Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Hi Diane - This really is something for everyone but has to do with what you were saying about the speech. One of the things that was very hard on me but I have since learned to deal with is that from about 0-7 Rudy's progress was tremendous. His mental & chronicalogical age were something that I could handle. At 7 his speech was at about 30 months. What gets difficult, in my case anyway, is that as Rudy gets older physically, he is still mentally just a toddler in many ways. The gap, which is tested here every three years, has grown tremendously and the first time I realized this was devastating. I just assumed his mental age would follow along and it didnt. This does not happen to all the kids, remember this is my son. There is so much more out there now to help the kids when they are babies and I know all of you are wonderful strong parents. I say this to you just as a way to let you know that as our kids get older the differences become more apparent especially as you see their twin or triplet or other siblings at the same age. This I think is a more unique situation for us, parents of multiples, than for parents of single ds kids because for us there is usually a constant reminder of where they should be. I have learned though to just see Rudy as an individual, not as a twin and not as a ds child. He is unique, he is a joy, he is sneaky, he is beautiful, he can be ugly, he is a dancer, he is a lover of music (all kinds), he is a flirt, he is intellegent, he is a baby, he is a young man, he is my Rudy. I'm crying as I write this and really hope I havent made ya'll cry but its just one of those days. Hugs to all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 , your post was very touching--I understand your feelings--you are such an inspiration to us all, as we journey on our way with our twins, triplets and our children with Down Syndrome. I recently made some posters to place on the wall of our church--with sayings about children. My favorite was, " We can't form our children on our own concepts; we must take them and love them as God gives them to us. " You have done that beautifully with Rudy and each of your children, ; I hope I can do as well with Sara. I know it isn't always easy. Hugs! Marcia Mom to Sara (DS) and 5-3/4 and Lucas 9-3/4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 yes i have a friend whose DD has a terrible speach also she is almost 4 and you cant understand a thing she says And she has been in speach class over a yr AMY MOMMY TO 4 KIDDIES Chelsea 9 Carrigian 5 4 Chaela Noelle Almost 1 from the mouth of a 4 yr old " your not fat mommy just squishy! " !!!! ) <A HREF= " http://hometown.aol.com/chevy974/myhomepagebaby.html " >The Haskett bunch</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 At 10:34 PM 03/11/2002 -0000, you wrote: >Can someone refer me to any information on the link between mercury >poisoning and speech delay? I've seen it somewhere but not sure >where. A friend's son is almost 3 years and doesn't have the language >developement he should have. > >Thank you! > Start with my mercury page and see what you can find http://www.nccn.net/~wwithin/mercury.htm there is info there -------------------------------------------------------- Sheri Nakken, R.N., MA Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account vaccineinfo@... (go to http://www.paypal.com) or by mail PO Box 1563 Nevada City CA 95959 530-740-0561 Voicemail in US http://www.nccn.net/~wwithin/vaccine.htm ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 This is only a snippet of the comparison between Autism & Mercury poisoning. To read more, here is the URL. <A HREF= " http://www.cureautismnow.org/sciwatch/am_manuscript6-30-00.doc " >Forum, Theories, Studies, Data Reviews</A> TRAIT COMPARISON ASD manifests a constellation of symptoms with much inter-individual variation (3,4). A comparison of traits defining, nearly universal to, or commonly found in autism with those known to arise from mercury poisoning is given in Table I. The characteristics defining or strongly associated with autism are also more fully described. Autism has been conceived primarily as a psychiatric condition; and two of its three diagnostic criteria are based upon the observable traits of (a) impairments in sociality, most commonly social withdrawal or aloofness, and ( a variety of perseverative or stereotypic behaviors and the need for sameness, which strongly resemble obsessive-compulsive tendencies. Differential diagnosis may include childhood schizophrenia, depression, obsessive-compulsive disorder (OCD), anxiety disorder, and other neuroses. Related behaviors commonly found in ASD individuals are irrational fears, poor eye contact, aggressive behaviors, temper tantrums, irritability, and inexplicable changes in mood (1,2,12-17). Mercury poisoning, when undetected, is often initially diagnosed as a psychiatric disorder (18). Commonly occurring symptoms include (a) " extreme shyness, " indifference to others, active avoidance of others, or “a desire to be aloneâ€; ( depression, “lack of interest†and “mental confusion;†© irritability, aggression, and tantrums in children and adults; (d) anxiety and fearfulness; and (e) emotional lability. Neuroses, including schizoid and obsessive-compulsive traits, problems in inhibition of perseveration, and stereotyped behaviors, have been reported in a number of cases; and lack of eye contact was observed in one 12 year old girl with