Intro

[Guest guest]

Welcome, . Was all the salmon you ate Alaskan wild? Also what kinds

of sashimi fish were you eating? Reason l ask is mercury levels in larger

fishes like tuna, non wild larger salmon. Eczema can be from mercury

poisoning. When you eat raw fish do you marinate in lemon juice to help

cook it first, kill parasites and freeze it first for at least 14 days? If

not my first suggestion is virgin coconut oil to rid any parasites. Second,

Dr. Sherry in No More Heartburn suggests the amino acid l-glutamine

powder 5 grams 2X day one or two hours before of after meals for a month .

Worked for my leaky gut. Worked for me. As LGS came up again after gluten

grain eating you're likely intolerant, therefore the reoccurance. Your

childhood ailments indicate this too. Other than that don't know much about

mercury detox. Lot of people here are getting their mercury fillings

removed because of that toxicity.

Wanita

[Guest guest]

Hi Tom ... I try to get eggs from this local, organic, pasture fed

farm, but they aren't available very often. I use Gold Circle farms

eggs as a second choice or Polyface farm eggs. They all have deep

orange yolks and superior flavor. Would they be safe to eat raw? I

wouldn't be worried about it, but since I am breastfeeding, I get a

little concerned about this stuff. I was thinking of cracking some

eggs into my smoothie. I saw some tips for determining freshness on

mercola.com. How do you go about it? Thank you for the info.

Sincerely,

MIchele

[Guest guest]

Hi Wanita. > Nice to hear you healed your LGS. I will try your

suggestion. I did soak the raw fish in lemon juice and nama shoyu,

but it was from sushi restaurants in NYC. The fish was delivered

fresh daily, and was from the ocean. It didn't give me any problems

at the time. The salmon was from this health food store; I'm not

sure what kind it was, but they were small salmon. I don't have any

fillings, no cavities. The mercury poisoning is interesting; I will

definitely look into that. Thank you!

take care

Michele

[Guest guest]

>My diet is

>currently raw vegan, but I am looking to change it because it is

>unfortunately not curing my leaky gut this time around, and I am

>craving fish. Any protein food(I have even tried turkey which didn't

>stay in long ) causes excema on my face and hands - extremely mild

>now thanks to enzymes and probiotics.

How is your grain intake? Dr. Fasano did some good studies

about gluten and leaky gut. A lot of the " fake meats " are

made from purified wheat gluten, which is dastardly if you

react to it. Fake krab being my major downfall, because I used

to love sushi. Casein causes problems for some folks too.

Once your gut is leaky, a lot of foods cause problems,

unfortunately.

-- Heidi

[Guest guest]

Hi Heidi. I eat zero grains due to allergies and diabetes(II). They

definitely do not agree with me. I am currently dairy/grain/legume free.

take care,

Michele

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[Guest guest]

Yes, Mercola has a very good article about determining " safeness " of

raw eggs, although I think he mentions the USDA study which showed

that only 1 out of 30,000 eggs has salmonella, and that includes all

the FACTORY FARM eggs which are much more likely to have it. I don't

even bother testing, I just eat. Don't eat the whites, as he explains.

Polyface is a good farm...I bought a few things from them when I was

living in Arlington last year. My advice is to try eating one (or part

of one) raw egg yolk from a good organic farm and see how you tolerate it.

Again, I really wouldn't worry about eating raw egg yolks, but don't

take my word for it. If you happen to have a significantly compromised

immune system, I would hesitate to recommend them, but otherwise

eating a raw egg yolk is likely safer than eating a hamburger at a

fast-food joint.

I just read today, in the winter issue of Wise Traditions, a letter

written by an elderly woman who said she can remember her grandmother

eating an egg yolk in a glass of milk, mixed up, for breakfast. I

can't wait to try this once I get some more raw milk. Eating a cold

egg yolk plain is a bit messy.

