Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 In a message dated 12/16/01 6:43:05 AM Pacific Standard Time, mcnutt@... writes: I have a severe ear infection and have been in bed taking Cipro and Loratab. The doctor wanted me to be in the hospital on IV antibiotics, but I asked that we try the oral procedure first. My daughter is getting married this Friday and there is so much to do. I did make a promise to myself and the doctor that if I didn't feel as if I am any better by Monday, I will go back and try his way. He said I basically have NO immune system left and must take all of this very serious. Again, I just wanted to say thank you and I look forward to getting to know you, as well as everyone else. This is a great group! Happy Holidays to all! Take care, a, and enjoy your daughter's wedding. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 , I have Pernicious Anemia that I take B12 shots for. I am more vegetarian but eat meat once in a while. I have also been anemic since transplant but now it has gotten a lot worse. I was to the point of asking transplant if they would give me Procrit, I am sick of no energy and I really want to feel stronger but can't seem to get there. The docs are going to do Iron testing on me in a few weeks. I took Iron pills for 2 days and felt really better. gayle/trans.6-99 galye@... bmb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hi a, It is a strange sickness...and I understand the SO TIRED.... One week I could be jumbing around and the next sleeping my days off.... I wish the people that are around you could understand... it may be hard for them but specially with what you are going through now, they must be in denial. I'm wandering if you are vegetarian.... Many vegetarians miss B-12. Are you a meat eater... Well I imagine if you are anemic your body is missing that B-12 too. I hope you won't need the transfusions and that the injections will work. I'm almost possitive that when this will be stable you will feel much better. At least you will have a gain of energy.... Which is much needed. Hang in there and my thoughts are with you.... I'll pray that your family will be able to see that you need their understanding. HUGS from Canada Tom & a <mcnutt@...> wrote: Hello everyone, This is a. I have posted a couple of times and enjoy each and everyone of you as I read the group postings daily. I learn so much from all of you and know I can come here as a safe place where others understand what I mean when I say I am SO tired! For the past week I have felt SO EXHAUSTED and just can't seem to find the words to express to my family to make them truly understand!!!!! They play it off by saying there is a new flu going around and that is probably what I am coming down with. I am not sure if it is their way of living in denial of my AIH, diabetes or other medical problems I am currently experiencing. Believe me, it is not normal for a person to come home Friday afternoon from work and basically sleep until about 5 pm Sunday evening. My body feels heavy and all I want to do is sleep. Also, lately I have been getting sores on my tongue. Have any of you experienced this at all? I am an extreme anemic and have been receiving Vitamin B-12 shots. They want to try this for 30 days. If my levels do not increase then they want to attempt a transfusion. I am just very frustrated right now and wish I didn't feel 80 years old when I just turned 36 last month. I know some of you are so much sicker than I and I am not trying to whine.....I just want to talk with you as I know you all understand some of my thoughts. Have any advice????? Thank you for listening. Take care and I truly mean it when I say thank you for being here and understanding. a in Arizona.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Glucosamine and chondroitin in OA: meta-analysis Glucosamine doesn't interfere with diabetes control The above 2 articles you sent to the group, were so interesting to me, as I have osteoarthritis and diabetes. I will be keeping them and sharing them with others with the same problems as me. So I want to thank you a for the wonderful information that you send to the group. From a new-be who has been lurking. Thanks Alma Alma & Colin Lane Adelaide, South Australia mailto.clan1623@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 ARGH LOST MY REPLY! My ex was Navy. Hunter was born on Keesler Airforce base in Biloxi. We separated when Hunter was 3. However Champus covered ds til my ex got out. I have a low opinion of military healthcare. I know it is better now than 10 yrs ago. I just had more than my share of bad experiences. We certaintly did not get any help or support for my son through the Navy. I hear things are quickly changing for the better though. I know the military at large currently does have supports in place. I've heard some wonderful things. Yet again I know others who have fallen through the cracks. Atleast they are headed in the right direction. a -- In , " mitchellboys3 " <mitchellboys3@c...> wrote: > I saw a post earlier by you that referenced the base... are you military? What branch? We are Air Force. Do you have any special services through the base? > > - weighing pros and cons of getting a dx for Nate > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 ahhhhhh... we were at Keesler once upon a time! lol Yeah about the healthcare. DS was seen at a big Army Medical Center in WA - and that was where he got misdiagnosed with RAD. (rolling eyes at the thought of this - it indicates severe neglect and ds was anything BUT neglected - he was ALWAYS on me, slinging, nursing, rocking, sleeping... sigh... pretty hard to neglect someone who is literally attached to you! lol) THe healthcare is part of why I am not sure if we want a dx. The military *might* have some plans in place that could get us housing faster (by having a special needs child) but dh and I were laughing at the idea of getting a dx in his records so we could get housing faster when we move. ;-) I just don't see them offering anything other than things I would be doing anyways. :-/ ( ) Re: To a ARGH LOST MY REPLY! My ex was Navy. Hunter was born on Keesler Airforce base in Biloxi. We separated when Hunter was 3. However Champus covered ds til my ex got out. I have a low opinion of military healthcare. I know it is better now than 10 yrs ago. I just had more than my share of bad experiences. We certaintly did not get any help or support for my son through the Navy. I hear things are quickly changing for the better though. I know the military at large currently does have supports in place. I've heard some wonderful things. Yet again I know others who have fallen through the cracks. Atleast they are headed in the right direction. a -- In , " mitchellboys3 " <mitchellboys3@c...