mercury vapor poisoning (18-35). The third diagnostic criterion for ASD is impairment in communication (1). Historically, about half of those with classic autism failed to develop meaningful speech (2), and articulation difficulties are common (3). Higher functioning individuals may have language fluency but still show semantic and pragmatic errors (3,36). In many cases of ASD, verbal IQ is lower than performance IQ (3). Similarly, mercury-exposed children and adults show a marked difficulty with speech (9,19,37). In milder cases scores on language tests may be lower than those of unexposed controls (31,38). Iraqi children who were postnatally poisoned developed articulation problems, from slow, slurred word production to an inability to generate meaningful speech; while Iraqi babies exposed prenatally either failed to develop language or presented with severe language deficits in childhood (23,24,39). Workers with Mad Hatter's disease had word retrieval and articulation difficulties (21). Nearly all cases of ASD and HgP involve disorders of physical movement (2,30,40). Clumsiness or lack of coordination has been described in many higher functioning ASD individuals (41). Infants and toddlers later diagnosed with autism may fail to crawl properly or may fall over while sitting or standing; and the movement disturbances typically occur on the right side of the body (42). Problems with intentional movement and imitation are common in ASD, as are a variety of unusual stereotypic behaviors such as toe walking, rocking, abnormal postures, choreiform movements, spinning; and hand flapping (2,3,43,44). Noteworthy because of similarities to autism are reports in Hg literature of (a) children in Iraq and Japan who were unable to stand, sit, or crawl (34,39); ( Minamata disease patients whose movement disturbances were localized to one side of the body, and a girl exposed to Hg vapor who tended to fall to the right (18,34); © flapping motions in an infant poisoned from contaminated pork (37) and in a man injected with thimerosal (27); (d) choreiform movements in mercury vapor intoxication (19); (e) toe walking in a moderately poisoned Minamata child (34); (f) poor coordination and clumsiness among victims of acrodynia (45); (g) rocking among infants with acrodynia (11); and (h) unusual postures observed in both acrodynia and mercury vapor poisoning (11,31). The presence of flapping motions in both diseases is of interest because it is such an unusual behavior that it has been recommended as a diagnostic marker for autism (46). Virtually all ASD subjects show a variety of sensory abnormalities (2). Auditory deficits are present in a minority of individuals and can range from mild to profound hearing loss (2,47). Over- or under-reaction to sound is nearly universal (2,48), and deficits in language comprehension are often present (3). Pain sensitivity or insensitivity is common, as is a general aversion to touch; abnormal sensation in the extremities and mouth may also be present and has been detected even in toddlers under 12 months old (2,49). There may be a variety of visual disturbances, including sensitivity to light (2,50,51,52). As in autism, sensory issues are reported in virtually all instances of Hg toxicity (40). HgP can lead to mild to profound hearing loss (40); speech discrimination is especially impaired (9,34,). Iraqi babies exposed prenatally showed exaggerated reaction to noise (23), while in acrodynia, patients reported noise sensitivity (45). Abnormal sensation in the extremities and mouth is the most common sensory disturbance (25,28). Acrodynia sufferers and prenatally exposed Iraqi babies exhibited excessive pain when bumping limbs and an aversion to touch (23,24,45,53). A range of visual problems has been reported, including photophobia (18,23,34). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Search the archives/files. I believe there was a discussion not too long ago and there may have been links posted for more searching... Laurie Can someone refer me to any information on the link between mercury poisoning and speech delay? I've seen it somewhere but not sure where. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Oh boy do I know that feeling of going crazy over trying to get my child the help that he needs. Sadly I have lots of experience dealing with so called professionals who are way off based and sometimes flat out damaging to the whole process. Please don't hesitate to write to me personally at smccann@... if you need to talk about what is happening. I would also suggest posting what state you live in to the group childrenapraxianet because someone may be in your area and be of help that way. You are to be commended for being such a good advocate for your child. Please do not give up hope. No matter what the diagnosis please have faith that your son will be happy and successful because he has a loving parent who will go the distance for him. All my best, McCann cc: direct to Barron951 > please help I just read on your website about the signs of > apraxia and I believe that this is what my 3 yr old son has. I have > been trying to get help for him since he was 20 months and no > pedetrician, speech therapist(school, state help or private > insurance ) has helped. I going crazy. I even took him to a > neurologist and he was no help. the first therapist that saw him > noticed that he couldn't blow bubbles lift his tongue or do many of > the things that you mentioned but they always seem to refused