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Rainey: prn means whenever needed (of course don't abuse, I won;t take it

earlier than every (q) 4 hrs. I would give anything to get the pred down. I

started at 60 mgs and stayed there for a year. My vision is shot and I can't

understand why we have to take a steroid when we know the effects it has on

our bones. I already have some bone loss and am on Evista along with calcium.

I am not familiar with Arva. Is it an anti-inflammatory or what? I have an

appt on 3/25 and might ask the dr about that one. I know what you mean about

keeping your hands moving. I try to crochet just to keep my hands limber.

It is difficult on some days but I do it anyway. It's funny I can do that

and type better than I can hold a coffee cup or turn on the water.

I'm at the point where I am willing to try anything, they say no pain, no

gain of course moderation is the key. I have been doing exercises (low

impact) for 15 min each day for the past 2 weeks. I follow the tape and do

what I can, i figure every little bit helps, I just guard my knees real good.

thanks for the shoulder. This group really is special. I'm so thankful my

daughter in law gave ;us this computer for Christmas. It has been a blessing.

Jan

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  • 3 months later...
Guest guest

Thanks for the input. The drug company said the assistance program is only

for someone who does not have any insurance, according to my drs. office. I

have a call into the dr regarding the " new knee " .

by the way, did I miss a post, what is the latest on ? I kept my candle

burning all day for him.

Jan

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: Thanks for the encouragement. I am so concerned about both and

now . I am going to keep my candles burning all weekend and sending a

lot of prayers up for them.

I am going to call the drug company myself regarding assistance. I have the

number from before. Wish me luck.

Jan

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Jan,

The test went fine yesterday. It didn't take as long as they thought it

would. The nasty tasting drink seem to go right through . He did throw

up and did get a little grumpy but came through it fine. They were shocked it

didn't take more then 2 hours to do the whole test. They said that they would

send the results to 's GI and they will call me. If i don't hear from

them by next wed. i will call them. I don't feel comfortable not knowing

anything. I hate waiting cause i will be a basket case worring so much.

is doing fine this morning and has been out playing but he sure is pooping

alot.

shelly

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Good luck, Jan! Please let us know what they say.

----- Original Message -----

From: <burnettaljanb@...>

< >

Sent: Friday, June 01, 2001 11:45 AM

Subject: Re: [ ] Jan

> : Thanks for the encouragement. I am so concerned about both

and

> now . I am going to keep my candles burning all weekend and sending

a

> lot of prayers up for them.

>

> I am going to call the drug company myself regarding assistance. I have

the

> number from before. Wish me luck.

>

> Jan

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: THanks for the update. Refresh my memory , how old is ? I am

so sorry he was so sick but hopefully, the tests results will bring good

news. I know what you mean about waiting, especially when a child is

involved. I will continue to pray for him. He is a very strong young man

and you should be and are, I'm sure, very proud of him. Keep us posted.

Blessings,

Jan

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Guest guest

Jan,

is 12 yrs old. he is told young to most things and to old to do the

other things. well thats how he feels right now. On top of everything he is

sailing right into puberty with a bang.

iam very proud of jesse he is braver then most people i know. i tell him that

often. he likes to hear that.

thanks,

shelly

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  • 3 weeks later...
  • 2 weeks later...
Guest guest

: Glad you are feeling better. I know what you mean by a fibro fog,

we all have it from time to time. I am a little better today. The pain from

the pleurisy is not as bad and my cough seems to be better. I am so very

weak, all I can do is rest, I have no energy. This has really taken a toll.

I go for my complete physical thursday so hopefully no more problems will

arise. Have a great weekend.

Jan

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Guest guest

Thanks Jan, you too!

> : Glad you are feeling better. I know what you mean by a

fibro fog,

> we all have it from time to time. I am a little better today. The

pain from

> the pleurisy is not as bad and my cough seems to be better. I am so

very

> weak, all I can do is rest, I have no energy. This has really taken

a toll.

> I go for my complete physical thursday so hopefully no more problems

will

> arise. Have a great weekend.

>

> Jan

>

>

> [Non-text portions of this message have been rem

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  • 5 months later...

: My husband was seriously ill, seemed like everything happened at once

and the time flew by. His b/p is under control, pneumonia gone, and he now

has a CPAP machine to wear when he sleeps so he no longer quits breathing.

