Re: new mom looking for answers

[Guest guest]

Your bby boys sooooo cute...love seeing pictures I just added a enw pic of my daugther from the other day ... under Tailynn ( new photos) she 4yrs old~ with her and her sister~sarah_skehan <sarah_skehan@...> wrote: I just put a couple of pictures on. They are under Donovan. Every day seems to be getting a little easier but I suppose we haven't hit the worst times yet. Thanks for your support!> > > > >> > > > > > My 5 month old son was just diagnosed with BPES. There is no> > > > > > history on either side and this is our first child. We had> > never> > > > > > heard of this condition, all we knew was he didn't open his> > eyes> >

> > > > very wide. His pediatrician referred us to a local> > > > ophthalmologist,> > > > > > who explained his findings and recommended surgery. I'm sure> > many> > > > > > of you can relate to the devastation and fear that we are> > going> > > > > > through. The more information I find, the more questions I> > have.> > > > > > I'm trying to stay positive but so far the past 3 days have> > been> > > > > > very tough. We have spent the past 5 months feeling so> > blessed,> > > > > > taking hundreds of pictures, and just being so happy. I feel> > like> > > > > > that was all taken away from me in the blink of an eye. I> > > > certainly> > > > > > don't enjoy him any less but all I

can think of now is the> > > > hardships> > > > > > he will endure and I feel so helpless. It has been a> > > > rollercoaster> > > > > > ride. I have been finding info and looking at pictures that> > both> > > > > > encourage me, and scare me. There seems to be such a> > difference> > > > in> > > > > > individual results. The ophthalmologist we are seeing> > recommends> > > > > > doing surgery in the next couple months because his vision> > does> > > > not> > > > > > seem to have been affected yet. He was open about the fact> > that> > > > the> > > > > > procedure may have to be repeated. He explained the frontal> > sling> > > > > > procedure

by saying he would make 3 incesions above his brow.> > > > I've> > > > > > also seen this done using the forehead for attatchment. Can> > > > anyone> > > > > > explain the benefits of either way? It's also been> > recommended> > > > that> > > > > > we close the space between his eyes using the y to v> > procedure> > > > and> > > > > > that we might as well do that at the same time. It seems> > that not> > > > > > many people opt to do this so young. They say it's an easy> > > > > > procedure and the surgeon has done between 100-125. The> > surgery> > > > > > seems to be such an art. If anyone has a surgeon they swore> > by, I> > > > > > would travel the world to give him

the very best.> > > > > > Any advice would be greatly appreciated.> > > > > > > > > > > >> > > > > >> > > > > >> > > > >> > > > >> > > > > Tonikka & Chris> > > > > check out our blog> > > > > www.nottynurse.blogspot.com> > > > >> > > > >> > > > > > > > > >> > > >> > > >> > > >> > >> > >> > > Tonikka & Chris> > > check out our blog> > > www.nottynurse.blogspot.com> > >> > >> > > > > >> >> >> > > > > Tonikka & Chris> check out

our blog> www.nottynurse.blogspot.com> > > >

Don't be flakey. Get for Mobile and always stay connected to friends.

[Guest guest]

They do resemble each other. When we first saw Lyden's photo that

is exactly what we thought.

> > > > > > >

> > > > > > > > My 5 month old son was just diagnosed with BPES.

There

> > is no

> > > > > > > > history on either side and this is our first child.

We

> > had

> > > > never

> > > > > > > > heard of this condition, all we knew was he didn't

open

> > his

> > > > eyes

> > > > > > > > very wide. His pediatrician referred us to a local

> > > > > > ophthalmologist,

> > > > > > > > who explained his findings and recommended surgery.

I'm

> > sure

> > > > many

> > > > > > > > of you can relate to the devastation and fear that

we are

> > > > going

> > > > > > > > through. The more information I find, the more

questions

> > I

> > > > have.

> > > > > > > > I'm trying to stay positive but so far the past 3

days

> > have

> > > > been

> > > > > > > > very tough. We have spent the past 5 months feeling

so

> > > > blessed,

> > > > > > > > taking hundreds of pictures, and just being so

happy. I

> > feel

> > > > like

> > > > > > > > that was all taken away from me in the blink of an

eye. I

> > > > > > certainly

> > > > > > > > don't enjoy him any less but all I can think of now

is

> > the

> > > > > > hardships

> > > > > > > > he will endure and I feel so helpless. It has been a

> > > > > > rollercoaster

> > > > > > > > ride. I have been finding info and looking at

pictures

> > that

> > > > both

> > > > > > > > encourage me, and scare me. There seems to be such a

> > > > difference

> > > > > > in

> > > > > > > > individual results. The ophthalmologist we are seeing

> > > > recommends

> > > > > > > > doing surgery in the next couple months because his

> > vision

> > > > does

> > > > > > not

> > > > > > > > seem to have been affected yet. He was open about the

> > fact

> > > > that

> > > > > > the

> > > > > > > > procedure may have to be repeated. He explained the

> > frontal

> > > > sling

> > > > > > > > procedure by saying he would make 3 incesions above

his

> > brow.

