Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 Hi I was born with BPES, and came accross this group while trying to find out more about the condition. I had surgery when I was 18 years old, which was very successful and improved my appearence and confidence significantly. I have treid to post some pics, as I hope it will give reassuarence to some of the parents here. Until now, my eyes have never really been a problem for me, I didn't even realise it was a 'syndrome' . I always believed it was just 'a thing that I got from my dad'. However, I have been trying to get pregnant for a while now, and have found out that I have 'premature ovarian failure' (POF). I have also found out that this is closely linked with women who have BPES. I was wondering if anyone is in the same situation as me, or know's of anything that might be able to help? At the moment, we are persuit IVF, however our chances are pretty slim. If this fails, we will have to resort to egg donation. I would also like to add, that I am 31 years old now, and if I knew earlier that I was a high risk of POF, then I would have treid to have children earlier, or looked into freezing my eggs. If there is anyone out there who is in their early 20's, or any mom's who have girls with BPES, then please baer this in mind, as things could have been very different for me if I had have known more about this when I was younger. I will continue to try to add some photos! Abbie x Quote Link to comment Share on other sites More sharing options...
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