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Re: Digest Number 292

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My Dr. put down on the diagnosis that I have PA and RA, and one time he just

put that I have inflamatory arthritis. I've been taking Enbrel since January

and can't tell you enough how much it has changed my life. Yes I still have

bad days often, but it's not like it was, it use to be everyday!

My Dr. said I tested a VERY minimal amt for RA, but I still tested for it, so

presto, I'm on Enbrel and loving it!

le

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Angera-

Last year I took the flu shot and didn't have any problems. I have PA and

high blood pressure. I didn't get the flu either.

I just took my flu shot yesterday, and so far so good, haven't had any

problems. Of course I know the flu shot is different from year to year so

I'm kinda worried now. How long did it take you before you started feeling

bad?

Hope your feeling better today! My fingers are crossed!

le

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-

I had the same problem. My jaw has been killing me for a while. My Rheumy

sent me to an oral surgeon. He in turn sent me to a Dentist. The Dentist

turned out not be on my insurance, which my oral surgeon said he was. I was

referred to the Dentist the same day so I couldn't check on it myself.

The Dentist wanted to make a hard splint for me to wear all day everyday for

3 months. The only time I could take it out was to eat and brush my teeth.

Well the splint would have cost over $300 so I didn't do it. But the Dr.

also told me I would have to have a surgery on my jaw if I didn't get the

hard splint or if I got the hard splint and it didn't help.

It's been a few months now and my jaw aches, but I haven't gotten the hard

splint and plan to avoid the surgery at ALL COSTS! :-)

le

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Annette...thanks so much for the welcome, and the good words on the

divorce. I hope it gets behind me soon too...

Angera...I get a flu shot every year...and thoroughly believe in them.

Have NOT had the flu or a cold during the winter since I have been

having them. SO sorry you were sick, maybe you are allergic to something

in the shot????? I went to get mine and they didn't have the " stuff "

yet...geesh.

Lyn

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~

Fibroland: A free newsletter for those with Fibromyalgia/CFS

/subscribe.cgi/Fibroland

~*~

Rheumathritis: a rheumatoid arthritis /autoimmune disease support group

that cares AND informs.

/subscribe.cgi/rheumathritis

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In a message dated 10/2/99 1:02:31 PM Pacific Daylight Time, DaniGran@...

writes:

<< My Dr. put down on the diagnosis that I have PA and RA, >>

le..same here. I had indicators of RA and PA so my doctor made the

diagnosis of both. I have had 2 other doctors agree. I was even told it was

not uncommon to have more than one immune system disorder. This allowed me

to take the Enbrel beginning last March...but I have very recently stopped

because I am one of the ones they categorize as a " non-responder " . Many

people like you have had great results...how wonderful for you. I hope your

improvement is sustained ...good luck.

Annette :)))

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  • 3 months later...

In a message dated 01/18/2000 5:37:38 AM Eastern Standard Time,

onelist writes:

<< Subject: Aspergers

Hi.

I am new to this list. I joined because I teach fourth grade and I

believe that perhaps one boy in the other 4th grade (he comes to me for

math and social studies) has Aspergers. I have done some reading on

this and feel as though the symptoms match his. Can anyone on this list

give me more info - tell me about their own experiences. Is there any

medication for Aspergers?

He loves coming over for math by the way, and is very bright.

Thanks in advance,

Kim >>

Kim:

I just love to hear that a teacher recognizes these things in a child! It's

so tough to diagnose Asperger's and most people completely miss the sometimes

subtle signs!

I just love the information I have found from the following link. When you

go to the website, just scroll down to Asperger's sites and I'm certain

you'll find the information you need! Good luck! (I have a new respect for

teachers since I've been working in the schools as a special ed aid!)

<A HREF= " http://www.isn.net/~jypsy/autilink.htm " >jypsy's links- HUNDREDS of

Autism, Aspergers, PDD, etc</A>

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,

Thanks. I am doing everything I can to help this child. Any advice is

helpful.

Kim

Fullarmor@... wrote:

>

> From: Fullarmor@...

>

> In a message dated 01/18/2000 5:37:38 AM Eastern Standard Time,

> onelist writes:

>

> << Subject: Aspergers

>

> Hi.

>

> I am new to this list. I joined because I teach fourth grade and I

> believe that perhaps one boy in the other 4th grade (he comes to me for

> math and social studies) has Aspergers. I have done some reading on

> this and feel as though the symptoms match his. Can anyone on this list

> give me more info - tell me about their own experiences. Is there any

> medication for Aspergers?

>

> He loves coming over for math by the way, and is very bright.

>

> Thanks in advance,

>

> Kim >>

>

> Kim:

> I just love to hear that a teacher recognizes these things in a child! It's

> so tough to diagnose Asperger's and most people completely miss the sometimes

> subtle signs!

> I just love the information I have found from the following link. When you

> go to the website, just scroll down to Asperger's sites and I'm certain

> you'll find the information you need! Good luck! (I have a new respect for

> teachers since I've been working in the schools as a special ed aid!)

