Re: 's First Surgery, pics added to album

[Guest guest]

Hello,Your little guy looks fantastic! Looks really successful.So happy to hear everything has gone so well for you.Machaela & coFrom: ndaiutolo <ndaiutolo@...>Subject: blepharophimosis 's First Surgery, pics added to albumblepharophimosis Received: Tuesday, 25 November, 2008, 2:34 PM

Hello everyone!

I wanted to follow up regarding my son's first surgery. He had the

double z-plasty with silastic slings operation done on Oct. 23rd.

He's responded beautifully and my husband and I are amazed at the

difference it has made. He is seeing much better now, and no longer

tilts his head back to look at things.

All of your postings and pictures were so helpful to my husband and

I while we were deciding whether or not to go through with the

surgery. We're very grateful for all of your support and guidance.

We are eager to return the favor ... for anyone who has questions,

or is struggling with their own decisions regarding surgery for

their child/loved one, please feel free to contact us.

We've also added to our photo album entitled "" to include

pictures from before and after surgery (1 day post op through 1

month post op).

Thanks again and I will keep you posted on 's progress.

Regards,

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[Guest guest]

Hi Leanne - I saw from your post that you're in NZ? I have just

joined this support group and live in Akld, NZ. Where are you?! My

son is 16 months old and his Dad had his operations when he was 3 and

then 11 but our opthamologist thinks we will do Charlie's at around 3

and 4 years old, depending on the leg muscle growth. It is very

interesting reading here the wide range of ages but I guess it also

has to do with the range of the condition. Would love to meet up

sometime if you were keen?

Talia

> > >

> > > Hello everyone!

> > >

> > > I wanted to follow up regarding my son's first surgery. He had

> the

> > > double z-plasty with silastic slings operation done on Oct.

> 23rd.

> > > He's responded beautifully and my husband and I are amazed at

the

> > > difference it has made. He is seeing much better now, and no

> > longer

> > > tilts his head back to look at things.

> > >

> > > All of your postings and pictures were so helpful to my husband

> and

> > > I while we were deciding whether or not to go through with the

> > > surgery. We're very grateful for all of your support and

guidance.

> > >

> > > We are eager to return the favor ... for anyone who has

> questions,

> > > or is struggling with their own decisions regarding surgery for

> > > their child/loved one, please feel free to contact us.

> > >

> > > We've also added to our photo album entitled " " to

include

> > > pictures from before and after surgery (1 day post op through 1

> > > month post op).

> > >

> > > Thanks again and I will keep you posted on 's progress.

> > > Regards,

> > >

> > >

> > Hi ;

> > I can see from your smile in your photo just how happy you are

with

> > the results of 's surgery. My son is Dominic (pics of

> before

> > and after in the album). I know how great you feel now your son

can

> > see the world without tilting his head; my son was exactly the

same.

> > Best wishes for your lovely little boy.

> > Leonie.

> >

>