As for me, I am now on a walker (that sucks). The dr. prescribed Arava and I

am not able to get it until the first of the month. I sure hope it helps, my

body is so wracked with pain. He wouldn't increase the mtx, said 15mg. weekly

was enough. Guess I will break down and get the right knee replaced after the

first of the year, then work on the hips and ankles. I sure ought to set off

the airport machines when they are done.

Anyway, sorry I haven't been online. I think of all of you often and wonder

how you are. Are you doing okay? Hope this Christmas will be great for you.

I know after a divorce it can be tough. I pray it will be a blessed one for

you and yours.

The Lord has been so good to me, I have much to be thankful for as we all do.

We will be going to my daughter's house for dinner so I don't have to worry

about everyone coming here. Seems funny though, all 19 grandkids and parents,

dogs, etc. always pile in here Christmas Day. The kids are so big now, there

isn't enough room in our little 2 bedroom apt.

, I just want you to know I appreciate all your support. This group is so

special and wish each and everyone a wonderful, pain free Christmas and New

Year of Good Health and God's Blessings.

Merry Christmas.

Jan

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  • 7 months later...

Oh, Jan, you will most certainly be in my prayers, as will your daughter.

You see a rheumy, right? Maybe you could go to your PCP instead if you

continue to have problems.

I'm so sorry you are hurting. The lack of sleep seems to exacerbate the

pain, so it's a vicious circle.

Sending love and hugs your way,

Carol

[ ] Nasty Neighbor Uptdate

I don't know if any of you have been following the high profile case here in

CA of the neighbor who was on trial for kidnapping and murdering a

neigboring child. The child was le Van Dam and the accused was

Westerfield. The verdict came in a couple of hours ago and Westerfield was

found guilty on all counts. It's good to have another one off the street. I

believe le's disappearance for a month before being discovered was one

of the cementing nails to get the Amber Alert in motion.

On another note, I have not had much sleep since Saturday night and do not

get to see the doctor until September 4th as she is on vacation. I am so

tired and hurt all the time now. I've been metally alert but just so

fatigued. I am so far behind in reading all my emails that it will take a

week or more to catch up as I am goning to my daughter's this weekend and

her computer is down. I really need your support and prayers right now both

for getting some sleep and for some problems my daughter is being faced

with.

Will close for now. Hugs, prayers, and happy thoughts to you all. Jan in

CA +/:=)

---------------------------------

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Hi Jan:

My son was born almost 3 months premature too and we

went through the hospitalizations for pneumonias, he

was in and out of Torrance Memorial or Long Beach

Memorial quite a few times. My son's surgery at San

Diego Children's Hospital was to repair his

tracheostomy - they took a graft from one of his ribs

and made him a new trachea. He was in a medically

induced coma for a week so the Mc House was

really a great place to stay. Just down the street

from the hospital within walking distance - my husband

and I took turns sleeping and staying with Chip. By

the way, the surgery went great - the doctor was an

absolute miracle worker. How is your daughter doing

now? Chip is 18, 19 in December, and is a great young

man - very sensitive and caring, and is thinking about

being either a child psychologist or forensic

psychologist. He's still small, only 5'3 " , but as he

likes to say, he is " buff " , he's got that six-pack

stuff going on. I think that going through all he did

as a child really gave him a strong foundation for

himself.

We are south of Los Angeles, low desert actually, down

near Lake Elsinore and Temecula. Hot here - about 100

daily lately - and dry, dry, dry. Hope we get some

rain this winter - we really need it.

Kathe in CA

__________________________________________________

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  • 3 weeks later...

Thanks, Tess. Constipation is a problem I don't have(unless you want to count

the 24 hrs periods on occasion that I don't find my way to the bathroom. But

the pain and bloating goes on all the time. I was just telling myself at the

beginning of the week that my stomach was looking flatter than it has in a long

time and now it's back up there again. Even as " rubenesque " as I am, I really

never had a stomach that wasn't flat until the this thing started a couple of

years ago. Hope this hasn't been MTN info. I appreciate you and your being

able to help in all situations. I have so much to learn from you all. My love

and hugs to you with a prayer for a happy, painfree day for you. Jan in CA

+/:=)

Tess_St_Pierre@... wrote:Hi Jan...I have IBS. I think it could affect

your weight like that.

Part of the problem with IBS is an imbalance of fluids in the

intestines, either too much (diarrhea) or not enough (constipation).

