feel exhausted. I drink one cup of coffee and that's early morning..I do notice when I'm too fatigued to make a decent meal and just pick at whatever's quick, I do feel worse the next day..so, i'm sure what you eat and drink does make a difference to most people. patty > I have had RA for 13 yrs and the caffeine does not affect my RA. > I drink two or three cups in the morning, soda & Ice tea at lunch and on cup > of coffee before I go to bed. > it does not bother me at all and I do sleep good at night. > Take care. > Lucy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hi Folks, Haven't been on recently but feel compelled to opinionate and give a brief update. RE/ Sleep deprived: I too suffer from same. I take 2 or 3 Trazadone and a Vicadin or two and get 4 to 5 hours. RE/ Fatigue: Methotrexate can't make me much more tired than I am now. I hurt 24/7 and it makes me so tired I could spit. My Dr. has consulted with 2 RA's and is finally putting me on 10 mg Metho, 200 mg Plaquinil and (can't remember dosage) Prednasone. I do have an appointment with RA in late August. There are only 3 RA's in Anchorage, Ak. One will not take VA patients, one is the the Ak Native Med. Ctr. and the other will see me in August!!!! One of my daughters has been doing some stretching excersises with me. Sometimes I feel it helps and other times it makes me hurt. No happy medium. I am sooooo loking forward to some relief with the prednasone and then the Methotrexate and Plaquinil. Thank you all for contributing to this group. It has been a great help to me. At times I've been so depressed I've wanted to go postal or suicidal and your comments give me hope and a sense of direction. Thank you all and God Bless each of you. Jay in Alaska > > I have had RA for 13 yrs and the caffeine does not affect my RA. > > I drink two or three cups in the morning, soda & Ice tea at lunch > and on cup > > of coffee before I go to bed. > > it does not bother me at all and I do sleep good at night. > > Take care. > > Lucy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Jay, Prednisone usually acts pretty quick (a day or two) while the other RA medicines are notoriously slow acting, requiring several weeks to months to become effective. Also starting dosages are usually low to check for any bad side effects and then increased to find an effective level. Your treatment sounds good to me but if you continue to have problems you may be able to get to the rheumatologist earlier if you ask your primary physician to call for you. Good luck and God bless. ----- Original Message ----- From: Jay Bishop Rheumatoid Arthritis Sent: Friday, May 16, 2003 11:29 PM Subject: Re: sleep deprived Hi Folks,Haven't been on recently but feel compelled to opinionate and give a brief update.RE/ Sleep deprived: I too suffer from same. I take 2 or 3 Trazadone and a Vicadin or two and get 4 to 5 hours.RE/ Fatigue: Methotrexate can't make me much more tired than I am now. I hurt 24/7 and it makes me so tired I could spit.My Dr. has consulted with 2 RA's and is finally putting me on 10 mg Metho, 200 mg Plaquinil and (can't remember dosage) Prednasone.I do have an appointment with RA in late August. There are only 3 RA's in Anchorage, Ak. One will not take VA patients, one is the the Ak Native Med. Ctr. and the other will see me in August!!!!One of my daughters has been doing some stretching excersises with me. Sometimes I feel it helps and other times it makes me hurt. No happy medium.I am sooooo loking forward to some relief with the prednasone and then the Methotrexate and Plaquinil.Thank you all for contributing to this group. It has been a great help to me. At times I've been so depressed I've wanted to go postal or suicidal and your comments give me hope and a sense of direction.Thank you all and God Bless each of you.Jay in Alaska> > I have had RA for 13 yrs and the caffeine does not affect my RA.> > I drink two or three cups in the morning, soda & Ice tea at lunch > and on cup > > of coffee before I go to bed.> > it does not bother me at all and I do sleep good at night.> > Take care.> > Lucy> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Harold, From my research you are right concerning the drugs. Unfortunatley there is no way I can see the rheumy prior unless there is a cancellation with enough advance time that they can call me and I can make the 120 mile drive to Anchorage. My Dr called and consulted with him and he gave my Dr a date in Sep.,!!!! My Dr's mother had RA and his brother has RA sohe is familiar with the disease. He also has a friend Dr that is a rheumy and he consulted with him. It is between the to consults that my Dr came up with which drugs and the dosages to start me out with. I had a bad night last night and today is worse than most days. I should be receiving my drugs the first part of the week and look forward to the prednasone giving relief. Thanks for your involement in this group. You appear to have done significant research and first hand experience. You are a wealth of knowledge and give hope and inspiration. God Bless You, Jay > > > I have had RA for 13 yrs and the caffeine does not affect my RA. > > > I drink two or three cups in the morning, soda & Ice tea at lunch > > and on cup > > > of coffee before I go to bed. > > > it does not bother me at all and I do sleep good at night. > > > Take care. > > > Lucy > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Jay, 120 miles to a rheumatologist sounds like a long way. I looked in the internet and found a document, Alaska Arthritis and Osteoporosis Plan, June 2002 (http://www.epi.hss.state.ak.us/programs/chronic/arthritis/planmar02.pdf ) that said that there are only the three RDs you mentioned in the entire state. I guess you're pretty close to them compared to a lot of other Alaskans. August is a long time off so I hope things get better soon. It sounds like the doctor you're working with is a good substitute for an RD until you can get to a real one. Just where in Alaska do you live? To the south is the Kenai peninsula with Seward, Soldotna, and fishing on the Russian