Tom

> Hi Tom ... I try to get eggs from this local, organic, pasture fed

> farm, but they aren't available very often. I use Gold Circle farms

> eggs as a second choice or Polyface farm eggs. They all have deep

> orange yolks and superior flavor. Would they be safe to eat raw? I

> wouldn't be worried about it, but since I am breastfeeding, I get a

> little concerned about this stuff. I was thinking of cracking some

> eggs into my smoothie. I saw some tips for determining freshness on

> mercola.com. How do you go about it? Thank you for the info.

>

> Sincerely,

> MIchele

[Guest guest]

>Hi Heidi. I eat zero grains due to allergies and diabetes(II). They

>definitely do not agree with me. I am currently dairy/grain/legume free.

>

>take care,

>

>Michele

Well, that takes care of most of the issues! Good

job! You probably know to watch out for stuff

like fake crab too. My Dad had an issue because

he was vegetarian and ate a lot of fake meat, which

is made with wheat gluten often, something I didn't

know at the time.

-- Heidi

[Guest guest]

I've eaten raw eggs in milk since I was a child on the farm (I'm 63 now).

Add a dash of nutmeg and bit of stevia (I like NOW liquid) and only the

creamy taste tells you there are eggs in it.

Today I buy the coconut milk from Wilderness Family Naturals and make it

with that. In Michigan it is illegal to even think about drinking raw milk,

and I no longer drink the pasteurized junk.

Mercola has changed his stance on eating egg whites. Says more research has

shown that the whites have the biotin to overcome the disadvantages he

thought were there.

Enjoy! ;-)

Judith Alta

-----Original Message-----

Yes, Mercola has a very good article about determining " safeness " of

raw eggs, although I think he mentions the USDA study which showed

that only 1 out of 30,000 eggs has salmonella, and that includes all

the FACTORY FARM eggs which are much more likely to have it. I don't

even bother testing, I just eat. Don't eat the whites, as he explains.

Polyface is a good farm...I bought a few things from them when I was

living in Arlington last year. My advice is to try eating one (or part

of one) raw egg yolk from a good organic farm and see how you tolerate it.

Again, I really wouldn't worry about eating raw egg yolks, but don't

take my word for it. If you happen to have a significantly compromised

immune system, I would hesitate to recommend them, but otherwise

eating a raw egg yolk is likely safer than eating a hamburger at a

fast-food joint.

I just read today, in the winter issue of Wise Traditions, a letter

written by an elderly woman who said she can remember her grandmother

eating an egg yolk in a glass of milk, mixed up, for breakfast. I

can't wait to try this once I get some more raw milk. Eating a cold

egg yolk plain is a bit messy.

Tom

[Guest guest]

Hey Heidi Thanks. Being raw is good in that it wipes out processed

food(and label reading). I feel like there is something missing, though. I

was cool before pregnancy/breastfeeding. Vegetarian for years w/no

meat/animal product cravings then suddenly I'm like, " mmm Burger King " (I

didn't indulge!). I never liked beef, pork or poultry but I've always

enjoyed fish. I think it has something to do with the fact that I come from

coastal dwelling people (Mediteranean and Caribean). Also the reason I just

started using coconut oil(I also use ev olive oil). I need a source of Omega

3's though...I heard flax oil isn't as good as the long chain fatty acids

found in fish. Sorry to ramble...thank you for the advice.

Take care,

Michele

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[Guest guest]

Hi Judith,

Wonderful! I was just about to ask if anyone had ordered from them before

because I want to order the 5 gallon coconut oil. I am going to order some

young coconuts - I used to eat them all the time in NYC. I make ice cream

from them. I am going to try your recipe. I wonder would it be safe for

Gaby? He's two and a half. Take care!

Sincerely,

Michele

>From: " Judith Alta " <jaltak@...>

>Reply-

>< >

>Subject: RE: Re: Intro

>Date: Wed, 10 Dec 2003 09:20:51 -0500

>

>I've eaten raw eggs in milk since I was a child on the farm (I'm 63 now).

>Add a dash of nutmeg and bit of stevia (I like NOW liquid) and only the

>creamy taste tells you there are eggs in it.