Either way it can cause a great deal of bloating....to say nothing of

the horrible spasms and cramps. I hope you feel better soon!

Love & Hugs.....

Tess

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Thank you for your sweet thoughts. It means a lot to have someone care about

you. I have been enjoying Stacey's narrative about the butterfly to be and your

entrallment with it. It is such a touching thing to do for someone and to be

able to be so descriptive about it. It make a person feel they are really there

watching the new, transformed life take hold. Makes me think of you as you

continue to work toward your ultimate goal of being transformed into a mother.

I am following all you are doing even though I don't comment on it as I should

but I know how important it is to be able to have and to hold a child of your

own. I know from reaching a goal to be able to adopt at 30 when I was told that

I'd probably never get pregnant or carry it beyond 6 -8 weeks to being able to

finally get pregnant 4 years later even though I only carried her 6 months. It

is the most wonderful feeling in the world to have a child you can nurture and

give the promise of a wonderful life ahead. If I had never been able to adopt

or even have a child, I probably would have gone into foster care. But Heaven

intervened and gave me my dream. I am sure it will happen to you, too. Good

night again. Gentle hugs, prayers, and positive thoughts are coming your way

tonight. Jan in CA +/:=)

Heidi Steppe-Hoareau wrote:(((((((((((((Jan)))))))))))))))

It sounds like you need a few hugs, sorry you are so tired, I hope you

managed to get some rest.

I would maybe consider a sick day too to avoid those stairs, it’s only going

to make things worse unnecessarily.

((((((((((Extra Hugs))))))))))))

Heidi

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  • 3 weeks later...

Good Morning, Heidi (or should I say Good Night?)

Richie is doing fine but has a lot to work out because of what he has been

through. My daughter, Jeanna, and I met with his counselor Monday night.

Jeanna outlined everything she is planning to do to work toward having him back

with her. Only thing is she wants him back in about 6 weeks. The counselor

told her that it would be a doable situation if she continues to make her

strides forward and will continue the positive changes I've made in his life as

far as behavioral modification. He is to continue his counseling up there, stay

in Boy Scouts, find a guitar teacher, stay in martial arts, and continue the

behavior modification charts(positive reward system for enforcing new habits).

And hopefully, she will allow him to go to church as she stopped that completely

when he was up there from the 2 weeks after Easter until he came back to me the

beginning of the 2nd week of July. Supposedly, it was her husband that refused

to let him go to church.........we'll see. She has filed the divorce papers as

of last Friday has not seen him since though he has been hasseling her by phone

on her duty station. She has given him permission to have his son every other

weekend here in San Diego, over every Thankgiving week (usually the last week or

so of November) as that is when her ex's birthday falls, and every other

Christmas. She will get him on the New Year's day holiday as that is her

birthday. He will absolutely no right to see Richie and will be kept from ever

seeing him again. Considering the damage he has done to Richie that is just a

slap on the hands. One good thing out of all this is the fact Jeanna is now

open to a meeting with her ex-husband to see if things can be worked out for

Richie to see him(she has been vementally(sp) opposed to letting him see him the

past 4 years, I think due to her current husband). Richie has a vivid memory of

his " own " daddy as he calls him and their relationship was good until the ban on

seeing him. That is part of his internal pain and frustration fueled by " step "

telling him all kinds of lies such as " Your dad doesn't ever want to see you

because you're a bad kid and you are worthless " . Richie has so much to work out

to gain his self-esteem back. Thank you for keeping him in your prayers. It's

going to take a lot of prayers to get him back to happy go lucky child he once

was. A child is such a wonderful gift of God and why anyone would want to

destroy them is beyond me.

Keeping you in my prayers and positive thoughts. Jan in CA +/:=)

Heidi Steppe-Hoareau wrote:Hi Jan,

Thanks for the baby prayers! I’m so glad you are feeling a bit better

today! Is your daughter is sticking to her decision? Her and Richie have

been in my prayers every day.

(((((((Hugs))))))) and prayers to you and your family,

Heidi

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Heidi:

You are so sweet. Thank you for your kind words. You're right about the

stress. No one knows until they lived it. I love my daughter dearly but I've

done my raising of her and she is now old enough to make her own choices. All I

can do is support her when she needs it and help pick up the pieces when called

upon. Richie is another story, though. I will protect him and any of the other

grands)within my power to do so. We are working together now toward a common

goal. She is hoping to be able to start him in school at the base in January.