> wrote: > I saw a post earlier by you that referenced the base... are you military? What branch? We are Air Force. Do you have any special services through the base? > > - weighing pros and cons of getting a dx for Nate > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 > ahhhhhh... we were at Keesler once upon a time! lol Oh yeah? I betcha miss it! hehehe We were there in 1993. > Yeah about the healthcare. DS was seen at a big Army Medical Center in WA - and that was where he got misdiagnosed with RAD. (rolling eyes at the thought of this - it indicates severe neglect and ds was anything BUT neglected - he was ALWAYS on me, slinging, nursing, rocking, sleeping... sigh... pretty hard to neglect someone who is literally attached to you! lol) That would really upset me. > THe healthcare is part of why I am not sure if we want a dx. The military *might* have some plans in place that could get us housing faster (by having a special needs child) but dh and I were laughing at the idea of getting a dx in his records so we could get housing faster when we move. ;-) I just don't see them offering anything other than things I would be doing anyways. :-/ Quicker housing huh? Hadn't heard that one. It also can alter your duty stations. For instance you can't go to Hawaii. I think they might offer therapy. My friend was taking his AS son to one. Guy was a clown! He was intrigued by Zach, but had no ideas on how to help. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 :-) Thank you , a !! F -- ( ) Re: To Fania re speech Great speech. I'm proud of you. Hugs, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 I will keep an > eye out for more updates. HI a I probably sound bonkers but it might help you so here goes... I think the reason for the allergies to enzymes all of a sudden was mercury redistribution...his metabolic rate is really fast and he needs ALA more frequently than 2 1/4 hours. Hard to do but next round I will try. I think it is every 1 1/2 hours before he has problems. WE are in the middle of a round (DMSA only) and he is much much happier since starting it. Back to normal almost. The Bioset has revolutionised our lives and he no longer has any yeast problems, our diets have expanded tremendously, sleep is much better and his bm's are normal for the first time in his life. We are able to tolerate all our supplements now but need far fewer. We can tolerate probiotics but once I went through some mega dieoff, we don't need them anymore. I know it sounds too good to be true but it is for us so I wanted to share it. Jacinta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Thank you, Carmen. I pray that your will recovery quickly. ~a in Georgia -------------- Original message -------------- hi a, It was Gwinnett Medical Center. The paramedics asked which hospital I wanted to go to, I said GMC because we could get there the fastesr. I wish I would have chosen Northside. But at least I lucked up with a terrific, knowledgable surgeon. If I have to have my surgery converted to a Roux Y, I will choose Northside. Take Care. Carmen In Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Once upon a time I would have said that I would not take my dog (whom I love dearly) to that hospital! They did not treat my grandfather or my mother well on two separate occasions. Beware of Northside for one reason -- and that would be Dr. Champion. I can promise you if he is still operating there (not sure if he is) he will tell you that you immediately need to have it changed to a RNY. He and I once upon a time had numerous and sometimes heated discussions via e.mail concerning the MGB. Find a doctor you trust above all else. Be well! in GA -- In , giveJesusatry@a... wrote: > hi a, > > It was Gwinnett Medical Center. The paramedics asked which hospital I wanted > to go to, I said GMC because we could get there the fastesr. I wish I would > have chosen Northside. But at least I lucked up with a terrific, knowledgable > surgeon. If I have to have my surgery converted to a Roux Y, I will choose > Northside. > Take Care. > Carmen In Atlanta > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Thank you so much, Machaela... You have brightened my day with your very kind words. -Terry Wisconsin USA Hello, There is in indeed 50/50 chance and there is a test you can perform while you are pregnant (after 10 weeks I think). My husband has BPS and we have decided to pass a test when I'll be pregnant. Since we know what it is, and his type is the one with women's infertility, we want to do what is possible to avoid it... I would be unable to tell to my future daughter that she will never be a mother and that I knew it before to be pregnant.... We have met specialists in genetics, who have performed the test (based on my husband's cells), and the team is ready... I would like to get pregnant in the coming months... :-) If you want to discuss it, I would love to ! It is the first time I met someone speaking about something else than eye surgery in the forum . Kind regards, Astrid. De : brittany_seslar <brittany_seslar>À : blepharophimosisEnvoyé le : Samedi, 27 Décembre 2008, 22h48mn 29sObjet : blepharophimosis testing Does anyone know if their is a test I can take while I am pregnant tofind out if my child will be born with this eye condition? the fatherof my unborn child and his 4 year old son both have blepharophimosis.I have read that it is a 50/50 chance that it will be passed on toyour child...is that true? Stay connected to the people that matter most with a smarter inbox. Take a look. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 I'm familiar with chiari malformation because I work in a neuro hospital. In fact I have a pt that just had a chiari resected a few days ago. I'm not a doctor, but I would have the chiari looked at first b/c that could be reasons for the symptoms. Where do you live? Melinda in Dallas From: erica rasmussen <toblueeyez@...>Subject: [ ] harrington rod and chiari malformation Date: Sunday, March 7, 2010, 8:50 PM Hello All,My name is a and I just joined the group. To give you a quick summary of myself, I had a harrington rod placed in my back in 1978. I've always had certain areas in my back that would give me problems throughout the years but have always lived with it. I never thought while growing up that the rod might not last and could give me problems later in life. Recently I've been doing research on my back because I've been having troubles with my legs feeling heavy, stiff, weak and sometimes feel like they don't move right when I walk. I was wondering if any of these symptoms could be associated with my back or my rod. I was also wondering if anyone else is experiencing this as well and what they do about it.Sorry this is going to be long- but I have one more issue to add. I found out about 2 years ago that i have chiari malformation and the specialists in this field think that my hand weakness/joint issues, leg issues/numbness are coming from the chiari malformation. To make a long story short I'm trying to figure out which problems are from my back verses my neck/brain/chiari malformation. Is there anyone one in this group dealing with this as well?thank you so mucherica Quote Link to comment Share on other sites More sharing options...
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