Re: College Students/Teens with BPES

[Guest guest]

Hey , I am not making light of it but dont feel so alone because EVERYONE, I mean everyone goes through feeling alone and separate, you are so strong and awesome from what you write, I wish the world did not put so much importance in looks, it is sick actually how much our physical appearance means in this world. But really, really if you look at real people and real work, and real kindness and real achievement it has nothing to do with the way we look. Get sad for a bit but keep on going on toward what is real.

In a message dated 11/17/2009 6:46:27 P.M. Eastern Standard Time, kjk6126@... writes:

Hi, my name is and I am 21 years old and I have BPES. My condition is very extreme. For pictures, look in the album entitled "Kel's Pics". I was born with a rare form of blepharophimosis or BPES. This means that I was born with no eyelids, tear ducts, or skin around my eyes. My doctors at the time, feared for my corneas which were exposed. However, the delay in surgery damaged my slight and rendered my one eye uncorrectable. I don't fret about that though, because I just thank them for eventually performing the surgery that prevented me from becoming blind. My doctors grafted skin from my shoulders around my eyes.Anyways, lately I have been getting down about feeling isolated and like a freak. I have a hard time gaining acceptance from my peers and the isolation is becoming unbearable. Don't even get me started on the dating scene. I have tried meeting guys in person and online and no matter which way I go about it, they all lose interest once my secret comes out or my sunglasses come off.I was just hopping to maybe find some people my age with BPES to talk to because I feel so alone with it. I'm the only person in my family who has it. Just me.