EMBRYO TESTING

[Guest guest]

>

" Raven is only pointing out inconsistencies in what you are

> saying. You are the person that I see twisting other peoples words

> to mean what you want them to mean. I have asked you in private not

> to personally attack people. Now I will ask you publicaly please do

> not personally attack people. "

I myself am just waiting and hoping for Ace to post something positive.

He hasn't answered my dare...

[Guest guest]

Hi all

I would like to request that people do not pose comments on proposed embryo

testing on this website. I take this very personally and find it offensive and

selfish. Our condition is not life threatening!

This website is for people who have BP, are affected by it, know someone

affected by it, want to discuss surgeries, every day life issues, and receive

support or meet others. Embryo testing should be discussed with the relevant

professionals in your own hospital time.

BP causes some woman to have infertility at an early age and these woman are

faced with possibly NEVER having their own children.

The last people to mention embryo testing on this website were a couple of

doctors who appeared too be abusing their positions to their own advantage.

If anyone who can have children naturally and do not have infertility problems

caused by BP cannot bear the thought of having a child with BP, then why not

adopt one of the thousands of desperate children needing a home across the

world. That way you can see them before you choose them.

Please Please keep comments on embryo testing off this website. If you want to

discuss this, speak to your doctors.

Thanks

Cameron, with BPES, Glasgow

>

> When my daughter was diagnosed we were told that the chances were 50/50

> for her to have a child with BPES. BPES is a dominant trait which means only

> one parent needs to carry the gene mutation/deletion to pass it on.

>

> I would not change a thing about my daughter, but we have looked into her

> having children. Once the location of the defective gene is located she

> could have her eggs artificially inseminated and then the embryos tested for

> that defective gene. This would provide an opportunity to screen for BPES

> and only implant the embryos without the BPES gene mutation/deletion.

> I am sure there are those of you that wouldn't agree with this. This will

> be a personal decision for her to conceive naturally or go for the

> selective AI. She is the one that lived through the 7 surgeries and the

looking

> different so only she can decide for herself, but she has up to date

> information and procedures available to her should she decide to go that

route.

> Just know there are options out there.

>

>

>

>

> In a message dated 11/7/2009 4:07:50 P.M. Eastern Standard Time,

> smthg2smile4@... writes:

>

> > Hi my husband has BPES and we have a 3 year old daughter who also has

> the condition and we are keen to start trying for a brother or sister for

> her. What are the odds that we may have another child with BPES?

> >

>