Hello all! New member

[Guest guest]

Hi there all! Hope all is well.

Payton Colette was born on June 21, 2008. I knew by Sunday that

something was wrong. I had said " Why aren't her eyes opening yet? " .

Most everyone said that " some babies take awhile to open their eyes " .

By Monday when my pediatrician came to see us I mentioned it to her.

She said wait a day. :0) I did, but still knew that she wasn't going

to open her eyes. She did say that it was Bleph before I left the

hospital, but I didn't know it was a " condition " .

The ophthalmologist that saw us on Tuesday as a referral from our

pediatrician said she just had extra skin that needed to be opened. So

I thought great. Simple. That particular week I was at home without a

computer and a brand new baby, so I thought I'd just leave it at

simple and not research it. The ophthalmologist wanted to see Payton

in two weeks to give her eyes time to adjust (and to just make sure

they wouldn't open on their own). Then informed me at the appointment

that it was a condition that would require " slings " (which quite

frankly scared me to death). Not so simple it seemed. We then started

our internet search and began learning about Blepharophimosis.

Since then (June 9th) we have become more informed, have see the

geneticist and have been given the options for surgery from our

surgeon. We have our surgery scheduled for August 12th. Payton will be

7 weeks old. I have posted a picture of my angel for you all to see.

We are doing the surgery this early because Payton's eyes were rarely

open the for the first three weeks. Since then they are opening wider

and more often, but not enough to make sure they progress at a

reasonable rate.

I do have questions for someone who might of had an infant during

their surgery if you would want to write me. I'm not sure what to

expect from her and how she might be feeling after the surgery. (we

are just doing the sling surgery and the opening of the width will

come later). Sorry, I'm not proficient on the names of all the

procedures yet.

Thanks all for reading and wish us luck. This is a great site and has

been most helpful.

and Payton

[Guest guest]

Hi nicole and payton, my son Lynden was 5 weeks old when he had his first surgery.. i was sooo scared, if you want i can email you and tell you all that occured, i too am a nurse so that helped a bit... the good thing is here there are alot of different people etc to answer questions.. where abouts are you from ?Tonikka and Lynden Edmonton CanadaOn 30-Jul-08, at 10:10 AM, thenicolelahaie wrote:Hi there all! Hope all is well. Payton Colette was born on June 21, 2008. I knew by Sunday thatsomething was wrong. I had said "Why aren't her eyes opening yet?".Most everyone said that "some babies take awhile to open their eyes".By Monday when my pediatrician came to see us I mentioned it to her.She said wait a day. :0) I did, but still knew that she wasn't goingto open her eyes. She did say that it was Bleph before I left thehospital, but I didn't know it was a "condition". The ophthalmologist that saw us on Tuesday as a referral from ourpediatrician said she just had extra skin that needed to be opened. SoI thought great. Simple. That particular week I was at home without acomputer and a brand new baby, so I thought I'd just leave it atsimple and not research it. The ophthalmologist wanted to see Paytonin two weeks to give her eyes time to adjust (and to just make surethey wouldn't open on their own). Then informed me at the appointmentthat it was a condition that would require "slings" (which quitefrankly scared me to death). Not so simple it seemed. We then startedour internet search and began learning about Blepharophimosis. Since then (June 9th) we have become more informed, have see thegeneticist and have been given the options for surgery from oursurgeon. We have our surgery scheduled for August 12th. Payton will be7 weeks old. I have posted a picture of my angel for you all to see.We are doing the surgery this early because Payton's eyes were rarelyopen the for the first three weeks. Since then they are opening widerand more often, but not enough to make sure they progress at areasonable rate. I do have questions for someone who might of had an infant duringtheir surgery if you would want to write me. I'm not sure what toexpect from her and how she might be feeling after the surgery. (weare just doing the sling surgery and the opening of the width willcome later). Sorry, I'm not proficient on the names of all theprocedures yet. Thanks all for reading and wish us luck. This is a great site and hasbeen most helpful.  and Payton Tonikka & ChrisLynden,Hunter,Avery