RE: Speech Delay

[Guest guest]

Hello Rose, my 6 year old has a high palate and speech delays, pretty mild, getting speech at school, Since Bleph is a facial/cranial disorder I personally believe that the high palate may be another condition.

In a message dated 9/1/2008 4:19:34 P.M. Eastern Daylight Time, rosebann@... writes:

My 20 year old is in college now in Fresno, Ca. However, before she was offically diag. with Blephs, she was noted to be delayed in speech and language. She really did not put sentences together until around 4 although she understood what was told her. She had a high, narrow palate. I was wondering if this was also associated with Blephs, or is this another genetic,birth condition that is a sep. issue? Anyone care to Comment?

Rose B

[Guest guest]

My husband nor my 2 boys with BLEP had speech delays.

my 2nd grader has been an A student since Kindergarten and my 3 year old developed his speech at a very young age.

Ive nerver heard that speech delay was a syptom of BLEP I hope you get more responses so that you can get some insight.

Thanks for sharing

Michel

Phx AZ USA

S. Michel

blepharophimosis Speech Delay

My 20 year old is in college now in Fresno, Ca. However, before she was offically diag. with Blephs, she was noted to be delayed in speech and language. She really did not put sentences together until around 4 although she understood what was told her. She had a high, narrow palate. I was wondering if this was also associated with Blephs, or is this another genetic,birth condition that is a sep. issue? Anyone care to Comment?

Rose B

[Guest guest]

Very interesting. She did fine in school--some reading comprehension problems, but her speech is fine now. Thanks for your response.

Rose B

Re: blepharophimosis Speech Delay

Hello Rose, my 6 year old has a high palate and speech delays, pretty mild, getting speech at school, Since Bleph is a facial/cranial disorder I personally believe that the high palate may be another condition.

In a message dated 9/1/2008 4:19:34 P.M. Eastern Daylight Time, rosebannatt (DOT) net writes:

My 20 year old is in college now in Fresno, Ca. However, before she was offically diag. with Blephs, she was noted to be delayed in speech and language. She really did not put sentences together until around 4 although she understood what was told her. She had a high, narrow palate. I was wondering if this was also associated with Blephs, or is this another genetic,birth condition that is a sep. issue? Anyone care to Comment?

Rose B

[Guest guest]

Hello Rose, My Daughter is 5 nearly and has quite a servere

speech delay but they say its more phonic and she can understand age

appropriate, I was told at guys that a speech delay could be part of

this syndrome.

Thanks

>

> Hello Rose, my 6 year old has a high palate and speech delays,

pretty

> mild, getting speech at school, Since Bleph is a facial/cranial

disorder I

> personally believe that the high palate may be another condition.

>

>

> In a message dated 9/1/2008 4:19:34 P.M. Eastern Daylight Time,

> rosebann@... writes:

>

>

>

>

>

> My 20 year old is in college now in Fresno, Ca. However, before

she was

> offically diag. with Blephs, she was noted to be delayed in speech

and language.

> She really did not put sentences together until around 4 although

she

> understood what was told her. She had a high, narrow palate. I

was wondering if

> this was also associated with Blephs, or is this another

genetic,birth

> condition that is a sep. issue? Anyone care to Comment?

> Rose B

>

[Guest guest]

Our son now 37, has never had a speech delay, on the contrary sometimes

he talked the ears from our head (dutch expression when someone is a

rapid speaker) ;-)))

regards,

Dolph Heideman

-----

Original Message ----

From: Rose Bannholzer <rosebann@...>

blepharophimosis

Sent: Monday, September 1, 2008 9:46:59 AM

Subject: blepharophimosis Speech Delay

My 20 year old is in college now in Fresno, Ca. However, before

she was offically diag. with Blephs, she was noted to be delayed in

speech and language. She really did not put sentences together until

around 4 although she understood what was told her. She had a high,

narrow palate. I was wondering if this was also associated with

Blephs, or is this another genetic,birth condition that is a sep.

issue? Anyone care to Comment?

Rose B

No virus found in this incoming message.