to > give me a diagnosis. This so called specialist (neurologist) he saw > said that he was autistic, but I now he is not. this doctor based > his decision on what I told him that a teacher said about my son . > such a long story. but all I know is that he has great eye contact, > he smiles loves to be active, jump, has no problem going up to > people and saying hello,loves to hug > But he does have problems with the stairs, scissors and of course > he is extremely delay in speech, sometimes I not sure that he > understands everything we tell him. the developmental test that they > have done on him alway put him about six months to a year in delay > (e.i when he was 20 moths I was told that he was at the 9 moths old > level and at 3 yr he is they say at the 2-3 yr range. > I have lost all hope in the school system, state agencies and even > my insurance because none of them seem to want to go the extra mile > to help him, its all a waiting process for them > and in the meantime my child keeps growing and I feel even less and > less hope that he will ever be a completly normal kid. > if you can please direct me to someone ( a specialist) in my area > that really knows about apraxia and can diagnosed him please let me > know > thank you > Barron951@a... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Hi, where do you live? I am in Richmond, Virginia, and we have a great therapist here. My son Lawrence was also a year behind and we started speech therapy and fish oils when he turned 2 and didn't have a single word. Today he's talking constantly! His speech is still a bit unclear, but we hope that this will resolve in a year or so. We also took him to see a developmental pediatrician, who then diagnosed him with having several autistic features and expressive language disorder, since our son understood most of what was said to him. He did not always follow even simple commands, and was sometimes a little withdrawn. His therapist diagnosed him with apraxia, and told us right away that she did not believe he has autism. Today, most of his so called autistic behaviours have disappeared, and as he acquired more speech, these behaviours decreased more and more. My personal theory is that the vaccines might have played a role in all this. Please don't lose hope!! Start your son on the fish oils (you'll find all the information in the Late Talker book), and try to find a private speech therapist, and also try to do your own speech therapy with him as often as you can (I just took my clues from the therapist and applied them myself, so Lawrence got a little speech therapy each day from me). Your son sounds so much like mine, and it's easy to misdiagnose them with autism when you only see them for a short time. A speech therapist here at VCU (whom I disagreed with, and I didn't see her again) saw him once when he was still nonverbal, and he was just recovering from a cold. He was quite withdrawn and would not try to engage with her, but would be interested in her PC screen. The therapist told me she thinks he's cognitively challenged. Today he knows his ABC's, counts to 300 and is expressing all kinds of sophisticated thoughts (eg, he was building a Lego house and when my husband moved a block, Lawrence said: Dad, don't move that, that's architecture!). So much for cognitively challenged! Hang in there, and if you're in my area, please email me! Kate (mom of Lawrence, 3 years3 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 My son sounds a lot like yours and is the same age. He has been going to speech therapy and the school system has placed him into a PPCD class for disabled children. He is doing much better and has learned his ABC " s, is counting and talking a whole lot more. I wanted to ask you more about the fish oils- what are they and what do they do? Re: [ ] Speech delay Hi, where do you live? I am in Richmond, Virginia, and we have a great therapist here. My son Lawrence was also a year behind and we started speech therapy and fish oils when he turned 2 and didn't have a single word. Today he's talking constantly! His speech is still a bit unclear, but we hope that this will resolve in a year or so. We also took him to see a developmental pediatrician, who then diagnosed him with having several autistic features and expressive language disorder, since our son understood most of what was said to him. He did not always follow even simple commands, and was sometimes a little withdrawn. His therapist diagnosed him with apraxia, and told us right away that she did not believe he has autism. Today, most of his so called autistic behaviours have disappeared, and as he acquired more speech, these behaviours decreased more and more. My personal theory is that the vaccines might have played a role in all this. Please don't lose hope!! Start your son on the fish oils (you'll find all the information in the Late Talker book), and try to find a private speech therapist, and also try to do your own speech therapy with him as often as you can (I just took my clues from the therapist and applied them myself, so Lawrence got a little speech therapy each day from me). Your son sounds so much like mine, and it's easy to misdiagnose them with autism when you only see them for a short time. A speech therapist here at VCU (whom I disagreed with, and I didn't see her again) saw him once when he was still nonverbal, and he was just recovering from a cold. He was quite withdrawn and would not try to engage with her, but would be interested