> <A HREF= " http://www.isn.net/~jypsy/autilink.htm " >jypsy's links- HUNDREDS of

> Autism, Aspergers, PDD, etc</A>

>

>

> ---------------------------

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  • 3 weeks later...

> Date: 4 Feb 00 01:10:58 CST

> From: Tad Stittsworth <tadst@...>

>Subject: Re: Making a Zapper

>

>Be aware that some editions of Hulda 's book, " Cure For All

> Diseases " have an error in the schematic for make the Zapper.

>

>Probably should do some research first before making the Zapper.

>Wrong frequencies going through your body are more harmful than

>frequencies.

>

>Tad

OK, so what is the error in the schematic? Where is the correction

published? How do I know if I have the right or wrong version? I need more

information, please.

Patty

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  • 2 months later...
  • 3 months later...
Guest guest

Is this paper something that can be posted to the list.

Re: [ ] Digest Number 292

>Me too. Thanks.

>mt

>

>> Bernie,

>> I, too, would love a copy of your paper. Thanks.

>> Beth C.

>>

>>

>>

>>

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Guest guest

You might try having the psychiatrist say he needs one on one, and the best way

to provide that would be having a therapeutic aide teach him in the home. I

originally asked for a TA, thinking that's what I needed. But I was looking for

someone to help me with the behaviors, not teach him, which is what a TA does.

I got the intensive home therapy instead.

Loriann

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Guest guest

Loriann,

Thank you for info. Josiah did have a psychiatrist when we got him

diagnosed. His IQ, (according to the tests) was at 45. It seems like so

much to get ready for before the school year starts, so, I must get on it

right away. Maybe I can get something that permit us to keep him at

home, since I can't stand the Special Ed. teacher (if that's what you

would call her) that is a head of the program where he went last year.

She spends absolutely no time with him and the associates keep quitting,

so, she has to keep training them when she could be spending her time

with Josiah. If she doesn't want to do it bad enough, I wouldn't want to

make her, then, she would take it out on Josiah and I DON'T want that.

You gave lots of good ideas to get me going.

Lesa

________________________________________________________________

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  • 1 month later...

Hi Connie,

One more thing you might try and do, ask the drug companies

who make the drugs you wouldn't believe how much they do give to people who

just can't afford it, I got my combo feel for 6 months. The only bad thing is

they want all your information, but both my husband and I work, and I was

approved. I think you would still need a doctor to tell them how much pain

meds you would need, I am sure they will help. Just have to find out the

makers Of the medicine and call. Most doctors do know how to get in touch

with them. If all else fails go to your local clicic. There is no reason in

this time and age that any one should have to suffer in pain. Let me know how

you make out.

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Hi I have an e mail if you want it, to be a volunteer

to hook people up with the Manufacturers of the drugs.

I can get stuff through that probably. Also Schering

Plough I think it is their name will furnish the Combo

through Commitment To Care. But, what I need is the

Labs and a DR to follow me...I have personally thought

about doing the program to help others in this area.

I have 2 places so far that I can help people get the

drugs they need (Catholic Church outreach program and

Life Changers). It goes by your income and also it

handles 3rd party scripts. I am going to see these 2

places Friday, in the meantime I am wrestling with my

printer so I can print out some application forms and

info to take with me.............Connie

--- CCampb3234@... wrote:

> Hi Connie,

> One more thing you might try and

> do, ask the drug companies

> who make the drugs you wouldn't believe how much

> they do give to people who

> just can't afford it, I got my combo feel for 6

> months. The only bad thing is

> they want all your information, but both my husband

> and I work, and I was

> approved. I think you would still need a doctor to

> tell them how much pain

> meds you would need, I am sure they will help. Just

> have to find out the

> makers Of the medicine and call. Most doctors do

> know how to get in touch

> with them. If all else fails go to your local

> clicic. There is no reason in

> this time and age that any one should have to suffer

> in pain. Let me know how

> you make out.

>

>

>

>

>

__________________________________________________

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  • 5 months later...

I need to " unsubscribe " from the group for now. Please send me information

to do this. Thanks! ~ Bonner

Endos Pushing for RAI/Surgery

>

>

> It seems to me that there is a common theme that our Endos are using...

" get

> RAI/Surgery!!! " .

>

> Well, my endo has been trying to convince me to get RAI/Surgery for over 2

> years. I finally told him last Monday that it is all right for him to keep

> remaining me of the possible consequences if I remain on PTU and Synthroid

> for a prolong period of time, and it is all right to offer me RAI/Surgery

> everytime he seems me.

>

> I just told him that I have been doing a lot of research and that I feel

> fine. Therefore, I am not going to get RAI or Surgery. I also asked him to

> keep monitoring me to make sure everything is all right. Should the time

> come for me to " HAVE " to turn to RAI/Surgery, I will make that decision.

