Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Right. And " only half the surgeries turn out to stop one gland if that gland was overproducing aldo, " says Quan-Duh, head of UCSF endo surgery. And stopping the one gland may not work because there can be other reasons for PA even if you know one gland is overproducing. And ANOTHER myriad of reasons apart from correctly Dx'd PA, behind HTN, many unknown or uknowable. Dave On Feb 12, 2006, at 7:55 PM, wbongianni wrote: >> > FWIW. Surgury is always risky, and you can't reverse a proceedure once > done. You really are not it a rush situation. Take the Inspra. It > was developed specificly as an aldosterone blocker, unlike all the > mineral corticoids, like spiro. I've been on it for better than three > year, after being on spiro with the typical side effects. No side > effects on Inspra, and BP is 120/80 on 50 mg. > > If you don't do well on it long term, schedual the operation. There's > nothing wrong with a step by step approach. Wayne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 In a message dated 2/13/06 12:28:27 PM, mancoff@... writes: It seems worth the time of a group of grad students. Right now we all seem to be making fairly uninformed decisions. This is the normal state of affairs in Medicine now-unfortunately. Ideally for each medical decision one needs to make one could enter their specific condition and their individual utility estimates and then generate the "best" choice. I am basing mine on 40 years of experience but that is not unbiased data. Or a group of interested patients? In this sort of calculation each pt must provide a utility value for them for each possible outcome. Then one backcaluates and arrives at the "best" decision for them. One then moves the P values up and down to get a sensitivity anlaysis to see how the CBA changes with different reasonable Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 My daughter has been operated a few times by Dr. Pashy in Toronto. Not the Dr's fault. I think what you need to know is whether or not your child will sustain the sutures. For some reason my daughters sutures keep falling and she develops a reaction post surgery. This is what I am now working on...trying to find out what works for her. I have been seen by Dr. D'Angelis in Toronto who uses a completely different substance, called silicon, and he says it's virtually "inert", meaning its a substance that will not pose any reactions. I need to find out from whomever is they have used this and what there experience with it has been. Please do not hesitate to contact me directly seeing that we're both in Toronto. thomas_far@... From: ceccles_ca <ecclesreinson@...>blepharophimosis Sent: Saturday, December 27, 2008 11:54:55 PMSubject: blepharophimosis Re: Surgery Decision Dr. Pashby was my son's surgeon 18 years ago. He has a lot ofexperience with BEPS children. If is seeing fairly well, itmay not hurt to wait.Clay>> Hello All..> Our son will be 1 year old on January 3rd, 2009. We have been > to see three surgeons over the past year. Dr. Pashby in Toronto, Dr. > Deangelis in Toronto and Dr. Gilberg at CHEO in Ottawa. We are unsure > as to who is the best person to do 's surgery. We were told it > would take over 1 year to get a surgery booked at Sick Kids in > Toronto. Ottawa would take him right away.> We look forward to hearing any recommendations.> Sincerely,> > Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 Hi everyone, In preparation for another attempt at surgery, we are trying to reeducate ourselves on options available for eye lid-lift surgery. Has anyone ever used silicone when doing this surgery? What was your experience with the use of this method? Previously, a's surgeries were conducted using sutures (slings) but unfortunately she has not taken well to this as she has reacted to the sutures (slings fell causing her eye lift to fall back down and red sores developed). Knowing this, I'm trying to ask for your opinions on reactions/experiences with the use of: (1) silicone (recommended by a second opinion BPES surgeon). (2) use of fascia (currently not the recommended option in Toronto-Canada (although found a friend through this support group who says Montreal-Canada does use fascia. Keeping in mind, my daughters previous reactions...has this caused any reaction for anyone? Thanks for any advice you could share and Happy New year to everyone! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 Hi It may help you to read this resource: http://emedicine.medscape.com/article/839075-overview make sure you take a look a the links at the bottom of the pages, especially those called “Workup”, “Treatment” and “Follow-up” (they are at the very end). It is rather technical, and very detailed. It may help you to try to read it and discuss it with your doctor. Remember that we are all very different, and whilst sharing experiences is very good, there is no substitute for professional advice. I hope that this article will help you. I can’t offer you useful info about myself, because I am nearly 48 now, and was operated on at ages 2.5, 12 and 18. A long time ago. And techniques have changed hugely since then. Take good care, and I hope you find good doctors to help guide you to the right decision for la. Regards Shireen From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Farruggio Sent: 02 January 2009 19:47 blepharophimosis Subject: Re: blepharophimosis Re: Surgery Decision Hi everyone, In preparation for another attempt at surgery, we are trying to reeducate ourselves on options available for eye lid-lift surgery. Has anyone ever used silicone when doing this surgery? What was your experience with the use of this method? Previously, a's surgeries were conducted using sutures (slings) but unfortunately she has not taken well to this as she has reacted to the sutures (slings fell causing her eye lift to fall back down and red sores developed). Knowing this, I'm trying to ask for your opinions on reactions/experiences with the use of: (1) silicone (recommended by a second opinion BPES surgeon). (2) use of fascia (currently not the recommended option in Toronto-Canada (although found a friend through this support group who says Montreal-Canada does use fascia. Keeping in mind, my daughters previous reactions...has this caused any reaction for anyone? Thanks for any advice you could share and Happy New year to everyone! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 , My daughter Avery had slings and had a reaction to the slings. The slings were removed (she is still holding her lids up) and the next option is the fascia. Dr. Plager stated that if we use her own personal material, she should not have a reaction to this procedure. We are waiting until she is older and the fascia tissue is more developed. Avery will be 3 in July. Nicki From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Farruggio Sent: Friday, January 02, 2009 2:47 PM blepharophimosis Subject: Re: blepharophimosis Re: Surgery Decision Hi everyone, In preparation for another attempt at surgery, we are trying to reeducate ourselves on options available for eye lid-lift surgery. Has anyone ever used silicone when doing this surgery? What was your experience with the use of this method? Previously, a's surgeries were conducted using sutures (slings) but unfortunately she has not taken well to this as she has reacted to the sutures (slings fell causing her eye lift to fall back down and red sores developed). Knowing this, I'm trying to ask for your opinions on reactions/experiences with the use of: (1) silicone (recommended by a second opinion BPES surgeon). (2) use of fascia (currently not the recommended option in Toronto-Canada (although found a friend through this support group who says Montreal-Canada does use fascia. Keeping in mind, my daughters previous reactions...has this caused any reaction for anyone? Thanks for any advice you could share and Happy New year to everyone! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 My son has silicone rods/slings, they have held up well with one incidence of letting go, My doctor here in edmonton alberta canada specializes in BPES and your right its not common to use the fascia lata like some surgeons do, it all is personal preference, when we were researching options with Lynden's doctor his reasoning for NOT using the fascia is that silicone is more pliable and the fascia is too rigid, he also stated it has alot to do with the climate he has said on many occasions that because it is so dry here in canada (western canada) that plays a big part in what "product " he uses, Tonikka & Chrisneed a photographer?tmareephotography.comtmareephotography.blogspot.comspecial occasion? wedding?updotoyou.com On 2-Jan-09, at 12:46 PM, Farruggio wrote:Hi everyone, In preparation for another attempt at surgery, we are trying to reeducate ourselves on options available for eye lid-lift surgery. Has anyone ever used silicone when doing this surgery? What was your experience with the use of this method? Previously, a's surgeries were conducted using sutures (slings) but unfortunately she has not taken well to this as she has reacted to the sutures (slings fell causing her eye lift to fall back down and red sores developed). Knowing this, I'm trying to ask for your opinions on reactions/experiences with the use of:(1) silicone (recommended by a second opinion BPES surgeon). (2) use of fascia (currently not the recommended option in Toronto-Canada (although found a friend through this support group who says Montreal-Canada does use fascia. Keeping in mind, my daughters previous reactions...has this caused any reaction for anyone? Thanks for any advice you could share and Happy New year to everyone! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now!Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
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