in her PC screen. The therapist told me she thinks he's cognitively challenged. Today he knows his ABC's, counts to 300 and is expressing all kinds of sophisticated thoughts (eg, he was building a Lego house and when my husband moved a block, Lawrence said: Dad, don't move that, that's architecture!). So much for cognitively challenged! Hang in there, and if you're in my area, please email me! Kate (mom of Lawrence, 3 years3 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 HI! My son Caden has plagio but my 2 year old daughter (who doesn't have plagio) is still not talkative. She can say only about 40 words...when she wants too. But since a year old has been able to follow directions and communicates a lot nonverbally. My pediatrician said not to worry because she can put two or more words together and she can definitly hear and understand me. I still worry too, because so many of her little buddies say alot. Have you asked your pediatrician about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 HI! My son Caden has plagio but my 2 year old daughter (who doesn't have plagio) is still not talkative. She can say only about 40 words...when she wants too. But since a year old has been able to follow directions and communicates a lot nonverbally. My pediatrician said not to worry because she can put two or more words together and she can definitly hear and understand me. I still worry too, because so many of her little buddies say alot. Have you asked your pediatrician about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 I have a 3.5 month old little boy with tort/plagio and an 18 month old little girl who never had as much as a cold thus far. She has about 5 words; bear, bath, hi, by and belly. She understands just about everything, but does not talk much. At 18 months, this is not abnormal. You can always talk to your ped about it, but there really isn't anything to worry about. Edina > My 18 month old was diagnosed with positional plagiocephaly at 4 months > old. Luckily it was corrected with major physical therapy and me > keeping my daughters head from resting on anything unless it was > necessary. Now that she is 18 months old, I am concerned with her > speech or lack thereof. Does plagiocephaly have any correlation with > speech delays in an otherwise healthy child? Her receptive language is > great. She understands a lot of what I say. She also understands > turntaking in a conversation. She just won't say real words other than > daddy, mommy, yummy and hi. Does anyone know anything about this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 I have a friend whose son was having similar speech issues as your son. He did not have plagio. But he was already 2 and understood what was being said to him but spoke very few words himself. He was having frequent ear infections and recently got tubes put in his ears. Almost immediately, his vocabulary and language skills improved dramatically. I don't know if this would apply to your situation at all - but I thought I would share this info with you. Mom to Evan-5.5 months STARband for brachy > > Hello! I have not posted in along time. My son (now 2 1/2) wore > a starband for 17 weeks when he was 5 months old. He does not talk much > but does understand everything that is said to him. I am wanting to > know if his speech delay could be from the right side of his head being > flat and the brain being compressed? Does anyone have any insight on > this? Does anyone have a child this same way? > Thank you! > Wood > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Hi ,Your post caught my eye because I too am searching for language disorder links with plagio. Untreated plagio in my 3 year old daughter's case, but clearly a prebirth malformation of her skull. My daughter was born with bossed up fontanel on the right side, flattened on the left side and smaller left ear and ear canal, or, take your pick, larger right ear and ear canal. I'm not sure which, but the pediatrician told us not to worry, that we all have asymmetries and that it will fill in by itself and it did, that part was true, it is now barely visible but her speech isn't developing as it should be and she's been diagnosed with childhood apraxia of speech, a neurological motor planning disorder. She has some neurological soft markers like a hypotonic tongue when in relaxed play, and slight toe walking for brief 20 sec when starting out from being at rest, but other than that she appears to be developing normally, no other OT. PT issues. Her language auditory processing is in question by me, she's also been diagnosed with 9-ICD code 315. 32 receptive and expressive language disorder which could be a place holder for APD but specialists can' test until much later and if she continues to have problems with her speech, I wonder if they can ever test for it, but here's what's interesting: it does appear that children with plagio who have ear malformations too are at risk for auditory processing issues which do go hand in hand with speech disorders and may contribute to them, at least the expressive, receptive language part. The back of her head on the right side where the fontanel was bossed up quite a bit is indeed flatter, but it's her left ear that seems different to me, slightly less formed and a smaller ear canal. But then as I've said, maybe the right one got stretched more and got bigger. It's so hard to tell. The bottom line is the back of her head on the right is flatter, she did prefer to stay