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[Guest guest]

I too have never heard of a speech delay being part of BPES, actually I was told opposite saying above average intelligence was connected...my son never has had anything of the sort.Lynden's doctor says he has yet to come across a BPES person with anything neurological that seems to be related to BPES.., however the study is on going of course.. He specializes in BPES here in canada and actually has made it part of his university course curriculum to teach students about BPES ..... which i think is so neat!!I think its just one of those many other things the average person is born with... But this is just my Honest opinion onlyTonikka and LyndenEdmonton Albrerta CANADA On 1-Sep-08, at 6:38 PM, S. Michel wrote:My husband nor my 2 boys with BLEP had speech delays.  my 2nd grader has been an A student since Kindergarten and my 3 year old developed his speech at a very young age. Ive nerver heard that speech delay was a syptom of BLEP I hope you get more responses so that you can get some insight. Thanks for sharing  MichelPhx AZ USA  S. Michel blepharophimosis Speech DelayMy 20 year old is in college now in Fresno, Ca.  However, before she was offically diag. with Blephs, she was noted to be delayed in speech and language.  She really did not put sentences together until around 4 although she understood what was told her.  She had a high, narrow palate.  I was wondering if this was also associated with Blephs, or is this another genetic,birth condition that is a sep. issue?  Anyone care to Comment?Rose B

[Guest guest]

i have two kids with bpes. my daghter who is six now had ten words

at ten months. my son on the other hand is two and has recently

started speech therapy. he had alot of ear infections and fluid in

his ears which caused some hearing loss he now has tubes in and

seems to be improving everyday.i really don't think that bpes caused

his speech delay but i do think it helped the cause of the frequent

ear infections because his ear nose and throat is so small due to

bpes.

nina

mom to mallory & malachi

from the bahamas

>

> >

> > My husband nor my 2 boys with BLEP had speech delays.

> >

> > my 2nd grader has been an A student since Kindergarten and my

3

> > year old developed his speech at a very young age.

> >

> > Ive nerver heard that speech delay was a syptom of BLEP I hope

you

> > get more responses so that you can get some insight.

> >

> > Thanks for sharing

> >

> > Michel

> > Phx AZ USA

> >

> > S. Michel

> >

> >

> > blepharophimosis Speech Delay

> >

> >

> > My 20 year old is in college now in Fresno, Ca. However,

before

> > she was offically diag. with Blephs, she was noted to be delayed

in

> > speech and language. She really did not put sentences together

> > until around 4 although she understood what was told her. She

had

> > a high, narrow palate. I was wondering if this was also

associated

> > with Blephs, or is this another genetic,birth condition that is

a

> > sep. issue? Anyone care to Comment?

> > Rose B

> >

> >

> >

>

[Guest guest]

Hi Tonikka (and everyone),

Recently Hayden was diagnosed with a mild case of Cerebral Palsey (Spastic Diplegia) on top of the already diagnosed BPES.

Hayden was meeting all his physical developmental milestones till about age 2.5 when he began to walk on his toes because his leg muscles, especially his hamstrings, had become tight.

He also had a speech delay. He only said a few words by age 2. However, since he's started speech therapy I am happy to say that it is improving tremendously, he's 3 now and is speaking in broken sentences and most of what he says is clear.

When we saw a neurologist, (about 6 months ago), we received the tenative CP diagnosis, which we are still waiting for an MRI to confirm, it is scheduled for January. He is now in AFO's, Ankle Foot Orthotics, to help correct his walking and gait and physiotherapy is necessary. I would be very interested to find out more about any study connecting BPES with neurological disorders. We are still looking for answers to the CP question as Hayden's birth went wonderfully and he seemed fine for so long.

I'd love to hear more about a connection since it is hard to believe that these are two separate and unfortunate problems that have happened to the same sweet little guy.

Sheryl

(Hayden's Mom)

P.s. the bushy eyebrows emails are hilarious, I will have the wax-pot ready!

Sheryl

Burlington, ON

Canada

blepharophimosis From: lyndenhunter@...Date: Tue, 2 Sep 2008 07:40:33 -0600Subject: Re: blepharophimosis Speech Delay

I too have never heard of a speech delay being part of BPES, actually I was told opposite saying above average intelligence was connected... my son never has had anything of the sort.

Lynden's doctor says he has yet to come across a BPES person with anything neurological that seems to be related to BPES.., however the study is on going of course.. He specializes in BPES here in canada and actually has made it part of his university course curriculum to teach students about BPES ..... which i think is so neat!!

I think its just one of those many other things the average person is born with...

But this is just my Honest opinion only

Tonikka and Lynden

Edmonton Albrerta CANADA

On 1-Sep-08, at 6:38 PM, S. Michel wrote:

My husband nor my 2 boys with BLEP had speech delays.

my 2nd grader has been an A student since Kindergarten and my 3 year old developed his speech at a very young age.

Ive nerver heard that speech delay was a syptom of BLEP I hope you get more responses so that you can get some insight.

