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Hello - my name is and my niece (two weeks old now!) was

diagnosed yesterday with Blepharophimosis. I have encouraged her mom

to start right away in gathering support from other parents but she is

just too overwhelmed today, so I decided to hop on and get started for

myself! We are less than 24 hours into this so still on a huge

learning curve, her first visit to a lid specialist is another week

away. Any advice on the best way to support my sister as a new single

mom through this process would be extremely helpful. I love them both

so much! Thank you!

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