on the flat spot obviously and I did not really know to monitor or reposition her appropriately since the pediatrician did not mention it and at the time I had no reason to suspect any problems other than her nursing problems which with a good lactation consultant, pumping and herbs was corrected. But now I make the connection that her nursing, sucking motion was lacking and was not stimulating enough milk. She was nursing for hours and was still hungry and not gaining any weight until I begun pumping. Once the milk supply was established, she could nurse well on her own, it was just pouring out and she was a happy chubby little baby from there on. Again, the pediatrician had no clue to investigate nursing suction, but at least he valued nursing and had the sense to recommend a lactation consultant and not formula from a bottle. So with my daughter, her head was flat in the back on the right but bossed up in the front and flatter on the left in the front. Before I knew about plagio as a possible diagnosis I always assumed that the left side had been pushed in in the womb, but now I understand that it was the right side back that pushed in the right fontanel and pulled the left fontanel flat. At least that's the current hypothesis and I don't think anyone can argue with the logic. Anyway. we're beyond bands and helmets at this point I think, we missed that opportunity, but I read an article that actually says that plagio kids, treated or not, remain at greater risk for developmental delays. I'd love to see more research on that if anyone has any. WHat can we expect from our kids as they grow given their initial brain constrictions, regardless if they were resolved or at least aesthetically appeared to resolve on their own? Thank you all.-Elena Speech delay Hello! I have not posted in along time. My son (now 2 1/2) wore a starband for 17 weeks when he was 5 months old. He does not talk much but does understand everything that is said to him. I am wanting to know if his speech delay could be from the right side of his head being flat and the brain being compressed? Does anyone have any insight on this? Does anyone have a child this same way? Thank you! Wood Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Hi , My daughter is only 7 mos. and she babbles on so its hard to tell, but now that you say that, I DO KNOW that torticollis has a lot to do with it... My therapist told me that it affects her gut muscles and the muscles that control her tounge and thats why her tounge deviates to the right as well. Of course, I did not notice all that util I was told. But I did have lactation problems because it caused her really bad reflux and she was never able to latch on correctly. I hope this helps both you and Elena!! -Frances > > Hello! I have not posted in along time. My son (now 2 1/2) wore > a starband for 17 weeks when he was 5 months old. He does not talk much > but does understand everything that is said to him. I am wanting to > know if his speech delay could be from the right side of his head being > flat and the brain being compressed? Does anyone have any insight on > this? Does anyone have a child this same way? > Thank you! > Wood > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Frances, I never thought about the torticollis causing speech delays. (30 months) never did have problems nursing though. He says alot but we just don't always know what he is saying. He will be 3 in Feb. and the only sentence he says is "I do it.". My 6 year old was talking in 5-6 word sentences when he was 18-20 months and he does have a slight hearing loss in his right ear. He has had tubes in both ears because of repeat ear infections and goes to speech therapy 2x's a week at school. My 15 month old already puts 2 words together. I talked to our Ped. and she said that there is no conection between plagio and speech delays. He hears great so I don't think it is a hearing problem either. He is being tested by Easter Seals on the 18th to see if he can start Early Childhood after his B-day so hopefully they will be able to tell me somthing. I am thinking about having him go to speech therapy at our local grade school. I never had even heard of plagio or tort until our Ped. said "Do you know your baby has a flat spot?" I said no because I always looked at him from the front not the back. He spent 17 weeks in a STARband and made great progress. Thank you for the info. What state are you in? I am in IL. Mom to- Zachary 6 30 months Emmalee 15 monthsFrances Delgadillo <xkaramosa_gphio@...> wrote: Hi ,My daughter is only 7 mos. and she babbles on so its hard to tell, but now that you say that, I DO KNOW that torticollis has a lot to do with it... My therapist told me that it affects her gut muscles and the muscles that control her tounge and thats why her tounge deviates to the right as well. Of course, I did not notice all that util I was told. But I did have lactation problems because it caused her really bad reflux and she was never able to latch on correctly. I hope this helps both you and Elena!!-Frances >> Hello! I have not posted in along time. My son (now 2 1/2) wore > a starband for 17 weeks when he was 5 months old. He does not talk much > but does understand everything that is said to him. I am wanting to > know if his speech delay could be from the right side of his head being > flat and the brain being compressed? Does anyone have any insight on > this? Does anyone have a child this same way? > Thank you!