RE: A question for women with BPES

[Guest guest]

Hi

This group has more than 700 members. Amongst all the people,

and all the different situations, there are women who can have children, and indeed

go on to have children. I am not sure how that will help you just now. Probably

what might help is for you to ask if any of your husband’s sisters have

had genetic counselling carried out, or any tests. These things are private

matters, and maybe this information is not available to you (in other words

perhaps they may not want to share). If this is the case, you may like to

ask your doctor to refer you to a geneticist with knowledge of this subject.

This link will have some information for you:

http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene & part=bpes

and your geneticist will be able to use it as a basis for research.

I hope this helps.

Shireen Mohandes

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of

Sent: 07 November 2009 21:12

blepharophimosis

Subject: blepharophimosis A question for women with BPES

Do any woman with BPES have kids? I have 3

girls with BPES and I know it is possible that they will be inferfertile and I

was wondering if there are any women here who has BPES and still have kids or

if they are infertile. I am planning to do genetic testing as soon as I can so

I can know for sure but my husband has 3 sisters with BPES and none have kids

and they been trying for a baby well 2 of them.