BPES will not define who you are...

June 3, 2009

Hi group,

Let me first say finding this group has been the greatest discovery on the

internet I have found. I have spoke to wonderful people and have found great

comfort in knowing that I am not the only one who battles with BPES.

This is for everyone, wheather you are affected with BPES or have children

affected or family. Growing up is the HARDEST part of BPES. The surgeries, the

teasing, the explaining when asked " what's wrong with your eyes? " I felt gorwing

up, very isolated, however, I never was alone. I ended up top of my class, and

voted most popular in my high school year book. That goes to show that BPES will

not impact your studies or friendships. I had many friends, I had a steady

boyfriends. Not once did BPES ever define me, because I wouldn't let it.

I have found, in my 30 years of life, kids can be cruel, no matter what you are

ailed with, short, fat, tall, skinny, BPES ... children will find anything to

pick on you for. I have found that adults, are curious, they just want to know

what is so different about the eyes. Knowledge is power. I now explain it

whenever I am asked, or get those looks of curiousity.

I have been blessed with a wonderful life, despite my BPES. I am a smart, happy,

beautiful soul and my outer apperance should have no effect on that.

I have gone on in school to get my Master's Degree in Business and before

becoming a stay at home mother (we adopted), I was running a legal department in

a fortune 500 company, overseeing 155 employees. BPES never once impacted my

career goals.

This post is not to boast, it is merely to give people hope. I know many people

are struggling with the obsticles their children or themselves will or have

faced. Take comfort in knowing that BPES is a part of what makes us individuals

and unique. I wear my eyes proudly. I know I stick out in a crowd, but that is

because of the person I am, not because of BPES.

God bless.

USA - Massachusetts

3 surgeries (2 at Boston's Children's Hospital and one at Boston's Mass Eye and

Ear)

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