Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 Hi all Adding polls to the site is a great way of getting information. Please do feel free to use it. However, I think it is really important to make a point about this poll. The “50% chance of passing on BPES†question is hard science. This information has been known for years. The way that medics/scientists know this fact is based on the fundamentals of genetics. So – this question may mislead readers of this group into thinking otherwise. For this reason I am going to close it. I hope that you will understand that it is soooooooo important to avoid conveying misinformation … especially to all the new members of the group, who have not yet time to learn much about BPES, and are wanting answers – good answers, which are backed by science. I have contacted a doctor who is a member of this group. She has confirmed this, and agrees that this poll (as stated) can mislead. BUT PLEASE READ ON … BUT – I am wondering if the persons who made this question (original question below in green) may like to modify it slightly … Question If you or your spouse have BPES, and you have Children, do you believe there is really a 50/50 Chance of passing on the gene, related to YOUR number of children affected? If not do you believe there is more or less then 50% Chance? * I believe there is more then 50% Chance * 50/50 seems to be correct in our family * I believe there is less then 50% Chance Suggested modified / better question. If you or your spouse have BPES, and you have children, please let us know how many of them have BPES. We have only 1 child, Our child does NOT have BPES We have only 1 child. Our child does have BPES We have 2 children. Neither have BPES. We have 2 children. 1 child has BPES, the other does not. We have 2 children. Both children have BPES. We have 3 children. None of our children have BPES. We have 3 children. Just 1 of our children has BPES. We have 3 children. 2 of our children have BPES. We have 3 children. All 3 of our children have BPES. And so on …. Would people like me to do that? Regards Shireen Mohandes London England Quote Link to comment Share on other sites More sharing options...
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