>

> My endo mentioned that it is so much " easier " to control my thyroid if I

go

> Hypo and I will be on Synthroid the rest of my life. I reminded him that

he

> is monitoring me regardless whether I am hyper or hypo, and I am on

> medication (PTU and Synthroid) everyday anyway. In his perspective, it

might

> be easier " for him " . His nurse practitioner agreed with my decision. She

> also commented that my endo always pushes for RAI/Surgery. It seems to me

> that these endos must win some prizes the more thyroids they kill.

>

> I am not living a life to make someone else's life easier. I am taking

> control over my life, my health and my decision making process.

>

> So, don't let someone convince you of doing something until you, yourself,

> know that it is the right choice for you. Once your thyroid is gone, it's

> gone forever. Carefully evaluate your situation and alternatives, and make

a

> decision that you are NOT going to regret.

>

> I hope this helps.

>

> Marinda

> As of 02.10.2001: 44 weeks 'til GRADUATION!!!

> Between Tomorrow's Dreams And Yesterday's Regrets, Are Today's

> Opportunities.

>

>

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  • 6 months later...

>

>ALL Dr. Walford does to address this issue is say on page 80 " You should

>lose weight slowly enough for the released toxins to be cleared without

>getting too high. " He says " Any level is too high... " He admits the toxins

>and pesticides will stay elevated for a year or more (after the two years in

>Biosphere2), yet we do NOT have the data which shows how long this could be!

>This is important to note.

>

>Do you? Dr. W's book doesn't show that data.

>

>So when you quote how fast Dr. Walford states you should lose weight, you

>need to consider the ENTIRE CONTEXT he suggests that within. He was

>addressing the 1-2 year weight loss in the context of the impatient

>attitudes of Americans wanting to lose weight " now " -and- metabolism

>adjustment.

NOwhere in that reference does it say that.

>

>He was NOT addressing the problem of toxin and pesticide release from your

>fat stores when you lose weight. That can NOT be done within 1-2 years. Look

>at the graph on page 79.

>

>Five to ten years of weight loss may not be such a bad idea after all. When

>you consider the toxin and pesticide issue, it looks like a good idea to me.

>Dr. Walford's book is not in conflict with this possibility. In fact, I

>believe he provides evidence for slower weight loss well beyond 2 years.

>

>Best, Dean M.

>

>Mental Health = EPA + DHA + O6 calories @ 2-3% of Daily Caloric Intake

>( p.s. alternative " equations " are always welcomed " : )

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  • 1 year later...

Elma, Both Jian and I will be coming....See You!

404/207/204  Dr. Rumbaut  2/27/01

Life is a Learning Curve

              · ´¨¨)) -:¦:-

               ¸.·´ .·´¨¨))

             ((¸¸.·´ ..·´ -:¦:-  

             -:¦:- ((¸¸.·´*

                         * *

               (º·.¸(¨*·.¸ ¸.·*¨)¸.·º)

            «.·°· *3rd X the Charm*.·°·.»

               (¸.·º(¸.·¨* *¨·.¸)º·.¸)

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  • 5 months later...
Guest guest

In a message dated 6/14/03 4:38:22 AM Eastern Daylight Time,

writes:

> Full Moon in Capricorn and Sun in Gemini to acknowledge

> also, which can only add to the celebration

And with Saturn entering Cancer, which doubles the effects of

Capricorn/Saturn, and including Capricorns polar oppostie (shadow)

Sensuality

Wealth

Prosperity

applied in a practical and goal oriented manner facilitates our work

manifesting brilliant results.

gail

Gail , Fragranceur

<A HREF= " www.gailadrian.com " >www.gailadrian.com</A>

(201) 444-3628 <A

HREF= " mailto:scentart@... " >scentart@...</A>

Perfumes-Beauty Treatments-Depth Tarot Readings

Treatments and treasures for your body mind and spirit

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  • 2 years later...
Guest guest

Dear Angel,

If you do a google on woodash lye water you would be overwhelmed.

Throughout the centuries, each culture has used lye water in many ways. The

mexicans and indians of central america have used it to soak corn for

hominy. . . . it is used in tanning leathers. . . used in soap making. . .

..dye setting. . . .I think the chinese use it for cleaning and soaking

certain legumes and veggies. . . It is always diluted when used for

cleaning. I use it in a spray bottle and wash my hands after using it. It

is caustic, so one is careful about getting it on the skin or in the eyes

full-strength. Yes, it cuts grease, and rinses off very easily.

Go to Dom's site to his cleaning suggestions and he has all you need to know

for this simple application of washing fermentation supplies.

Norma Pirie

________________________________________________________________________

Message: 10

Date: Sun, 3 Jul 2005 20:26:06 -0700

From: " angel nest " <angelznest@...>

Subject: Subject: Re: soap residue is bacteriocidal

hello norma,

what is lye water used for?

i mean other than washing stuff?

i mean, why can we find it in the chinese stores? what do the chinese use

it for?

is it as good as soap?

does it dissolve grease?

sorry to bombard you with these q., i'm very interested...

thanks,

angel

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