Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 In a message dated 5/2/2007 1:12:34 A.M. Eastern Daylight Time, mom2rkd@... writes: Anyway - thank you for listening...An Rose Rose i know how you feel... Doing the simplest of things wears me out as well so i have to pace myself. Now being 28 and 2 young kids that is tough to do. there are days where i have tears too. HUGS hang in there kiddo! in PA ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 (((Rose))),.....There is nothing wrong with feeling this way. I understand so much how you feel. I just turned 44, and it's not easy to deal with. It doesn't help to see people on TV a lot older, and in better shape. Then when you do go out, people wonder what's wrong with you. We don't look sick, but if they only could walk in are shoes one day. I'm so glad you have your daughter to help you. You are blessed with your children, and your grandchildren. Just know if you ever need an ear, I'm around. Take care, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 I am really sorry that your having such a hard time. Don't be hard on yourself about complaining we all have those times. I know what you mean about the age thing I am only 29 and have been brought to tears many times because of my pain. My 3 kids are all under 6 and I wonder how I will ever take care of them as the years pass. Take care of you and keep hangin' in there. Zoni From: mom2rkd [mailto:mom2rkd@...] Sent: Wednesday, May 02, 2007 12:12 AM Subject: [ ] Tears Hi everyone - It's been a long few days since I've really been able to get to the computer and read everyone's post. I hope ya'll are doing okay. Tonight I was folding clothes and found that it was too painful to do so without ending up in tears. My daughter came into help me when she realized I was hurting. I know there are so many of you out there that are so worse off than me - and yes I should be looking at my blessings - but just for this moment, it really upsets me that folding a t-shirt brought me to tears!!! I am ONLY 43 years old! Isn't this supposed to be the prime of my life? Well, despite my physical issues, I suppose it is - I've three great children who are all grown and three wonderful grandchildren - one of which I get to be with everday because I live with her parents! :-) Anyway - thank you for listening..... Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Rose: Don't feel bad!! I get the same way! I'm only 45 (well soon to be 46 the 28th of this month) and I have felt that same way and I have said those very same words " Isn't this supposed to be the prime time of my life! " I am just so thankful that I found this site. People here know and have felt the very same way we do. No one can really understand how we feel except for those of us who have these dreadful diseases! I try to keep it to myself as much as I can, because I know that my husband gets tired if hearing me complain. But the pains seems to never go away...it gets better at times...but the pain is always there. Just know that you can come here and cry with us anytime! LOL, Gale mom2rkd <mom2rkd@...> wrote: Hi everyone - It's been a long few days since I've really been able to get to the computer and read everyone's post. I hope ya'll are doing okay. Tonight I was folding clothes and found that it was too painful to do so without ending up in tears. My daughter came into help me when she realized I was hurting. I know there are so many of you out there that are so worse off than me - and yes I should be looking at my blessings - but just for this moment, it really upsets me that folding a t-shirt brought me to tears!!! I am ONLY 43 years old! Isn't this supposed to be the prime of my life? Well, despite my physical issues, I suppose it is - I've three great children who are all grown and three wonderful grandchildren - one of which I get to be with everday because I live with her parents! :-) Anyway - thank you for listening..... Rose Live well ~ Laugh often ~ Love with all your heart! --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Rose, I'm sorry I didn't respond with words of comfort yesterday, I've just been too physically and mentally drained to even sit and read my email. I hope you're feeling better now? Less pain? I haven't been able to get any sleep in I don't know how many days; I've lost count. Pain in my neck and back have kept me awake. If I stand or attempt to walk a few steps, I start shaking and sweating from the pain. When I sit back down, the pain doubles in intensity for a few minutes before it settles down. It doesn't go away though. It would be nice if it did. I hope you find some relief! Carol In a message dated 5/1/2007 10:12:16 P.M. Pacific Daylight Time, mom2rkd@... writes: Hi everyone - It's been a long few days since I've really been able to get to the computer and read everyone's post. I hope ya'll are doing okay. Tonight I was folding clothes and found that it was too painful to do so without ending up in tears. My daughter came into help me when she realized I was hurting. I know there are so many of you out there that are so worse off than me - and yes I should be looking at my blessings - but just for this moment, it really upsets me that folding a t-shirt brought me to tears!!! I am ONLY 43 years old! Isn't this supposed to be the prime of my life? Well, despite my physical issues, I suppose it is - I've three great children who are all grown and three wonderful grandchildren - one of which I get to be with everday because I live with her parents! :-) Anyway - thank you for listening..... Rose ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 My daughter is coming up on a year old and still does not have tears when she cries. Is this normal for bleph? Her doctors do not seem to be worried. Now she has an infected eye and they have talked about removing her sling. What about the tears? Would that cause the swelling? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Awwww.. Im sorry My daugther Tailynn had no tears.... as well .. after her surgery she was crying just fine.. they would well up in her eyes... and have to wipe them away . her other eye blocked duct ~ ~*Dawn-Marie~ 7 weeks till Shylah-Ann blepharophimosis Tears My daughter is coming up on a year old and still does not have tears when she cries. Is this normal for bleph? Her doctors do not seem to be worried. Now she has an infected eye and they have talked about removing her sling. What about the tears? Would that cause the swelling? Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hi my son who is 9 has never cried a tear.The Doctors told us he must have as they dont seem to believe us.But I know he doesn't,his eyes must some how lubricate themselves.I also have Bleph and so does my 18 year old son and our eyes are always watering.Ally. blepharophimosis Tears My daughter is coming up on a year old and still does not have tears when she cries. Is this normal for bleph? Her doctors do not seem to be worried. Now she has an infected eye and they have talked about removing her sling. What about the tears? Would that cause the swelling? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 I have the same issues. I actually DO have depression and my family keeps saying that my depression is amplifying my pain. I keep telling them that if I didn't have PA i would basically be happy. But they are just so sure that the PA isn't as bad as I think and it is the depression that makes it bad. UGH. I just keep plugging away. Hopefully they will clue in soon. My Rheumy called today and my liver enzymes are elevated and there is no relief with the MTX so it doesn't seem to be doing it's job. So since I got let go and have no insurance he is going to have me come in and fill out the forms for the Humira Prescription assistance program. I hope I qualify. That is one really expensive medicine. " tweetygodess " <tweetygodess@...> Quote Link to comment Share on other sites More sharing options...
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