> > > > > > I've

> > > > > > > > also seen this done using the forehead for

attatchment.

> > Can

> > > > > > anyone

> > > > > > > > explain the benefits of either way? It's also been

> > > > recommended

> > > > > > that

> > > > > > > > we close the space between his eyes using the y to v

> > > > procedure

> > > > > > and

> > > > > > > > that we might as well do that at the same time. It

seems

> > > > that not

> > > > > > > > many people opt to do this so young. They say it's an

> > easy

> > > > > > > > procedure and the surgeon has done between 100-125.

The

> > > > surgery

> > > > > > > > seems to be such an art. If anyone has a surgeon they

> > swore

> > > > by, I

> > > > > > > > would travel the world to give him the very best.

> > > > > > > > Any advice would be greatly appreciated.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Tonikka & Chris

> > > > > > > check out our blog

> > > > > > > www.nottynurse.blogspot.com

> > > > > > >

> > > > > > >

> > > > > > > ÃÆ'¯Â¿Â¼

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > > Tonikka & Chris

> > > > > check out our blog

> > > > > www.nottynurse.blogspot.com

> > > > >

> > > > >

> > > > > 

> > > > >

> > > >

> > > >

> > > >

> > >

> > >

> > > Tonikka & Chris

> > > check out our blog

> > > www.nottynurse.blogspot.com

> > >

> > >

> > > 

> > >

> >

> >

> >

>

>

> Tonikka & Chris

> check out our blog

> www.nottynurse.blogspot.com

>

>

> 

>

[Guest guest]

Both girls are beautiful!!!

> > > > > >

> > > > > > > My 5 month old son was just diagnosed with BPES. There

> is no

> > > > > > > history on either side and this is our first child. We

> had

> > > never

> > > > > > > heard of this condition, all we knew was he didn't

open

> his

> > > eyes

> > > > > > > very wide. His pediatrician referred us to a local

> > > > > ophthalmologist,

> > > > > > > who explained his findings and recommended surgery.

I'm

> sure

> > > many

> > > > > > > of you can relate to the devastation and fear that we

are

> > > going

> > > > > > > through. The more information I find, the more

questions

> I

> > > have.

> > > > > > > I'm trying to stay positive but so far the past 3 days

> have

> > > been

> > > > > > > very tough. We have spent the past 5 months feeling so

> > > blessed,

> > > > > > > taking hundreds of pictures, and just being so happy.

I

> feel

> > > like

> > > > > > > that was all taken away from me in the blink of an

eye. I

> > > > > certainly

> > > > > > > don't enjoy him any less but all I can think of now is

> the

> > > > > hardships

> > > > > > > he will endure and I feel so helpless. It has been a

> > > > > rollercoaster

> > > > > > > ride. I have been finding info and looking at pictures

> that

> > > both

> > > > > > > encourage me, and scare me. There seems to be such a

> > > difference

> > > > > in

> > > > > > > individual results. The ophthalmologist we are seeing

> > > recommends

> > > > > > > doing surgery in the next couple months because his

> vision

> > > does

> > > > > not

> > > > > > > seem to have been affected yet. He was open about the

> fact

> > > that

> > > > > the

> > > > > > > procedure may have to be repeated. He explained the

> frontal

> > > sling

> > > > > > > procedure by saying he would make 3 incesions above

his

> brow.

> > > > > I've

> > > > > > > also seen this done using the forehead for

attatchment.

> Can

> > > > > anyone

> > > > > > > explain the benefits of either way? It's also been

> > > recommended

> > > > > that

> > > > > > > we close the space between his eyes using the y to v

> > > procedure

> > > > > and

> > > > > > > that we might as well do that at the same time. It

seems

> > > that not

> > > > > > > many people opt to do this so young. They say it's an

> easy

> > > > > > > procedure and the surgeon has done between 100-125. The

> > > surgery

> > > > > > > seems to be such an art. If anyone has a surgeon they

> swore

> > > by, I

> > > > > > > would travel the world to give him the very best.

> > > > > > > Any advice would be greatly appreciated.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > > Tonikka & Chris

> > > > > > check out our blog

> > > > > > www.nottynurse.blogspot.com

> > > > > >

> > > > > >

> > > > > > 

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > > Tonikka & Chris

> > > > check out our blog

> > > > www.nottynurse.blogspot.com

> > > >

> > > >

> > > > 

> > > >

> > >

> > >

> > >

> >

> >

> > Tonikka & Chris

> > check out our blog

> > www.nottynurse.blogspot.com

> >

> >

> > 

> >

>

>

>

>

>

>

> ---------------------------------

> Don't be flakey. Get for Mobile and

> always stay connected to friends.

>