RE: Question.. How many Lacrilube and how many use artificial tears?

[Guest guest]

I would be interested in hearing other's responses on this as well....we were

recently told that 's dry spots on his cornea may be a bit worse and

we are using more drops than before.  Our local ophthalmologist recommended the

Genteal line of products.  We've been using the nightime severe ointment at

night and the severe gel at naptime since about 8 weeks post-surgery (16 months

in total now).  After surgery we had used the Lacrilube.  Now our dr here is

recommending twice a day drops in addition to the gel and ointment we were

already doing.  We are using the moderate to severe drops for these additional

times since is awake and the gel and ointment can cause some

blurriness.  

I'm interested to hear what others are using and how their kids tolerate it.

  has no problems with his gel and ointment and I assume after a

couple more weeks the drops will be a " routine " as well and he won't mind them.

 Right now he's not so pleased with the drops. 

We were told that because has so much exposure where his lower lid

droops (euryblepharon) that tears and lubrication can stream out of his eye

rather quickly and this may be why we may be facing more dryness than other

cases of BPES. Any one else been given that info?

--Anne Weber-- Chicago, IL USA

From: themamacatt <themamacatt@...>

Subject: blepharophimosis Question.. How many Lacrilube and how many use

artificial tears?

blepharophimosis

Date: Sunday, June 28, 2009, 12:38 AM

We were given Lacrilube and told to use it up to 4 weeks after Catalina's

first surgery when she was 8 weeks old. We didn't use anything after that, until

our opthamologist said artificial tears about 2 months ago. Twice a day, we do

the artificial tears. I'd like to know how many of yall rely on lacrilube and

how many use artificial tears. And for those who have used both, which do you

prefer? Which does your baby (I call all children babies) prefer? Which does

your opthamologist prefer to recommend?

Ann

Denver, Colorado

[Guest guest]

Hi

If it helps, this is my experience.

I use Lacrilube at night, every night. I put about a ½ inch “strip”

on my finger, and apply to the each eye  (in other words, ½ inch per eye).

I cannot close my eyes when I am asleep – so it is

essential for me to do this.  If I forget, or nod off during the day, there is

a pretty good chance that I will wake up in considerable discomfort.  In which

case I apply the lacrilube, and bury my head in a pillow – so there is

absolutely no light.  About 2 hours later, I will be ok, but a bit sore.

I was offered daytime eye drops – but found I did not like

them at all. The first preparation I tried irritated me – it felt “salty”. 

I was told that it is possible to have a preparation that does not have any

preservatives, but then once opened, I’d have to keep it in the fridge. 

This preparation was too cold. In any case – both were hard to

self-administer  … so no use to me.

I just purchased the spray that I wrote to Dr Hardy about

… and tried it.  It felt refreshing and fine. Next time I go out I’ll

spray it on one eye only – and see if there is a noticeable difference. 

What I like about it is that you can use it over make up  (or even under make

up).

Please remember Dr Hardy’s advice …

Shireen Mohandes

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of anrweber@...

Sent: 27 June 2009 17:09

blepharophimosis

Subject: Re: blepharophimosis Question.. How many Lacrilube and how

many use artificial tears?

I would be interested in hearing other's responses on this as well....we were

recently told that 's dry spots on his cornea may be a bit worse and

we are using more drops than before. Our local ophthalmologist

recommended the Genteal line of products. We've been using the nightime

severe ointment at night and the severe gel at naptime since about 8 weeks

post-surgery (16 months in total now). After surgery we had used the

Lacrilube. Now our dr here is recommending twice a day drops in addition

to the gel and ointment we were already doing. We are using the moderate

to severe drops for these additional times since is awake and the

gel and ointment can cause some blurriness.

I'm interested to hear what others are using and how their kids tolerate it.

has no problems with his gel and ointment and I assume after

a couple more weeks the drops will be a " routine " as well and he

won't mind them. Right now he's not so pleased with the drops.

We were told that because has so much exposure where his lower lid

droops (euryblepharon) that tears and lubrication can stream out of his eye

rather quickly and this may be why we may be facing more dryness than other

cases of BPES. Any one else been given that info?

--Anne Weber-- Chicago, IL USA

--- On Sun, 6/28/09, themamacatt <themamacatt@...>

wrote:

From: themamacatt <themamacatt@...>

Subject: blepharophimosis Question.. How many Lacrilube and how many use

artificial tears?

blepharophimosis

Date: Sunday, June 28, 2009, 12:38 AM

We were given Lacrilube and told to use it up to 4 weeks after Catalina's first

surgery when she was 8 weeks old. We didn't use anything after that, until our

opthamologist said artificial tears about 2 months ago. Twice a day, we do the

artificial tears. I'd like to know how many of yall rely on lacrilube and how

many use artificial tears. And for those who have used both, which do you

prefer? Which does your baby (I call all children babies) prefer? Which does

your opthamologist prefer to recommend?