> Wood> Check out the hottest 2008 models today at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Hi Frances, Yes, there are many unsuspected links it seems and I guess it shouldn't be that surprising the way our body works as a whole, why should we be surprised that so many things like tight neck muscle that could affect not just head position and deform skull bones, but also gut muscle and tongue etc. I think it certainly could, that's why I'm investigating on all these lists looking for possible answers because the doctors most of us go to are rarely going to have them for us. They just don't have the time to read all the journals and unless they specialize in the area somehow, a lot of the connections can be missed.Interesting, I must admit I too never thought about the gut muscles being part of it. I do know apraxics are said to have a somewhat distended abdomen if they also have hypotonia--which my daughter doesn't really have except for her tongue and it is mild, only in relaxed play and at rest watching TV does it protrude slightly. But she does have a distended tummy alright, and even though she didn't have reflux, she was a poor nurser and that should have been an indicator that her tongue was not functioning appropriately.So much to learn!! Thank you, every little piece helps us thing of new directions, new key words to search for and investigate. It really is up to us so much because I bet you 99% of the pediatricians will tell there patients there is no connection between plagio and speech delays, but I have articles in Official Journal of The American Academy of Pediatrics that clearly states that plagio babies, whether treated or not, are more at risk for developmental delays, of which speech is certainly one. It's sad, but it really is up to us. There are very few doctors and specialists out there who really know how all these things connect and hopefully we can at least find out about their research and about other similar cases from each other so that we can have some clues about what else to look for or expect. Thank you all!-Elena Re: Speech delay Im also in IL, I live in Bolingbrook. .. are you close? > > > > Hello! I have not posted in along time. My son (now 2 1/2) > wore > > a starband for 17 weeks when he was 5 months old. He does not talk > much > > but does understand everything that is said to him. I am wanting to > > know if his speech delay could be from the right side of his head > being > > flat and the brain being compressed? Does anyone have any insight on > > this? Does anyone have a child this same way? > > Thank you! > > Wood > > > > > > > > > > ------------ --------- --------- --- > Check out the hottest 2008 models today at Autos. > Don't let your dream ride pass you by. Make it a reality with Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 I live in Danvers. It is 15 miles west of Bloomington. Frances Delgadillo <xkaramosa_gphio@...> wrote: Im also in IL, I live in Bolingbrook... are you close?> >> > Hello! I have not posted in along time. My son (now 2 1/2) > wore > > a starband for 17 weeks when he was 5 months old. He does not talk > much > > but does understand everything that is said to him. I am wanting to > > know if his speech delay could be from the right side of his head > being > > flat and the brain being compressed? Does anyone have any insight on > > this? Does anyone have a child this same way? > > Thank you!> > Wood> >> > > > > > > > ---------------------------------> Check out the hottest 2008 models today at Autos.> Looking for a deal? Find great prices on flights and hotels with FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Our son is now 6 . He has had speech delays. We got EI for him when he was a baby and then he didn't need it in pre-school, thought I thought he needed articulation help in Kindergarden, he gets therapy and it has helped. Just as your experience all expressive delays no receptive. In a message dated 1/26/2009 5:24:04 P.M. Eastern Standard Time, ewieczorek@... writes: My son was diagnosed with BPES almost 2-2.5 years ago (he was ~6 mos. old). He had his first surgery when he was 1.5 years and is expected to have another surgery later this year (he'll be a litte over 3 yr. old).Overall, he has progressed quite nicely but is having speech delay. His receptive skills are superb but his expressive skills are delayed. We have him signed up for Early Intervention to help him in his communication.Was curious to hear if anyone has ever heard that speech delays have been connected with BPES? or is it just a coincidence? We are in the process of seeing specialists (ENT physicians, etc.) as well as other specialized therapists. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 My son was diagnosed with BPES almost 2-2.5 years ago (he was ~6 mos. old). He had his first surgery when he was 1.5 years and is expected to have another surgery later this year (he'll be a litte over 3 yr. old). Overall, he has progressed quite nicely but is having speech delay. His receptive skills are superb but his expressive skills are delayed. We have him signed up for Early Intervention to help him in his communication. Was curious to hear if anyone has ever heard that speech delays have been connected with BPES? or is it just a coincidence? We are in the process of seeing specialists (ENT physicians, etc.) as well as other specialized therapists. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Hi--My daughter is 20 now, but she had a long speech delay. She really wasn't talking until around 4 and her pronunciation was difficult to understand. Her speech pathologist said that part of this was her high, narrow palate and long tongue which made it difficult to form words. However, her pediatrician thought that maybe her bleph also contributed to this. She didn't really speak comprehensibly until kindergarten, but her receptive language had always been strong. In college she has done well, but does have some difficulty with cognitive comprehension. It's a bit ironic because I'm an English teacher and a natural reader/early talker. Rose B From: "ewieczorek@..." <ewieczorek@...>blepharophimosis Sent: Monday, January 26, 2009 3:58:41 PMSubject: blepharophimosis Speech Delay My son was diagnosed with BPES almost 2-2.5 years ago (he was ~6 mos. old). He had his first surgery when he was 1.5 years and is expected to have another surgery later this year (he'll be a litte over 3 yr. old).Overall, he has progressed quite nicely but is having speech delay. His receptive skills are superb but his expressive skills are delayed. We have him signed up for Early Intervention to help him in his communication.Was curious to hear if anyone has ever heard that speech delays have been connected with BPES? or is it just a coincidence? We are in the process of seeing specialists (ENT physicians, etc.) as well as other specialized therapists. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 My son, now 4 1/2 years old, still has articulation delays. His receptive and expressive are fine but he still has some problems with sounds. He did speech/early intervention. I sometimes wonder if there is a connection to BPES as well...Didn't know about the rrof of the mouth thing... Thanks. Debbie > > My son was diagnosed with BPES almost 2-2.5 years ago > (he was ~6 mos. > > old). He had his first surgery when he was 1.5 years > and is expected to > > have another surgery later this year (he'll be a > litte over 3 yr. old). > > > > Overall, he has progressed quite nicely but is having > speech delay. His > > receptive skills are superb but his expressive skills > are delayed. We > > have him signed up for Early Intervention to help him > in his > > communication. > > > > Was curious to hear if anyone has ever heard that > speech delays have > > been connected with BPES? or is it just a coincidence? > We are in the > > process of seeing specialists (ENT physicians, etc.) > as well as other > > specialized therapists. > > > > Thanks > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Hi there I found your post really interesting, because my daughter who is now 6 yrs old, also had an expressive speech delay. It took 2 years, numerous speech therapist and 2 ENT surgeons to finally make a diagnosis of why she couldn't pronounce any words properly. It turned out that she had Velo-pharyngeal Insufficiency (VSI). Basically her soft palate wasn't moving properly and all airflow was escaping through her nose when she spoke. She apparently sounded similar to how a child with a cleft palate would sound when they spoke. We taught her sign language from 21 months, which was easy to learn and went to speech therapy. But it was only when she had surgery to her palate (she was 4 yrs old), that there was any difference to her speech. She had a pharyngeal flap done. On the positive side, the surgery was a great success and she now speaks very clearly and is able to be understood when speaking on the telephone. A huge improvement to what it was! She stopped using sign language soon after the surgery and her speech continued to improve after her surgery for the next 18 months or so. She has been offered further surgery (a pharyngoplasty), but I feel the risks now outweigh the benefits because she speaks so well and I have refused the 2nd surgery for now. I asked numerous doctors, including those who are experts on BPES, if there is a link between BPES and speech problems and always got the same answer, no. So I was always led to believe that my daughter, Kirsten, had 2 separate problems. I would advise you to get an ENT opinion, 2 if necessary, to look for a physical reason why your child can't speak properly. It was so worth it for my daughter. Regards Colchester (UK) > > My son was diagnosed with BPES almost 2-2.5 years ago (he was ~6 mos. > old). He had his first surgery when he was 1.5 years and is expected to > have another surgery later this year (he'll be a litte over 3 yr. old). > > Overall, he has progressed quite nicely but is having speech delay. His > receptive skills are superb but his expressive skills are delayed. We > have him signed up for Early Intervention to help him in his > communication. > > Was curious to hear if anyone has ever heard that speech delays have > been connected with BPES? or is it just a coincidence? We are in the > process of seeing specialists (ENT physicians, etc.) as well as other > specialized therapists. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Hi That was an interesting post, still has phonic issues but it is getting better and yes I agress with your choice for the surgeries. When we first went to Guys for the diagosies, she was so impformative and told me BPES comes with a range of other 'attachments' to include breast deformalities and speech so I was quite prepared for it, (emily also has a third nipple) Take Care and ---- <parsonsfamily108@...