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48hrs to infertility

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Hi all,

I am writing to the group tonight as I wait for the results of my

infertility evaluation which was sent this morning. Like some women

who have posted to this list, most days I forget that I have BPES.

It actually doesn't impact my life much at all. The 3 surgeries I

had as a kid are long forgotten. But at the same time, the impact it

had on my childhood and adolescence is still with everyday. As a

pediatrician specializing in adolescents, I think I partially chose

my current career because of my sensitivity to the challenges of body

image and growing up different. But interestingly, I rarely allow

myself to connect with those feelings as they are too painful to

remember on a daily basis.

Unlike the young girls with BPES today, we didn't have

cryopreservation of ovaries or early detection of POF when I was

younger. In fact, I was never even counseled on the fertility

implications of BPES. I learned about it when I started medical

school at age 24 at which point I was already not having periods

anymore. Little did I know at that time that my ovaries might have

been on the way out. No one ever offered reproductive endocrinology

evaluation, not even when I went to see my opthalmologist at age 22.

But like many young women with BPES, I also struggle with the

question of whether to knowingly have a child with BPES when it is

possible to choose an egg donor instead. Is it ethical to have a

child with a genetic condition when you could choose otherwise? On

the other hand, having BPES gave me so many gifts in terms of self-

reliance and enhanced sensitvity. Though I am pretty sure that my

FSH will be high and Type 1 BPES will be the answer, I have to

honestly say that part of me will be relieved. I am not sure I could

make the choice of whether to have a child with BPES or not.

Thanks for allowing me to rant - would be very interested to hear

from other women about their choice to have a child with BPES, or go

with egg donor - regardless of fertility issues.

Sincerely,

CBJ

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