People on the BPES list from USA

[Guest guest]

Hi

From time to time I create a table listing people from all the

countries.

This information is available on the Group site all the

time for you to refer to …meanwhile you may find it helpful to look here.

Please do put your details in. Thanks

Shireen Mohandes, London, England

Name

Email

Address

& City

State

People

in my family with BPES

Kim

Beaver

kbeaver@...

Tuscumbia

AL

Husband\,

Daughter\, and husband's two children from previous marriage

Ginny

Harper

gharper05@...

Heber

Springs

AR

1

daughter

k9_cyclone@...

Peoria

AZ

3

Adrienne

aallennn@...

Sacramento

CA

Son\,

Husband\, Father and Brother-in-law

Crystal

Berwick

cjberwick@...

Clearlake

CA

Son\,

Husband\, Father-law

(he's my nephew)

rrippee77@...

San

Diego

CA

just 

him

Kent

W. Small\, M.D.

small@...

Los

Angeles

CA

none

but currrently doing research on genetics of BPES\, please contact me if you

want to participate

Kerry

fishingmom2@...

or mamajoex2@...

Riverside

CA

My

Daughter (considered new mutation)  -- AnaLia

Lorri

lcampagna3@...

Alturas

CA

2

How

reneehow@...

Palo

Alto

CA

Husband

(Dana)\, Son (Cameron)

Rylee

Nimtz

aimeenimtz@...

4575

Revillo Way \, San Diego

CA

Myself

steph8208@...

CA

My

daughter only

Mieritz\, Malenah's Mom

Mieritz@...

2377

S. Summit Cir. Glen\, Escondido

CA  

92026

Daughter

e

Boyd

jaimeelboyd@...

CO

mother\,

myself\, daughter

Tawnya

Carvalho

CO

One

Ann

themamacatt@...

Thornton

Colorado

1

Daughter

Scopp

minsco72@...

Milford

CT

my

4 yr old daughter

Tony

Borrego

t_borrego@...

Washington

DC

Daughter

Darryl

Ytsefan@...

Orlando

FL

1-just

me

Donna

daiadarola@...

North

Lauderdale

FL

son

- now 6 1/2

Ball

maryberryprinces@...

ft

lauderdale

Fl

myself

and my son Charlie

Klein

karentots@...

Melbourne

Florida

None

Loverde

Suwanee

GA

none

Arlene

Varela

arlenevarela@...

Canton

GA

Only

Me

Brock

McNatt

mcnatt@...

Ellijay

GA

1

son

Debbie

westonfrom@...

Cleveland

GA

Daughter-Hannah

Sage

Robin

nascar9118@...

byron

GA

only

1 my son devin

Nancie

N_Cottrill@...

2649

D Connor Lp

HI

Daughter

and Husband

Cheryl

Vahl

cheryl-vahl@...

Iowa

City

IA

\,

daughter

Anne

& Rob Weber

anrweber@...

482

Cottage Avenue Glen Ellyn

IL

Snellback

snellshein@...

Wilmette

IL

only

Nicki

Venable

nicki.venable@...

Fort

Wayne

IN

Daughter

Avery

Cheryl

Vahl (23 yr old daughter with BPES)

cheryl-vahl@...

56

Arbury Dr\, Iowa City

IO

(23

yr old daughter with BPES)

Hannah

Rae

angie_huffman@...

Shepherdsville

KY

Father-Jon

Murray

michelle888_99@...

Mansfield

MA

Myself\,

eldest sister and father

a

J Crowley

pjc930@...

Middleboro

MA

I

have 5 kids\, 2 of them have BPES (nobody else)

Ruth

jricard5@...

Billerica

MA

Ruth

is the first

April

@...

odenton

MD

myself

boydgi@...

MI

2\,

myself and my father\, which I have never met.  Possibly more

McManus

juliecheese99@...

Midland

MI

just

me

Charlotte

Nordstrom

nordstrom@...

Minneapolis

MN

son\,

daughter\, sister\, father\, grandfather\, great-grandmother

Conner

goozle71@...

St.

Louis

MO

just

me

Kathy

(for )

ka5than@...

St.

MO

daughter\,

her father\,two aunts\, two uncles\, three girl cousins\, two boy cousins\,

two great aunts\, two great uncles\, grandfather\, great grandfather\,

Melisa

Harp

MyHonebee@aol

1377

Montague Road\, Highlandville

MO 

65669

24

year old son and his father

Harvey

happyappykd@...

Charlotte

NC

Myself

and my daughter Paige

Lily

lily_bogle@...

NC

Father\,

2 sisters (one with POF)\, 1 nephew

on

c.jameson@...

NH

My

daugther Hannah she is 12

Debra

Yusko Fehl

debrayusko@...

36

Conerly Rd.\, Somerset

NJ

My

son only

DAWN

KORBINTAI2LUV@...

LAS

VEGAS

NV

MY

DAUGTHER

Dalia

daliaben@...

Great

Neck

NY

Me

[my 2 brothers\, dad\, 2 aunts\, grandfather and his sister\, and great

grandfather who was the first to exhibit this gene.)

