Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 > > Hi All~ > > My son was born with blepharophimosis...it was so hard to digest this because I never heard of it and there is really not much information on this disease.....so you can just imagine what the first year for us must have been...it felt like we are at the hospital every other day meeting with all the different specialists that will be involved in my child's life. He had his first surgery on 12/18/2009 and his doctor was very pleased with it....my challenge now is its difficult watching him struggle to begin walking...I was wondering if there is anyone out there that could give me some tips or pointers on how to help my little angel out. I have giving him a little chair which he pushed again while he is walking but I don't want he to depend on this all the time. > > Any help or suggestion would greatly be appreciated... > just be patient...my 1 year old just started taking baby steps...i'm 42 and several in my family have bleph...never affected our learning to walk...just treat him like any other baby...good luck Quote Link to comment Share on other sites More sharing options...
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