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Diane,

Thanx for the info. We are considering a second opinion. 's levels

are sooooooo good IGG 950 with IVIG q 3 weeks and are considering stopping. But

we're worried about his levels dropping again.

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our immunologist wants to see the trough levels remain high. How is

doing with infections? Lucas has trough levels of 800-1100 but is

still getting everything that comes his way. He has had three

hospitalizations this year. He has also had a fever between each cycle of

IVIG. I was hoping we could move to every 4 weeks this summer. But our

doctor won't consider it. He says why have him go backwards when we can

keep him stable with the IVIG. I know that different parts of the country

deal with this differently. We do not have hot dry summers in the NWest so

the risk of infections still remains high with a kid like Lucas who is so

allergic. We had hoped we would have been off of the IVIG by now but it

seems like we will be doing it for a while longer. We have been on it since

he was 4 and he is 6 now. Just some thoughts. BARBIE

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