River; to the north is Talketna and fishing on a river near there (but past the Deshka which is my favorite fishing); and to the east is Copper River and Valdez - just a sightseeing trip for me. To the west I don't think there are any roads. Alaska is beautiful in the summer and the land of the midnight sun, but I haven't been there in the winter to see the land of the noon moon. On this board I think in Virginia is the best source of good information, but she hasn't been posting much lately. I try to do what I can. If you'd like to communicate with me by e-mail my address is hvantuyl@.... Good luck and God bless. ----- Original Message ----- From: Jay Bishop Rheumatoid Arthritis Sent: Saturday, May 17, 2003 4:29 PM Subject: Re: sleep deprived Harold,From my research you are right concerning the drugs. Unfortunatley there is no way I can see the rheumy prior unless there is a cancellation with enough advance time that they can call me and I can make the 120 mile drive to Anchorage. My Dr called and consulted with him and he gave my Dr a date in Sep.,!!!! My Dr's mother had RA and his brother has RA sohe is familiar with the disease. He also has a friend Dr that is a rheumy and he consulted with him. It is between the to consults that my Dr came up with which drugs and the dosages to start me out with.I had a bad night last night and today is worse than most days. I should be receiving my drugs the first part of the week and look forward to the prednasone giving relief.Thanks for your involement in this group. You appear to have done significant research and first hand experience. You are a wealth of knowledge and give hope and inspiration.God Bless You,Jay> > > I have had RA for 13 yrs and the caffeine does not affect my RA.> > > I drink two or three cups in the morning, soda & Ice tea at lunch > > and on cup > > > of coffee before I go to bed.> > > it does not bother me at all and I do sleep good at night.> > > Take care.> > > Lucy> > > > > > > > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Harold, I live in Seward on the east side of the Kenai Peninsula and a 120 mile drive to Anchorage. Your geography is correct. There is excellent fishing on most of the creeks in the Susitna drainage. I like the Deshka, Alaxander and the others around there. Beautiful country too. My disease has continued to progress into my elbows today. I think it is working its way into my neck and hips. That fundementally leaves me with NO joint in my body uneffected!! My Dr ordered the drugs for me Fri and I should received them Tues or Wed. Next time you visit Alaska you'll have to give me a heads up and we can get together. Best wishes and God Bless, Jay > > > > > > Pleaseeeeeee tell me how you get a good nights sleep...I was > > > diagnoised about a year and a half ago with RA, OA, and > fibroy.. > > and > > > I've been sleep deprived for the past year really bad..I'm > going > > > around in a fog most of the time...I take 2 gravol tablets > and .5mg > > > of an ativan each night...it knocks me out but when i wake up I > > feel > > > exhausted. I drink one cup of coffee and that's early > morning..I > > do > > > notice when I'm too fatigued to make a decent meal and just > pick at > > > whatever's quick, I do feel worse the next day..so, i'm sure > what > > you > > > eat and drink does make a difference to most people. > > > > > > patty > > > > > > > > > > > > > > > --- In Rheumatoid Arthritis , lucyoo1@a... wrote: > > > > I have had RA for 13 yrs and the caffeine does not affect my > RA. > > > > I drink two or three cups in the morning, soda & Ice tea at > lunch > > > and on cup > > > > of coffee before I go to bed. > > > > it does not bother me at all and I do sleep good at night. > > > > Take care. > > > > Lucy > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Thanks, Grandpavan. You say such nice things! Sorry I've been MIA. My work was really busy. Jay: My rheumy is in Washington, DC, which is 72 miles from where I live (and about 2.5 hours with traffic). I've been on Prednisone & Methotrexate since I got diagnosed in 1999. Remicade has provided me with the best results. Prednisone works well but your body becomes dependent quickly. The major side effects I've had are: weight gain, nightmares, and bizarre food craving. It took me about a week for the Prednisone to fully kick in & 2 months for the metho. Unfortunately, I don't have any suggestions for sleeping. When my arthritis first started, I couldn't get any sleep. Since being on Remicade and my symptoms are (mostly) under control, I sleep okay. What helps me is being on a schedule. Each night (usually on weekends too) I go to bed at 10pm and get up around 7am. I usually wake up 3-5 times a night but I can feel back asleep fairly quickly. Sorry I can't help more. Take care, in VA >On this board I think in Virginia is the best source of good information, but she hasn't been posting much lately. I try to do what I can. .. Protect your PC - Click here for McAfee.com VirusScan Online Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 You might try t3-fp1 bipolar for difficulty staying asleep. St. Lee ---- Diane Curriden <new2neuro@...> wrote: > I have a client, 47yo male, with chronic sleep > difficulties. Falls asleep no problem, but wakes soon > after and fights sleep the rest of the night. His > personality before this began (just over a year ago) > was a total optimist. No complaints, healthy, happy, > nice family, avid exerciser... > I did a brain map, but was wondering if I should add > in some optional sites. If so, which ones? > Also, have people had much luck with sleep issues? I > have already tried C4 SMR up, Pz alpha up, F3 beta up, > along with F4 alpha up, as well as probably a couple > of other things...I don't have my notes with me now. > I have had great success in making his days better, > but nothing has helped his sleep. Are there any other > things to look for or try? > Thanks in advance for any helpful hints. > Diane Curriden > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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