Holmes

kimholmes2005@...

upstate

NY

1

my daughter McKenzie - no others confirmed

Sharon

Besilly12000@...

Holtsville\,

NY

Grandpa\,

Husband\, 2 sons\, 1 daughter

Sharon

Ancilleri

Besilly12000@...

Holtsville

NY

Granfather\,Sister\,

Father\, 2 Sons\, 1 Dauther

Pam

O'Brien

obriengroup@...

9537

Cobblestone Drive\, Clarence

NY  

14031

Aedan

Schoen - (Mom = )

Rainamint@...

New

York

NY

10011

Aedan

is our one and only

hbarga@...

Dayton

OH

My

husband and Daughter

L. Logan

llogan2@...

Delta

OH

2

Myself and son Dylan (2001)

Michele

shellv@...

Dayton

OH

only

myself

mfeichtner@...

OH

8+

Amberik

tlynnk69@...

Cleveland

OH

Dad\,

Brother\, Sister\, and Myself

Rae

Ann

moesgirl35@...

3612

Allview Circle\, Cincinnati

OH 

45238

Son\,

Dannah 

danabanana16@...

Portland

Oregon

Myself

Amy

Hinchman

mamahinch@...

West

Mifflin

PA

My

daughter

Zugel

jsb227@...

Sciota

PA

husband

and daughter

Leindecker

Rozrabbit@...

Lenhartsville

PA

1-Daughter

Nina

asadoorian

nma420@...

PA

1

daughter

Donna

donnahaskins@...

RI

daughter

Lynette

Fong

wdw43@...

SC

several

male relatives and sister

Amy

Bradshaw

amybrms@...

Newport

TN

My

daughter \, she is the first

hjwilga5@...

Chattanooga

TN

Daughter

Barfoot

deb_barfoot@...

Dallas

TX

just

dhhughes@...

3604

Hendrick Dr\, Plano

TX

utkaters2000@...

Fort

Hood

TX

Son\,

Rob

Hall

rnhall180@...

Round

Rock

TX

myself\,

mom\, grand mother + 3 of her 4 sisters\, great grand father

Beth

Gordon

bethgordon03@...

Purcellville

VA

my

infant daughter\, my father\, my grandfather and me

Loretta son

annaloretta17692@...

WA

3

Harry

dawn@...

Maple

Valley

WA

is the first

Mulvaney

chatthisway@

Rochester

WA

Kennth

Mulvaney

Mason

bnbbrethouwer@...

Madison

WI

only

one

Terry

A. Helgestad

terryahelge@...

726

W. Ladd Lane\, Edgerton

WI 

53534

Eisele

Family

aprileisele@...

Micah

[Guest guest]

Thanks Shireen. You are amazing. Happy Holidays.-P

a J. Crowley blepharophimosis People on the BPES list from USA

Hi

From time to time I create a table listing people from all the countries.

This information is available on the Group site all the time for you to refer to …meanwhile you may find it helpful to look here.

Please do put your details in. Thanks

Shireen Mohandes, London, England

Name

Email

Address & City

State

People in my family with BPES

Kim Beaver

kbeaver@...

Tuscumbia

AL

Husband\, Daughter\, and husband's two children from previous marriage

Ginny Harper

gharper05@...

Heber Springs

AR

1 daughter

k9_cyclone@...

Peoria

AZ

3

Adrienne

aallennn@...

Sacramento

CA

Son\, Husband\, Father and Brother-in-law

Crystal Berwick

cjberwick@...

Clearlake

CA

Son\, Husband\, Father-law

(he's my nephew)

rrippee77@...

San Diego

CA

just him

Kent W. Small\, M.D.

small@...

Los Angeles

CA

none but currrently doing research on genetics of BPES\, please contact me if you want to participate

Kerry

fishingmom2@... or mamajoex2@...

Riverside

CA

My Daughter (considered new mutation) -- AnaLia

Lorri

lcampagna3@...

Alturas

CA

2

How

reneehow@...

Palo Alto

CA

Husband (Dana)\, Son (Cameron)

Rylee Nimtz

aimeenimtz@...

4575 Revillo Way \, San Diego

CA

Myself

steph8208@...

CA

My daughter only

Mieritz\, Malenah's Mom

Mieritz@...

2377 S. Summit Cir. Glen\, Escondido

CA 92026

Daughter

e Boyd

jaimeelboyd@...

CO

mother\, myself\, daughter

Tawnya Carvalho

CO

One

Ann

themamacatt@...

Thornton

Colorado

1 Daughter

Scopp

minsco72@...

Milford

CT

my 4 yr old daughter

Tony Borrego

t_borrego@...

Washington

DC

Daughter

Darryl

Ytsefan@...

Orlando

FL

1-just me

Donna

daiadarola@...

North Lauderdale

FL

son - now 6 1/2

Ball

maryberryprinces@...

ft lauderdale

Fl

myself and my son Charlie

Klein

karentots@...

Melbourne

Florida

None

Loverde

Suwanee

GA

none

Arlene Varela

arlenevarela@...

Canton

GA

Only Me

Brock McNatt

mcnatt@...

