Guest guest Posted November 5, 2002 Report Share Posted November 5, 2002 I was schedule to do eye surgery this week , (cateracts) , but needed to be be postponed for a month ... I'm interested on this subject as well ... Walter@... or essexhaus@... 26 yrs. Reiters /46yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Steve Hinnenkamp wrote: > > Has anyone in the group had laser eye correction done? I am thinking of doing this but am concerned if the reiters connection might not be good. Steve, I have AS and I'm not sure if Reiters patients have problems with uvieits, but I'll comment anyway. I have completely blind in one eye as a result of complications from iritis. My other eye has been flaring with iritis for five years and I developed a cataract as a result of the treatment. I spent about two months seeing 20/100 in one eye. Trauma and stress can cause flares. I would suggest you consult with an optholmologist - not the person who would do the surgery - about whether you are at risk for a flare with your Reiters. Believe me, you don't want to mess with your eyes if they are quiet. Best of luck to you and congratulations on your remission. Judi > ------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 In a message dated 25/02/2004 20:37:40 Central Standard Time, juner24@... writes: > > Hi all, don't know if I men tioned it but on March 3 I get my cataract > removed, I just read the directions on the eye drop and it says one drop every 4 > hours. Does anyone know if this means ever 4 hours literally during the night? > Probably a dumb question but this is all new to me. The other eye gets done > March 22. > > Hugs > June > Usually the doc will specify, so I would ask. Some things are while awake, some are around the clock. I'm guessing while awake or they would have told you, but I would still clarify it. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 I have a daycare and have had the question come up a lot with children's medications. If it says 3 times a day, you don't have to get up during the night. But, if it definitely states every 4 hours you are supposed to do it every 4 hours. I don't know anything specifically about the eye drops, though. Becky [ ] eye surgery Hi all, don't know if I men tioned it but on March 3 I get my cataract removed, I just read the directions on the eye drop and it says one drop every 4 hours. Does anyone know if this means ever 4 hours literally during the night? Probably a dumb question but this is all new to me. The other eye gets done March 22. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 June, good luck on your eye surgery coming up. I will keep you in my prayers, bless you Tawny > Hi all, don't know if I men tioned it but on March 3 I get my cataract removed, I just read the directions on the eye drop and it says one drop every 4 hours. Does anyone know if this means ever 4 hours literally during the night? Probably a dumb question but this is all new to me. The other eye gets done March 22. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi June, My one year old is having a cataract removed on Tuesday, and I know we are to wake her up to put drops in. I'd definately ask your doctor. I assume since you are an adult you will get an implanted lens put in, which may change things. My daughter is too small to get that. We will need to put a prosthetic contact lens on her. So, maybe that would change the frequency of your drops. Either way, ask your doctor and good luck to you on Wednesday! > Hi all, don't know if I men tioned it but on March 3 I get my cataract removed, I just read the directions on the eye drop and it says one drop every 4 hours. Does anyone know if this means ever 4 hours literally during the night? Probably a dumb question but this is all new to me. The other eye gets done March 22. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 I'm sending prayers and best wishes for your daughter, you, and your family for Tuesday, ! I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Re: eye surgery > Hi June, > > My one year old is having a cataract removed on Tuesday, and I know > we are to wake her up to put drops in. I'd definately ask your > doctor. I assume since you are an adult you will get an implanted > lens put in, which may change things. My daughter is too small to > get that. We will need to put a prosthetic contact lens on her. So, > maybe that would change the frequency of your drops. Either way, ask > your doctor and good luck to you on Wednesday! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi June... didn't know you had this surgery! I have " several " on my right eye. They say they are not yet " big enough " to take off!!!??? Wellllllllll.... Hello! I CAN'T SEE OUT OF THAT EYE! Anyway... I don't think 'every 4 hours' would be problem for most of us... as I don't think ANY of us SLEEP 4 HOURS in a night straight! How was the surgery? It scares me to death thinking of having it done. How was it " during " the surgery? I mean... I use to HATE for my mom to take a speck of dirt out of my eye when I was little. I really do " fear " thinking of having to eventually have this done. Can you tell how it was? What they do/did? Felt during and AFTER??? Susie June Dixon wrote: > Hi all, don't know if I men tioned it but on March 3 I get my > cataract removed, I just read the directions on the eye drop and it > says one drop every 4 hours. Does anyone know if this means ever 4 > hours literally during the night? Probably a dumb question but this is > all new to me. The other eye gets done March 22. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 June, I would call and ask your doctor and see what they say. Don¹t feel like it¹s a dumb question. My FIL always says the only dumb question is the one not asked. Good luck with your surgeries. a > Hi all, don't know if I men tioned it but on March 3 I get my cataract > removed, I just read the directions on the eye drop and it says one drop every > 4 hours. Does anyone know if this means ever 4 hours literally during the > night? Probably a dumb question but this is all new to me. The other eye gets > done March 22. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 June, I don't remember having to get up during the night to put drops in when I had mine done but -I would call the dr. and get the info from him just to be on the safe side. June Dixon <juner24@...> wrote: Hi all, don't know if I men tioned it but on March 3 I get my cataract removed, I just read the directions on the eye drop and it says one drop every 4 hours. Does anyone know if this means ever 4 hours literally during the night? Probably a dumb question but this is all new to me. The other eye gets done March 22. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi Susie, I have not had the surgery yet. Right eye is on March 3 and left, March 22. Like you, I cannot stand anyone touching my eyes. Eye drops were out of the question LOL. They use a new technique, which I just found out today at the pre-op today. I go in and all you have to take off is your top. They give you something just to calm you down and the procedure, which takes 10-15 mins, is done by freezing the eye and using laser. She tells me after one day, I can start teaching again or whatever. However, I will tell you all about it after it is done. Apparently you now have the option and you make the decision when you want the cataracts removed and no longer do you have to wait until they " are ready " . You just tell your eye doctor and he refers you to a surgeon. The hard part up here in Canada is, the waiting time for the surgery is 6 months to a year. I was very fortunate the hospital gave my surgeon an extra hospital day, I happened to be there and she offered it to me. If I had not taken the March 3 date, it would have been August. BTW I am so happy to have you back posting again. I was gone for a time myself and it feels like coming home with all my pals. Hugs June ----- Original Message ----- From: Elf Hi June... didn't know you had this surgery! I have " several " on my right eye. They say they are not yet " big enough " to take off!!!??? Wellllllllll.... Hello! I CAN'T SEE OUT OF THAT EYE! Anyway... I don't think 'every 4 hours' would be problem for most of us... as I don't think ANY of us SLEEP 4 HOURS in a night straight! How was the surgery? It scares me to death thinking of having it done. How was it " during " the surgery? I mean... I use to HATE for my mom to take a speck of dirt out of my eye when I was little. I really do " fear " thinking of having to eventually have this done. Can you tell how it was? What they do/did? Felt during and AFTER??? Susie June Dixon wrote: > Hi all, don't know if I men tioned it but on March 3 I get my > cataract removed, I just read the directions on the eye drop and it > says one drop every 4 hours. Does anyone know if this means ever 4 > hours literally during the night? Probably a dumb question but this is > all new to me. The other eye gets done March 22. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Oh my goodness, , poor little baby. I have never heard of an infant having cataracts. Does your daughter have other health issues as well? Thanks for taking the time to answer my query, I have found out that I use the eye drops 4 times daily, breakfast,lunch,dinner and bedtime. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 Prayers go up for you, Pat. Keep us posted to your results. You're in good care. Best regards, Connie <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 Hi Pat, I had Lasik on both eyes 5 years ago before I was diagnosed. I went through a battery of tests that took 3 hours long before the surgeon said it could be done. I highly recommend you see a surgeon and not a clinic. Only because of your special needs. I have eye issues now, and use Restasis and Systane daily. My eyes flare up where it looks like a vaseline smear. It is the pitting of the cornea. However as long as I lubricate them 5 times a day and make sure I take all make-up off at night I am ok. Good luck, and I pray you get good results. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 Hi Pat, My thoughts and prayers will be with you for a successful surgery. I am glad you found the good folks at Duke. Keep us posted. Love, in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Nan, Brings back memories when I had cats removed in 1986. The hard part was doing one eye, waiting 3 months, then doing the other eye. Be careful, dont go too fast until you see better. LOL Bumper cars, yeah. Be fun to get in one of those again, wonder if they will let me. LOL *---* *---* *---* *---* *---* Everything should be made as simple as possible, but no simpler. & Dreamer Doll ke7nwn Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Nan, Sorry recovery from eye surgery is slow going, and complicating life. Praying you will continue to regain and do even better than before. Please keep us posted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Can anyone help? My daughter has BPES and she is about to turn 1 next month. I really want her to start the process of her eye surgery (she has to get one to raise and the other to widen) As of right now it is not effecting her vision but for Aesthetic purposes I want her to get the process done while she is still little. we are from NEW JERSEY and currenly see Dr. Mikey in Paterson,NJ. I am having difficulty getting this process going with him and am looking for a refferal to any good eye doc with experience with BPES. I am willing to travel to NJ, NY,PA. Can anyone help????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 :There are several great dr's in the world and several great dr's in the states. There are also different opinions on the best time for surgery all with their own merits. Due to the rarity of BPES, the fact that cases can be so different, and the varying materials that can be used for the slings, there is not a definite best time to do surgery or to do surgery at all. Having said all of that, after consulting with several dr's here in the Chicago area we were referred to Dr. Katowitz at Children's Hospital of Philadelphia. He is a pediatric oculoplastic surgeon as well as an ophthalmologist. He has many BPES patients and since every case can be different he can advise you and your family on what course of treatment and/or surgery would be best. A nurse who works with him by the name of Ivy Kuhn is also a great resource to speak to. He does book out fairly far in advance but if you are traveling in to see him his scheduler may be able to help accommodate your schedule as well. We came from Chicago to see him and were able to get a consultation in fairly quickly last year. We then scheduled our surgery for about two months later. Our son had surgery at 10 months and again at 13 months due to one of the slings breaking. I would be happy to address any specific questions. 's pictures are in the database. --Anne Weber (anrweber@...)-- Chicago, IL USAFrom: kellymconover <kellymconover@...>Subject: blepharophimosis Eye surgeryTo: blepharophimosis Date: Tuesday, January 27, 2009, 8:46 AM Can anyone help? My daughter has BPES and she is about to turn 1 next month. I really want her to start the process of her eye surgery (she has to get one to raise and the other to widen) As of right now it is not effecting her vision but for Aesthetic purposes I want her to get the process done while she is still little. we are from NEW JERSEY and currenly see Dr. Mikey in Paterson,NJ. I am having difficulty getting this process going with him and am looking for a refferal to any good eye doc with experience with BPES. I am willing to travel to NJ, NY,PA. Can anyone help????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 We live in Philadelphia have a 12 year old son who just had his 4th surgery. We would highly recommend both Drs. and Katowitz (father and son) at the Children's Hospital of Philadelphia (CHOP) since you are willing to travel to PA. In short, we could not have asked for more in terms of quality of care, and the results of his surgery were more than we expected. His previous surgeries, which commenced at 3 months, were performed at St. 's Children's Hospital and the former Temple Children's Hospital by Dr. ph Kubacki, who is also very good. I would imagine that you should have excellent options in and around NYC. If you have trouble, though, please look up Drs. Katowitz and at least have a consultation. It will be worth the effort. Good luck! , Connie and Jordan Zagerman > > Can anyone help? My daughter has BPES and she is about to turn 1 next > month. I really want her to start the process of her eye surgery (she > has to get one to raise and the other to widen) As of right now it is > not effecting her vision but for Aesthetic purposes I want her to get > the process done while she is still little. we are from NEW JERSEY and > currenly see Dr. Mikey in Paterson,NJ. I am having difficulty getting > this process going with him and am looking for a refferal to any good > eye doc with experience with BPES. I am willing to travel to NJ, > NY,PA. Can anyone help????? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Hi Just to let you know (and I am sure that the others in this group will agree) the way to determine the best timing for your daughter’s surgery is with the advice of an expert, which is usually an oculoplastic surgeon. If there is no reason to have surgery immediately sometimes the surgeons recommending delaying until the child is older. I am not a medic, so it is wrong for me to pass on medical advice. What I can say is that it is good to do some reading, find out a bit more, and put together a list of questions to ask the surgeon. Many people in this group have chosen to hold back on have treatment, and this should be a consideration for everyone. Try reading this link: http://emedicine.medscape.com/article/839075-overview especially the part that starts: Blepharophimosis ptosis syndrome and also read here: http://www.geneclinics.org/servlet/access?db=geneclinics & site=gt & id=8888891 & key=yvyThuThGZXK5 & gry= & fcn=y & fw=suti & filename=/profiles/bpes/index.html the part that says: Management. Timing of eyelid surgery involves weighing the balance of early surgery to prevent deprivation amblyopia and late surgery to allow for more reliable ptosis measurements. Surgery involves a medial canthoplasty for correction of the blepharophimosis, epicanthus inversus, and telecanthus at three to five years of age, followed a year later by ptosis correction, usually requiring brow suspension. Autogeneous fascia lata is not reliable before 3.5 to four years of age; in younger children, silastic slings can be used. For individuals with severe ptosis, surgical ptosis repair is recommended before the age of three years; for individuals with moderate ptosis, correction may be deferred until the age of five years. Ovum donation is the only possible therapy for the female infertility resulting from premature ovarian failure. Endocrinologic and gynecologic follow-up are advised in affected females in whom the BPES type is unknown or in whom BPES type I is suspected. Just to be sure, I am not trying to persuade anyone to do anything other than research the subject and to consider all the advantages and disadvantages, taking some time. There is no hurry, and you feel more confident about your decision about timing and treatment having spoken with the relevant expert professionals. Take care Shireen Mohandes London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of kellymconover Sent: 26 January 2009 19:47 blepharophimosis Subject: blepharophimosis Eye surgery Can anyone help? My daughter has BPES and she is about to turn 1 next month. I really want her to start the process of her eye surgery (she has to get one to raise and the other to widen) As of right now it is not effecting her vision but for Aesthetic purposes I want her to get the process done while she is still little. we are from NEW JERSEY and currenly see Dr. Mikey in Paterson,NJ. I am having difficulty getting this process going with him and am looking for a refferal to any good eye doc with experience with BPES. I am willing to travel to NJ, NY,PA. Can anyone help????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 I would agree 100%. My son was diagnosed with BPES and after doing a lot of research we chose Dr. Katowitz with CHOP. We commute from Long Island to see him. We were looking for specialists located in NYC, NJ, PA, MA, CT and could not be any happier with our decision in terms of quality of care, knowledge, experience, support, etc...My son had his 1st surgery when he turned 1 1/2 yrs old and we were very pleased with the results. Since then he has progressed quite nicely and is expected to have his second surgery later this year ( around 3 yrs old). Generally we travel every 5-6 mos. for a checkup. Additionally, we have spoken with him on the phone, as well as one of his medical residents - Kate - in connection with any questions we had since we live out of state. > > > > Can anyone help? My daughter has BPES and she is about to turn 1 > next > > month. I really want her to start the process of her eye surgery > (she > > has to get one to raise and the other to widen) As of right now it is > > not effecting her vision but for Aesthetic purposes I want her to get > > the process done while she is still little. we are from NEW JERSEY > and > > currenly see Dr. Mikey in Paterson,NJ. I am having difficulty > getting > > this process going with him and am looking for a refferal to any good > > eye doc with experience with BPES. I am willing to travel to NJ, > > NY,PA. Can anyone help????? > > > Quote Link to comment Share on other sites More sharing options...
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