Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 Hi everyone! My name is Ann. My youngest daughter Catalina was born with BPES. She is now 22 months old. When she was first born, the doctors at the hospital had no clue what was wrong with her eyes, so they just told us that she had micropthalmia and sent us home. Let me tell you, a word written on a piece of sticky note and internet access are not always a good thing! 2 weeks later, we found out that it was actually BPES. When she was just under 2 months, she had her first surgery. Later that day when I was holding her, she opened her eyes and smiled at me for the first time. LOL I'm kind of a sap, I still cry everytime I think about that day! Now she will be 22 months old on the 3rd. She is doing great! She is extremely smart and very active and social. I never heard of BPES before she was born. Until today, I've never met or heard from anyone else who had it that didn't also have cerebal palsy or downs syndrome. I've always known there were other people out there with it, just haven't had the pleasure of meeting anyone. I just want to say, I'm so happy to have found yall! I'll post pics of Catalina in a few minutes. Quote Link to comment Share on other sites More sharing options...
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