To Shireen

[Guest guest]

Dear Shireen,

A few days ago I sent an e-mail to the BPES group and I never saw it posted. I guess I don't mind, but I was hoping to find out if it was chosen to not be put up because of its content or maybe it never made it to you. Please let me know. My e-mail was harmless and I only wrote with kindness in mind. This sight helps me alot. My daughter isn't the only one who is affected. I think almost all parents who never had BPES and brought a child into this world with it will say the same.

This is my daughter: "I see her and she is my soul".

With dearest regards,

Terry

[Guest guest]

Hi Terry., thanks for getting in touch with me.

To date, I have never refused an email. I felt

like it at times … only to avoid a potentially hurtful email… but

thankfully never needed to.

The exception is that many people join the group and spam it,

selling services and treatments – I don’t allow those to go though.

It is far more likely that there it got lost in space.

However, I will check and let you know. I will be in touch

with you directly.

Take care

Shireen Mohandes

London

, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of Terry Helgestad

Sent: 06 January 2009 03:11

blepharophimosis

Subject: blepharophimosis To Shireen

Dear Shireen,

A few days ago I sent an e-mail

to the BPES group and I never saw it posted. I guess I don't mind, but

I was hoping to find out if it was chosen to not be put up because of its

content or maybe it never made it to you. Please let me know. My

e-mail was harmless and I only wrote with kindness in mind. This sight helps

me alot. My daughter isn't the only one who is affected. I think

almost all parents who never had BPES and brought a child into this world

with it will say the same.

This is my daughter: " I see

her and she is my soul " .

With dearest regards,

Terry