Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi, I have a 10 month old boy, we're waiting on an appointment with a geneticist to have his diagnosis confirmed. My son has all the main symptoms of BPES. My wonderful pediatrician just came back with the diagnosis this week. We have no family history of BPES. I was wondering if anyone could tell me how common that is. We've been told that his heart sounds fine. We're just wondering what to expect from here out. I'd love to hear back from someone, Thanks. Quote Link to comment Share on other sites More sharing options...
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