Ann

Denver, Colorado

[Guest guest]

Does Catalina sleep with her eyes open? Mine were open and as a result I

developed cornea issues at age 5 or 6. My parents were not told to use an eye

ointment every night. I'd check with a doc but if the eyes are open I'd

recommend a very viscous material such as Lacrilube. One thing to keep in mind.

Because it is petroleum based I had issues with the anti glare film on my

glasses. It comes out all day long and gets on your eye lashes. Now I use

something whcih needs to be applied a couple times a night called GenTeal for

severe dry eyes. Not as good as Lacrilube for all night coverage but good.

-Chris

>

> We were given Lacrilube and told to use it up to 4 weeks after Catalina's

first surgery when she was 8 weeks old. We didn't use anything after that, until

our opthamologist said artificial tears about 2 months ago. Twice a day, we do

the artificial tears. I'd like to know how many of yall rely on lacrilube and

how many use artificial tears. And for those who have used both, which do you

prefer? Which does your baby (I call all children babies) prefer? Which does

your opthamologist prefer to recommend?

>

> Ann

> Denver, Colorado

>

[Guest guest]

Chris:Our son (on the advice of our ophthalmologist) also uses Genteal for Severe Dry Eyes.  At his last appointment there was concern about dry spots on his corneas although our dr could no say whether there were MORE dry spots or whether because was being so cooperative that day (he's 2 years old) he just got a very good look.  We will monitor it closely and hope that it doesn't worsen by his next appointment in six months.  As with every case being a little different, in addition to all of the other characteristics of BPES, 's lower lids droop downward making drops, gels and ointments and his own tears fall out easily.  His surgeon tried to address this when he had his slings put in at  10 months then again at 14 months but the lower lids still droop downward considerably.  Do your lower lids droop at

all?There is a Genteal product (maybe you are already using it) that is for night time use that is an ointment (maybe similar to Lacrilube?) - we use the gel and/or drops during the day and the Genteal PM ointment in the evening.  --Anne Weber--('s mom) Chicago, IL, USAFrom: cdoherty77 <cdoherty77@...>Subject: blepharophimosis Re: Question.. How many Lacrilube and how many use artificial tears?blepharophimosis Date: Thursday, July 30, 2009, 8:46 AM

 

Does Catalina sleep with her eyes open? Mine were open and as a result I developed cornea issues at age 5 or 6. My parents were not told to use an eye ointment every night. I'd check with a doc but if the eyes are open I'd recommend a very viscous material such as Lacrilube. One thing to keep in mind. Because it is petroleum based I had issues with the anti glare film on my glasses. It comes out all day long and gets on your eye lashes. Now I use something whcih needs to be applied a couple times a night called GenTeal for severe dry eyes. Not as good as Lacrilube for all night coverage but good.

-Chris

>

> We were given Lacrilube and told to use it up to 4 weeks after Catalina's first surgery when she was 8 weeks old. We didn't use anything after that, until our opthamologist said artificial tears about 2 months ago. Twice a day, we do the artificial tears. I'd like to know how many of yall rely on lacrilube and how many use artificial tears. And for those who have used both, which do you prefer? Which does your baby (I call all children babies) prefer? Which does your opthamologist prefer to recommend?

>

> Ann

> Denver, Colorado

>

[Guest guest]

Sorry it's taken me so long to get back to you (computer issues). Catalina's eyes close completely (lucky her!) so she does sleep with them completely closed. I will definitely mention both to her doc when we go next month. She fought the drops at first then started taking to them, but her in the last couple weeks she has started fighting them again, and if something else might be easier or more comfortable for her, I would definitely like to explore that option.

Thanks!

Ann

Denver, Colorado

From: cdoherty77 <cdoherty77@...>Subject: blepharophimosis Re: Question.. How many Lacrilube and how many use artificial tears?blepharophimosis Date: Wednesday, July 29, 2009, 1:46 PM

Does Catalina sleep with her eyes open? Mine were open and as a result I developed cornea issues at age 5 or 6. My parents were not told to use an eye ointment every night. I'd check with a doc but if the eyes are open I'd recommend a very viscous material such as Lacrilube. One thing to keep in mind. Because it is petroleum based I had issues with the anti glare film on my glasses. It comes out all day long and gets on your eye lashes. Now I use something whcih needs to be applied a couple times a night called GenTeal for severe dry eyes. Not as good as Lacrilube for all night coverage but good.-Chris>> We were given Lacrilube and told to use it up to 4 weeks

after Catalina's first surgery when she was 8 weeks old. We didn't use anything after that, until our opthamologist said artificial tears about 2 months ago. Twice a day, we do the artificial tears. I'd like to know how many of yall rely on lacrilube and how many use artificial tears. And for those who have used both, which do you prefer? Which does your baby (I call all children babies) prefer? Which does your opthamologist prefer to recommend?> > Ann> Denver, Colorado>

[Guest guest]

The Genteal PM ointment is the same as lacrilube. Mineral and petroleum oil.

