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Transnasal Wiring Surgery

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Hello All,

I am looking for any feedback regarding transnasal wiring surgical

procedure. Pros or cons. Our 3 year old daughter is schedule for this

surgery in a few months with Dr. Katowitz at CHOP. I want to find out

more information on this surgery. Thank you.

Laurie

Wisconsin

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Great question. My son who will be turning 3 as well is scheduled to

have the transnasal wirring done as well with Dr.

Katowitz....probably over the next few months....any information

would be helpful.

Best,

>

> Hello All,

> I am looking for any feedback regarding transnasal wiring surgical

> procedure. Pros or cons. Our 3 year old daughter is schedule for

this

> surgery in a few months with Dr. Katowitz at CHOP. I want to find

out

> more information on this surgery. Thank you.

>

> Laurie

> Wisconsin

>

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Dr. Katowitz performed it on our son almost two years ago. The wiring, I think, has helped with the symmetry of his eyes, but it is really hard to tell.If ever you're in doubt, get a second opinion or a third. We questioned a pretty extreme procedure that Dr. Katowitz wanted to perform on our son and got a second opinion from Dr. Iliff at Hopkins. We told Dr. Katowitz that we were going to get a second opinion and he was absolutely fine with the idea. After getting the second opinion, we decided against the procedure and Dr. Katowitz was fine with that, also. I feel we made the correct and informed choice.My point being, that although getting feedback here is a good idea, it is no substitute for discussing your concerns with the surgeon. Be open and honest

with each other.Getting the second opinion from Dr. Iliff also helped because he helped point out some pros and cons that we hadn't though of and gave us some more info on what we should realistically expect.I sincerely hope the best for you and your family. MartyFrom: lzdesigngirl <lzdesign@...>blepharophimosis Sent: Wednesday, January 28, 2009 12:07:55 PMSubject: blepharophimosis Transnasal Wiring

Surgery

Hello All,

I am looking for any feedback regarding transnasal wiring surgical

procedure. Pros or cons. Our 3 year old daughter is schedule for this

surgery in a few months with Dr. Katowitz at CHOP. I want to find out

more information on this surgery. Thank you.

Laurie

Wisconsin

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Share on other sites

  • 3 weeks later...

> >

> > Dr. Katowitz performed it on our son almost two years ago.

> >

> > The wiring, I think, has helped with the symmetry of his eyes,

but

> it is really hard to tell.

> >

> > If ever you're in doubt, get a second opinion or a third. We

> questioned a pretty extreme procedure that Dr. Katowitz wanted to

> perform on our son and got a second opinion from Dr. Iliff at

> Hopkins. We told Dr. Katowitz that we were going to get a second

> opinion and he was absolutely fine with the idea. After getting the

> second opinion, we decided against the procedure and Dr. Katowitz

was

> fine with that, also. I feel we made the correct and informed

choice.

> >

> > My point being, that although getting feedback here is a good

idea,

> it is no substitute for discussing your concerns with the surgeon.

Be

> open and honest with each other.

> >

> > Getting the second opinion from Dr. Iliff also helped because he

> helped point out some pros and cons that we hadn't though of and

gave

> us some more info on what we should realistically expect.

> >

> > I sincerely hope the best for you and your family.

> >

> > Marty

> >

> >

> >

> >

> > ________________________________

> > From: lzdesigngirl <lzdesign@>

> > blepharophimosis

> > Sent: Wednesday, January 28, 2009 12:07:55 PM

> > Subject: blepharophimosis Transnasal Wiring Surgery

> >

> >

> > Hello All,

> > I am looking for any feedback regarding transnasal wiring

surgical

> > procedure. Pros or cons. Our 3 year old daughter is schedule

for

> this

> > surgery in a few months with Dr. Katowitz at CHOP. I want to

find

> out

> > more information on this surgery. Thank you.

> >

> > Laurie

> > Wisconsin

> >

>hello my name is lisa power my son has it and my boyfriend.the both

of them were done at iwk childrens in nova scotia.if you are on

facebook please add me or email me at lisapower24@... or msn

massage

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