Ellijay

GA

1 son

Debbie

westonfrom@...

Cleveland

GA

Daughter-Hannah Sage

Robin

nascar9118@...

byron

GA

only 1 my son devin

Nancie

N_Cottrill@...

2649 D Connor Lp

HI

Daughter and Husband

Cheryl Vahl

cheryl-vahl@...

Iowa City

IA

\, daughter

Anne & Rob Weber

anrweber@...

482 Cottage Avenue Glen Ellyn

IL

Snellback

snellshein@...

Wilmette

IL

only

Nicki Venable

nicki.venable@...

Fort Wayne

IN

Daughter Avery

Cheryl Vahl (23 yr old daughter with BPES)

cheryl-vahl@...

56 Arbury Dr\, Iowa City

IO

(23 yr old daughter with BPES)

Hannah Rae

angie_huffman@...

Shepherdsville

KY

Father-Jon

Murray

michelle888_99@...

Mansfield

MA

Myself\, eldest sister and father

a J Crowley

pjc930@...

Middleboro

MA

I have 5 kids\, 2 of them have BPES (nobody else)

Ruth

jricard5@...

Billerica

MA

Ruth is the first

April

@...

odenton

MD

myself

boydgi@...

MI

2\, myself and my father\, which I have never met. Possibly more

McManus

juliecheese99@...

Midland

MI

just me

Charlotte Nordstrom

nordstrom@...

Minneapolis

MN

son\, daughter\, sister\, father\, grandfather\, great-grandmother

Conner

goozle71@...

St. Louis

MO

just me

Kathy (for )

ka5than@...

St.

MO

daughter\, her father\,two aunts\, two uncles\, three girl cousins\, two boy cousins\, two great aunts\, two great uncles\, grandfather\, great grandfather\,

Melisa Harp

MyHonebee@aol

1377 Montague Road\, Highlandville

MO 65669

24 year old son and his father

Harvey

happyappykd@...

Charlotte

NC

Myself and my daughter Paige

Lily

lily_bogle@...

NC

Father\, 2 sisters (one with POF)\, 1 nephew

on

c.jameson@...

NH

My daugther Hannah she is 12

Debra Yusko Fehl

debrayusko@...

36 Conerly Rd.\, Somerset

NJ

My son only

DAWN

KORBINTAI2LUV@...

LAS VEGAS

NV

MY DAUGTHER

Dalia

daliaben@...

Great Neck

NY

Me [my 2 brothers\, dad\, 2 aunts\, grandfather and his sister\, and great grandfather who was the first to exhibit this gene.)

Holmes

kimholmes2005@...

upstate

NY

1 my daughter McKenzie - no others confirmed

Sharon

Besilly12000@...

Holtsville\,

NY

Grandpa\, Husband\, 2 sons\, 1 daughter

Sharon Ancilleri

Besilly12000@...

Holtsville

NY

Granfather\,Sister\, Father\, 2 Sons\, 1 Dauther

Pam O'Brien

obriengroup@...

9537 Cobblestone Drive\, Clarence

NY 14031

Aedan Schoen - (Mom = )

Rainamint@...

New York

NY 10011

Aedan is our one and only

hbarga@...

Dayton

OH

My husband and Daughter

L. Logan

llogan2@...

Delta

OH

2 Myself and son Dylan (2001)

Michele

shellv@...

Dayton

OH

only myself

mfeichtner@...

OH

8+

Amberik

tlynnk69@...

Cleveland

OH

Dad\, Brother\, Sister\, and Myself

Rae Ann

moesgirl35@...

3612 Allview Circle\, Cincinnati

OH 45238

Son\,

Dannah

danabanana16@...

Portland

Oregon

Myself

Amy Hinchman

mamahinch@...

West Mifflin

PA

My daughter

Zugel

jsb227@...

Sciota

PA

husband and daughter

Leindecker

Rozrabbit@...

Lenhartsville

PA

1-Daughter

Nina asadoorian

nma420@...

PA

1 daughter

Donna

donnahaskins@...

RI

daughter

Lynette Fong

wdw43@...

SC

several male relatives and sister

Amy Bradshaw

amybrms@...

Newport

TN

My daughter \, she is the first

hjwilga5@...

Chattanooga

TN

Daughter

Barfoot

deb_barfoot@...

Dallas

TX

just

dhhughes@...

3604 Hendrick Dr\, Plano

TX

utkaters2000@...

Fort Hood

TX

Son\,

Rob Hall

rnhall180@...

Round Rock

TX

myself\, mom\, grand mother + 3 of her 4 sisters\, great grand father

Beth Gordon

bethgordon03@...

Purcellville

VA

my infant daughter\, my father\, my grandfather and me

Loretta son

annaloretta17692@...

WA

3

Harry

dawn@...

Maple Valley

WA

is the first

Mulvaney

chatthisway

Rochester

WA

Kennth Mulvaney

Mason

bnbbrethouwer@...

Madison

WI

only one

Terry A. Helgestad

terryahelge@...

726 W. Ladd Lane\, Edgerton

WI 53534

Eisele Family

aprileisele@...

Micah

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