My lower lids do not droop but my tear production is very limited so my eyes are

always dry but not as bad as some cases I have read about. You are right in

that each case is different. For me, the Genteal feels better in my eye

compared to the Lacrilube. I find that sometimes there is a very small

irratation with the lac. But, the benefits of using the Lac. far outweigh the

discomfort. That feeling diminishes within minutes for me. As I stated below,

the Lac. lasts through out the night much better than the GenTeal. I would use

the Lac. but the trade off for me is the GenTeal is more glasses and contact

friendly. Does have Myopia (nearsightedness) at this age?

-Chris

Boston, MA

>

> From: cdoherty77 <cdoherty77@...>

> Subject: blepharophimosis Re: Question.. How many Lacrilube and how many use

artificial tears?

> blepharophimosis

> Date: Thursday, July 30, 2009, 8:46 AM

>

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> Does Catalina sleep with her eyes open? Mine were open and

as a result I developed cornea issues at age 5 or 6. My parents were not told to

use an eye ointment every night. I'd check with a doc but if the eyes are open

I'd recommend a very viscous material such as Lacrilube. One thing to keep in

mind. Because it is petroleum based I had issues with the anti glare film on my

glasses. It comes out all day long and gets on your eye lashes. Now I use

something whcih needs to be applied a couple times a night called GenTeal for

severe dry eyes. Not as good as Lacrilube for all night coverage but good.

>

>

>

> -Chris

>

>

>

> --- In blepharophimosis, " themamacatt " <themamacatt@ ...>

wrote:

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> >

>

> > We were given Lacrilube and told to use it up to 4 weeks after Catalina's

first surgery when she was 8 weeks old. We didn't use anything after that, until

our opthamologist said artificial tears about 2 months ago. Twice a day, we do

the artificial tears. I'd like to know how many of yall rely on lacrilube and

how many use artificial tears. And for those who have used both, which do you

prefer? Which does your baby (I call all children babies) prefer? Which does

your opthamologist prefer to recommend?

>

> >

>

> > Ann

>

> > Denver, Colorado

>

> >

>

[Guest guest]

good to hear!! The eyes closing at night is a hiuge plus. I wish mine did.

One thought, try the drops in your eyes. See how they feel. Some drops sting

my eyes, some do not. For me, some drops, after they dry, cause a film on my

eye, making me feel worse than before I used them. I actually like plain saline

solution to rinse my eyes out with. I do not use eye drops as I haven't found

any that really give me the bang for the buck. But I am 47 and don't have eyes

as dry as some.

-Chris

>

>

> From: cdoherty77 <cdoherty77@...>

> Subject: blepharophimosis Re: Question.. How many Lacrilube and how many use

artificial tears?

> blepharophimosis

> Date: Wednesday, July 29, 2009, 1:46 PM

>

>

>  

>

>

>

> Does Catalina sleep with her eyes open? Mine were open and as a result I

developed cornea issues at age 5 or 6. My parents were not told to use an eye

ointment every night. I'd check with a doc but if the eyes are open I'd

recommend a very viscous material such as Lacrilube. One thing to keep in mind.

Because it is petroleum based I had issues with the anti glare film on my

glasses. It comes out all day long and gets on your eye lashes. Now I use

something whcih needs to be applied a couple times a night called GenTeal for

severe dry eyes. Not as good as Lacrilube for all night coverage but good.

>

> -Chris

>

> --- In blepharophimosis, " themamacatt " <themamacatt@ ...>

wrote:

> >

> > We were given Lacrilube and told to use it up to 4 weeks after Catalina's

first surgery when she was 8 weeks old. We didn't use anything after that, until

our opthamologist said artificial tears about 2 months ago. Twice a day, we do

the artificial tears. I'd like to know how many of yall rely on lacrilube and

how many use artificial tears. And for those who have used both, which do you

prefer? Which does your baby (I call all children babies) prefer? Which does

your opthamologist prefer to recommend?

> >

> > Ann

> > Denver, Colorado

> >

>