Thanks for sharing

Michel

Phx AZ USA

S. Michel

blepharophimosis Speech Delay

My 20 year old is in college now in Fresno, Ca. However, before she was offically diag. with Blephs, she was noted to be delayed in speech and language. She really did not put sentences together until around 4 although she understood what was told her. She had a high, narrow palate. I was wondering if this was also associated with Blephs, or is this another genetic,birth condition that is a sep. issue? Anyone care to Comment?

Rose B

[Guest guest]

Hi Sheryl,I have three boys 8,5,3. The oldest and the youngest have blep from there father. The only other medical condition they all have is Asthma and Eczyma (and bushy eyebrows lol cute). On another note my middle son that does not have blep was speech delayed....at 3 he barely started saying a few words... I was very concerned but immediately upon turning 5 he started speaking in full sentences. He started kindergaden and is doing great.Best Wishes and kisses to Hayden: Phoenix AZ Sent from my BlackBerry® smartphone with Nextel Direct ConnectFrom: Sheryl Kampen <sherylkampen@...>Date: Thu, 25 Sep 2008 23:56:43 -0400<blepharophimosis >Subject: RE: blepharophimosis Speech Delay Hi Tonikka (and everyone), Recently Hayden was diagnosed with a mild case of Cerebral Palsey (Spastic Diplegia) on top of the already diagnosed BPES. Hayden was meeting all his physical developmental milestones till about age 2.5 when he began to walk on his toes because his leg muscles, especially his hamstrings, had become tight. He also had a speech delay. He only said a few words by age 2. However, since he's started speech therapy I am happy to say that it is improving tremendously, he's 3 now and is speaking in broken sentences and most of what he says is clear. When we saw a neurologist, (about 6 months ago), we received the tenative CP diagnosis, which we are still waiting for an MRI to confirm, it is scheduled for January. He is now in AFO's, Ankle Foot Orthotics, to help correct his walking and gait and physiotherapy is necessary. I would be very interested to find out more about any study connecting BPES with neurological disorders. We are still looking for answers to the CP question as Hayden's birth went wonderfully and he seemed fine for so long. I'd love to hear more about a connection since it is hard to believe that these are two separate and unfortunate problems that have happened to the same sweet little guy. Sheryl (Hayden's Mom) P.s. the bushy eyebrows emails are hilarious, I will have the wax-pot ready! Sheryl Burlington, ON Canada blepharophimosis From: lyndenhuntertelus (DOT) netDate: Tue, 2 Sep 2008 07:40:33 -0600Subject: Re: blepharophimosis Speech Delay I too have never heard of a speech delay being part of BPES, actually I was told opposite saying above average intelligence was connected... my son never has had anything of the sort.Lynden's doctor says he has yet to come across a BPES person with anything neurological that seems to be related to BPES.., however the study is on going of course.. He specializes in BPES here in canada and actually has made it part of his university course curriculum to teach students about BPES ..... which i think is so neat!!I think its just one of those many other things the average person is born with... But this is just my Honest opinion onlyTonikka and LyndenEdmonton Albrerta CANADA On 1-Sep-08, at 6:38 PM, S. Michel wrote:My husband nor my 2 boys with BLEP had speech delays. my 2nd grader has been an A student since Kindergarten and my 3 year old developed his speech at a very young age. Ive nerver heard that speech delay was a syptom of BLEP I hope you get more responses so that you can get some insight. Thanks for sharing MichelPhx AZ USA S. Michel blepharophimosis Speech DelayMy 20 year old is in college now in Fresno, Ca. However, before she was offically diag. with Blephs, she was noted to be delayed in speech and language. She really did not put sentences together until around 4 although she understood what was told her. She had a high, narrow palate. I was wondering if this was also associated with Blephs, or is this another genetic,birth condition that is a sep. issue? Anyone care to Comment?Rose B

[Guest guest]

Hello

Glad al is progressing really well.

My Daughter has an expressive speech delay mainly phonic and I know I have

heard from others with the same delay...I was told that BPE can sometimes come

with roof of the mouth issues but s seems to be fine.

Good Luck

and

---- " ewieczorek@... " <ewieczorek@...> wrote:

> My son was diagnosed with BPES almost 2-2.5 years ago (he was ~6 mos.

> old). He had his first surgery when he was 1.5 years and is expected to

> have another surgery later this year (he'll be a litte over 3 yr. old).

>

> Overall, he has progressed quite nicely but is having speech delay. His

> receptive skills are superb but his expressive skills are delayed. We

> have him signed up for Early Intervention to help him in his

> communication.

>

> Was curious to hear if anyone has ever heard that speech delays have

> been connected with BPES? or is it just a coincidence? We are in the

> process of seeing specialists (ENT physicians, etc.) as well as other

> specialized therapists.

>

> Thanks

>