Yesterday, she filed in court to get a restraining order against him with the

three of them. He husband stood up in court with all these tapes that he had

recorded of her - claiming among other things she was running a wh____ house and

that she was an unfit mother. He also claimed he did not understand why she was

filing - he's totally innocent and has been a good husband and father. The

first thing the judge did was lamblast him in court for the tapings and very

sternly reprimanded him for invading the privacy of his wife and neighbors(from

when she would sit outside with the neighbors on the top of their common stairs

and talk kids)and told him if he continued or kept tring to submit them in

court, he(the judge)said he would charge him with a felony. My daughter goes

back to court on November 4th to show proof that she needs a 3 year restraining

order so I am going up with Richie to testify in court as to the things I have

observed. Richie will probably be in judge's chambers. I think several of the

family and friends are going also. Those who aren't have indicated they will

send affidavits as to what they have observed. There is still a long, hard road

ahead but I believe my daughter will make it now and will break the hold of that

horrible man(did I say man? Shame on me. Wife beater and child abuser a man?)

Heidi, you are so kind to keep us in your prayers. I'm still praying the " baby

mission " will be successful in just a short time. Our Heavenly Father does

answer prayers.

Love, prayers, and positive thoughts, Jan in CA +/:=)

Heidi Steppe-Hoareau <steps122@...> wrote:Hi Jan!

I’m so happy for you that Jeanna is sticking to her guns on this one, she

must have quiet a few issues of her own to work through after being married

to such an abusive man. It must be really hard for you to think of sending

Richie back there after everything that’s happened in the past. It sounds

like she is really committed to making this work for him though and it’s

wonderful that she is thinking of letting him see his Dad again. This must

all put so much stress on you.

You and your family are in my prayers for better tomorrows.

((((((((((((((Big Hugs))))))))))))))))

Heidi

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Oh Jan, I didn't realize all you're family is going through right now. I'm

going to get to the Temple next week, and I'll certainly be adding you and

your daughter and grandson to the prayer list.

Did you have a nice birthday?

Much love,

Carol

Re: [ ] Jan

Heidi:

You are so sweet. Thank you for your kind words. You're right about the

stress. No one knows until they lived it. I love my daughter dearly but

I've done my raising of her and she is now old enough to make her own

choices. All I can do is support her when she needs it and help pick up the

pieces when called upon. Richie is another story, though. I will protect

him and any of the other grands)within my power to do so. We are working

together now toward a common goal. She is hoping to be able to start him in

school at the base in January. Yesterday, she filed in court to get a

restraining order against him with the three of them. He husband stood up

in court with all these tapes that he had recorded of her - claiming among

other things she was running a wh____ house and that she was an unfit

mother. He also claimed he did not understand why she was filing - he's

totally innocent and has been a good husband and father. The first thing

the judge did was lamblast him in court for the tapings and very sternly

reprimanded him for invading the privacy of his wife and neighbors(from when

she would sit outside with the neighbors on the top of their common stairs

and talk kids)and told him if he continued or kept tring to submit them in

court, he(the judge)said he would charge him with a felony. My daughter

goes back to court on November 4th to show proof that she needs a 3 year

restraining order so I am going up with Richie to testify in court as to the

things I have observed. Richie will probably be in judge's chambers. I

think several of the family and friends are going also. Those who aren't

have indicated they will send affidavits as to what they have observed.

There is still a long, hard road ahead but I believe my daughter will make

it now and will break the hold of that horrible man(did I say man? Shame on

me. Wife beater and child abuser a man?)

Heidi, you are so kind to keep us in your prayers. I'm still praying the

" baby mission " will be successful in just a short time. Our Heavenly Father

does answer prayers.

Love, prayers, and positive thoughts, Jan in CA +/:=)

Heidi Steppe-Hoareau <steps122@...> wrote:Hi Jan!

I'm so happy for you that Jeanna is sticking to her guns on this one, she

must have quiet a few issues of her own to work through after being married

to such an abusive man. It must be really hard for you to think of sending

Richie back there after everything that's happened in the past. It sounds

like she is really committed to making this work for him though and it's

wonderful that she is thinking of letting him see his Dad again. This must

all put so much stress on you.

You and your family are in my prayers for better tomorrows.

