Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Hi there Welcome to the group. I have a 6 yr old daughter who is also the first in our family to have BPES. She has had 3 operations on her eyelids, the first was done when she was 2 yrs old and the last when she was 4 yrs. Her cosmetic result is fabulous. She has been wearing glasses for 3 yrs now and her vision is still checked regularly. The diagnosis of BPES is usually a clinical one and a genetic test is not always necessary to confirm it. Enjoy your baby, he is going to be fine. Regards Colchester (UK) > > Hi, > I have a 10 month old boy, we're waiting on an appointment with a geneticist to have his diagnosis confirmed. My son has all the main symptoms of BPES. My wonderful pediatrician just came back with the diagnosis this week. We have no family history of BPES. I was wondering if anyone could tell me how common that is. We've been told that his heart sounds fine. We're just wondering what to expect from here out. > I'd love to hear back from someone, > Thanks. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.