Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 HI OUR SON WAS BORN ALMOST 3 WEEKS AGO AND WHEN HE WAS BORN I NOTICED HE COULDNT OPEN HIS EYES.I MENTIONED IT TO THE NURSES IN SCBU AS HE4 HAD SOME TROUBLE BREATHING FROM BIRTH BUT THEY IGNORED ME.AFTER 3 DAYS WE WERE ALLOWED TO GO HOME AND I THOUGHT MAYBE WE D NOTICE A DIFFERENCE IN HIS EYES HOWEVER THERE WAS NO CHANGE.IN THE END I HAD TO ARGUE TO SEE SOMEONE AS THEY KEPT TRYING TO TELL ME HE HAD STICKY EYES WITHOUT EVEN SEEING HIM.THANKFULLY JACK ISNT MY FIRST BABY AS I WOULD PROBABLY LEFT IT ANOTHER WEEK OR SO BUT AS HES MY SECOND CHILD I KNEW HE SHOULD BE USING HIS EYES EVEN AT A FEW DAYS OLD.ANYWAY THEY READMITTED US TO HOSPITAL AND WE SAW A PAED OPTHAMOLOGIST AND AFTER 2HRS OF TESTS TO HIS EYES THEY DECIDED HES EYES ARE FINE ITS JUST THE EYELIDS.THE OPTHAMOLOGIST REFFERED US TO DR UDDIN AT MOORFIELDS WHO WE SAW WHEN JACK WAS 9 DAYS OLD.HE SEEMS TO THINK IT IS BLEPHAROPHIMOSIS AND WANTS TO SEDND JACK TO THE GENETIC TESTING CLINIC TO BE SURE THE PAED OPTHAMOLOGIST DIDNT THINKIT WAS.WE ARE GOING BACK TO SEE DR UDDIN FRIDAY HAVENT HAD THE GENETIC TEST DONE YET AND ARE REALLY AFRAID AND CONFUSED.WE HAVE NO HISTORY OF THIS CONDITION IN EITHER SIDE OF OUR FAMILY.DOES ANYONE ELSE HAVE ANY EXPERIENCES LIKE THIS.I PUT SOME PICTURES UP OF JACK FOR ALL TO SEE MY BEAUTIFUL BOY.ITS JUST SO WORRYING.THEYVE MENTIONED ASURGERY BUT WE DONT KNOW WHAT ITL ENTAIL AND WHEN THEY L DO IT.THEY SAID NORMALLY AT 4 TO 6 MONTHS BUT AS HIS EYES ONLY OPEN ABOUT 2MM EACH AND NOT AT THE SAME TIME THEY SAID THEY MAY DO IUT AT 6 WEEKS OR SO.THANKS CINDY Quote Link to comment Share on other sites More sharing options...
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