((((((((((((((Big Hugs))))))))))))))))

Heidi

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Hi Jan

I am so sorry that you have been going through the terrible situation with

your daughter. Somehow I missed that post. Please know that you are in my

thoughts and prayers as well as all of your family.

Joanne

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Dearest Jan,

I know what your daughter is going through. I had the same probs with my ex.

He didn't try to tape me, but he did drive past my house 30-40 times a day

and sometimes hold a gun up so that I could see it. He stole my car and

tried to tap my phone lines. He tried to pay someone $300 to hurt me. Thank

goodness the person was actually a friend of mine that he didn't know about.

The friend told me about it and it was taken care of. I had a horrible and

terrible ordeal trying to get rid of him. It took a couple of years, but he

finally found a girlfriend (the one he is living with now) and his attention

was diverted. Even for a while after that, I would get harrassing calls at

all hours of the night and day. Finally, after changing my phone # several

times and numerous police reports, he has stopped. For now. Tell your

daughter to stay tough and don't let up. Don't give in, even for a minute.

She should take pride in knowing that she is doing the right thing. Some

times, that was the only thing that kept me strong. She should call the

police and report every little incident, no matter how small it is.

Everything should be in writing. That way there is a paper trail with dates

and events. You are a wonderful mom to have raised such a strong daughter

and I applaud you for giving her such support. Keep up the good work.

Love and Hugs

Stacey in PA

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Thank you, Stacey. My daughter is finally drawing on her inner strength and

realizes that she does have friends and help to fight back. He had her so

hooked into his definition of herself that she was powerless. Since she is in

the Army now and he pulled the one stunt where he beat her up (when she told him

it was over and to get out)and then tried to take a whole bottle of muscle

relaxers. He wanted her to feel guilty and have her make him throw up but it

backfired on him, when she was able to break away when the medicine took ahold

and call the MP's. He was taken away to the hospital and released the next day.

The Army is very much aware of what's going on now and are behind her. The

county of San Bernardino also has record and she has a temporary restraining

order against him(going to court the 4th to ascertain how long (or if all if he

lies his way through court)it will be for. She's hoping for 3 years(the max).

She is asking for supervised visits for both he and his mother. He is

originally from Romania and talked when Mickie was born of taking him and going

there. He and his mother are crazy and he's a loose cannon. I had an abusive

first marriage but nothing like you gals have gone through. I suddenly found my

courage one day and just walked away. I never heard from him again after the

divorce proceedings. You really have a great deal of fortitude and courage to

stand up and live through ordeals such as this.

((((((hugs))))) Prayers and positive thoughts. Jan in CA +/:=)

bintherdunit@... wrote:Dearest Jan,

I know what your daughter is going through. I had the same probs with my ex.

He didn't try to tape me, but he did drive past my house 30-40 times a day

and sometimes hold a gun up so that I could see it. He stole my car and

tried to tap my phone lines. He tried to pay someone $300 to hurt me. Thank

goodness the person was actually a friend of mine that he didn't know about.

The friend told me about it and it was taken care of. I had a horrible and

terrible ordeal trying to get rid of him. It took a couple of years, but he

finally found a girlfriend (the one he is living with now) and his attention

was diverted. Even for a while after that, I would get harrassing calls at

all hours of the night and day. Finally, after changing my phone # several

times and numerous police reports, he has stopped. For now. Tell your

daughter to stay tough and don't let up. Don't give in, even for a minute.

She should take pride in knowing that she is doing the right thing. Some

times, that was the only thing that kept me strong. She should call the

police and report every little incident, no matter how small it is.

Everything should be in writing. That way there is a paper trail with dates

and events. You are a wonderful mom to have raised such a strong daughter

and I applaud you for giving her such support. Keep up the good work.

Love and Hugs

Stacey in PA

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Thank you for the hugs and mugs! I am feeling better today and will be leaving

for work in an hour. Wishes for a happy, painfree day for you, too. Jan in CA

+/:=)

Heidi Steppe-Hoareau <steps122@...>

wrote:(((((((((((((((((((((((((Jan)))))))))))))))))))))))))))))

I’m so sorry you are sick! Gosh what an ordeal to go through, at least the

doctor took it seriously in the end and got you onto some medication. I

wish you would take the full two days off though and get some rest though.

Please look after yourself.

Sending ((((((((((((((((((gentle healing hugs))))))))))))))))))))) and mugs

of hot chicken soup.

Heidi

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