> wrote: > Hi there > > I found your post really interesting, because my daughter who is now > 6 yrs old, also had an expressive speech delay. It took 2 years, > numerous speech therapist and 2 ENT surgeons to finally make a > diagnosis of why she couldn't pronounce any words properly. It turned > out that she had Velo-pharyngeal Insufficiency (VSI). Basically her > soft palate wasn't moving properly and all airflow was escaping > through her nose when she spoke. She apparently sounded similar to > how a child with a cleft palate would sound when they spoke. > > We taught her sign language from 21 months, which was easy to learn > and went to speech therapy. But it was only when she had surgery to > her palate (she was 4 yrs old), that there was any difference to her > speech. She had a pharyngeal flap done. > > On the positive side, the surgery was a great success and she now > speaks very clearly and is able to be understood when speaking on the > telephone. A huge improvement to what it was! She stopped using sign > language soon after the surgery and her speech continued to improve > after her surgery for the next 18 months or so. > > She has been offered further surgery (a pharyngoplasty), but I feel > the risks now outweigh the benefits because she speaks so well and I > have refused the 2nd surgery for now. > > I asked numerous doctors, including those who are experts on BPES, if > there is a link between BPES and speech problems and always got the > same answer, no. So I was always led to believe that my daughter, > Kirsten, had 2 separate problems. > > I would advise you to get an ENT opinion, 2 if necessary, to look for > a physical reason why your child can't speak properly. It was so > worth it for my daughter. > > Regards > > Colchester (UK) > > > > > > My son was diagnosed with BPES almost 2-2.5 years ago (he was ~6 > mos. > > old). He had his first surgery when he was 1.5 years and is > expected to > > have another surgery later this year (he'll be a litte over 3 yr. > old). > > > > Overall, he has progressed quite nicely but is having speech delay. > His > > receptive skills are superb but his expressive skills are delayed. > We > > have him signed up for Early Intervention to help him in his > > communication. > > > > Was curious to hear if anyone has ever heard that speech delays > have > > been connected with BPES? or is it just a coincidence? We are in > the > > process of seeing specialists (ENT physicians, etc.) as well as > other > > specialized therapists. > > > > Thanks > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Hi That was an interesting post, still has phonic issues but it is getting better and yes I agress with your choice for the surgeries. When we first went to Guys for the diagosies, she was so impformative and told me BPES comes with a range of other 'attachments' to include breast deformalities and speech so I was quite prepared for it, (emily also has a third nipple) Take Care and ---- <parsonsfamily108@...> wrote: > Hi there > > I found your post really interesting, because my daughter who is now > 6 yrs old, also had an expressive speech delay. It took 2 years, > numerous speech therapist and 2 ENT surgeons to finally make a > diagnosis of why she couldn't pronounce any words properly. It turned > out that she had Velo-pharyngeal Insufficiency (VSI). Basically her > soft palate wasn't moving properly and all airflow was escaping > through her nose when she spoke. She apparently sounded similar to > how a child with a cleft palate would sound when they spoke. > > We taught her sign language from 21 months, which was easy to learn > and went to speech therapy. But it was only when she had surgery to > her palate (she was 4 yrs old), that there was any difference to her > speech. She had a pharyngeal flap done. > > On the positive side, the surgery was a great success and she now > speaks very clearly and is able to be understood when speaking on the > telephone. A huge improvement to what it was! She stopped using sign > language soon after the surgery and her speech continued to improve > after her surgery for the next 18 months or so. > > She has been offered further surgery (a pharyngoplasty), but I feel > the risks now outweigh the benefits because she speaks so well and I > have refused the 2nd surgery for now. > > I asked numerous doctors, including those who are experts on BPES, if > there is a link between BPES and speech problems and always got the > same answer, no. So I was always led to believe that my daughter, > Kirsten, had 2 separate problems. > > I would advise you to get an ENT opinion, 2 if necessary, to look for > a physical reason why your child can't speak properly. It was so > worth it for my daughter. > > Regards > > Colchester (UK) > > > > > > My son was diagnosed with BPES almost 2-2.5 years ago (he was ~6 > mos. > > old). He had his first surgery when he was 1.5 years and is > expected to > > have another surgery later this year (he'll be a litte over 3 yr. > old). > > > > Overall, he has progressed quite nicely but is having speech delay. > His > > receptive skills are superb but his expressive skills are delayed. > We > > have him signed up for Early Intervention to help him in his > > communication. > > > > Was curious to hear if anyone has ever heard that speech delays > have > > been connected with BPES? or is it just a coincidence? We are in > the > > process of seeing specialists (ENT physicians, etc.) as well as > other > > specialized therapists. > > > > Thanks > > > > Quote Link to comment Share on other sites More sharing options...
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