New member & question about Deaf children

[Guest guest]

Hello everyone,

My name is Donna. I have had RA since I was 19 yrs. old. I am now

35 yrs. I had my left hip replaced when I was 26yrs. old. I have

arthritis from head to toe. I currently take prednisone,

methotrexate and enbrel. I am married with two lovely children.

One child is 7yrs. and the other is 4 yrs. My 7 yr. old was

recently diagnosed with Autoimmune inner ear disease (AIED). He is

losing his hearing. He becomes dizzy, vomits and loses his hearing

often. We are not sure if he really does have AIED because there

has never been any children diagnosed with this before. One Doctor

told me that there are false positives in the genetic test we had

done (68kD test) to confirm our suspisions of AIED. I would like to

know if anyone else has children with a progressive hearing loss or

any of the same symptoms I have discribed above. I think I passed

the autoimmune disease down to my children because of my RA.

Thank you so much and I am looking forward to being part of this RA

list.

Donna