>

>Today I buy the coconut milk from Wilderness Family Naturals and make it

>with that. In Michigan it is illegal to even think about drinking raw milk,

>and I no longer drink the pasteurized junk.

>

>Mercola has changed his stance on eating egg whites. Says more research has

>shown that the whites have the biotin to overcome the disadvantages he

>thought were there.

>

>Enjoy! ;-)

>

>Judith Alta

>

>

>

>-----Original Message-----

>

>Yes, Mercola has a very good article about determining " safeness " of

>raw eggs, although I think he mentions the USDA study which showed

>that only 1 out of 30,000 eggs has salmonella, and that includes all

>the FACTORY FARM eggs which are much more likely to have it. I don't

>even bother testing, I just eat. Don't eat the whites, as he explains.

>

>Polyface is a good farm...I bought a few things from them when I was

>living in Arlington last year. My advice is to try eating one (or part

>of one) raw egg yolk from a good organic farm and see how you tolerate it.

>

>Again, I really wouldn't worry about eating raw egg yolks, but don't

>take my word for it. If you happen to have a significantly compromised

>immune system, I would hesitate to recommend them, but otherwise

>eating a raw egg yolk is likely safer than eating a hamburger at a

>fast-food joint.

>

>I just read today, in the winter issue of Wise Traditions, a letter

>written by an elderly woman who said she can remember her grandmother

>eating an egg yolk in a glass of milk, mixed up, for breakfast. I

>can't wait to try this once I get some more raw milk. Eating a cold

>egg yolk plain is a bit messy.

>

>Tom

>

>

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[Guest guest]

Dear Michele,

I have read your posts and I want to put my 2 bits in. I wrote

earlier today about my experience with being vegitarian with the

birth of my 4th child. Also, I have a friend who was strict vegan,

mostly raw, and only ate " clean " food for years before the birth of

her two children. They have both had terrable teeth and many health

problems, so I'm glad you are willing to eat fish. She now eats raw

goats milk and meat on occasion and makes sure her kids eat meat and

raw milk products. She is so happy to have found ways to help her

health and her children. If you get the chance, read Weston A

Price's book, " Nutrition and Physical Degeneration. " I just read

about the Islands off of Australia, and Dr Price was very impressed

with how healthy the people were...saying the healthiest people he

had studied. They lived of sea animals and fruits, vegies and

roots. You might want to take a high vitamin butter and cod liver

oil, Carlsons is a really good cod liver product. Peace & health to

you, Judy

> Hey Heidi Thanks. Being raw is good in that it wipes out

processed

> food(and label reading). I feel like there is something missing,

though. I

> was cool before pregnancy/breastfeeding. Vegetarian for years w/no

> meat/animal product cravings then suddenly I'm like, " mmm Burger

King " (I

> didn't indulge!). I never liked beef, pork or poultry but I've

always

> enjoyed fish. I think it has something to do with the fact that I

come from

> coastal dwelling people (Mediteranean and Caribean). Also the

reason I just

> started using coconut oil(I also use ev olive oil). I need a

source of Omega

> 3's though...I heard flax oil isn't as good as the long chain

fatty acids

> found in fish. Sorry to ramble...thank you for the advice.

> Take care,

> Michele

>

> _________________________________________________________________

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Internet

> connection! Comparison-shop your local high-speed providers here.

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[Guest guest]

Dear Judy,

I'm sorry to hear about your bad experiences. I am glad you have found a

better way to eat for you and your family. I am sad that vegetarianism

cannot work for more people. I think I did better than most when I was

pregnant. I know the fish I ate in my 7th month was needed. Also, my diet

consisted of 1-2 bunches of kale(marinated), tahini sauce made from 1 cup

whole sesame seeds in

the vitamix, lots of almonds and other nuts, figs, sea veggies, etc. The

only thing I neglected was a B12 supplement - I thougt I didn't need one,

but after breastfeeding a couple months I was very deficient. My mistake

while pregnant was eating tofu and grain products. The latter caused candida

and subsequent recurrence of leaky gut syndrome. Luckily I was starving(I

used to have to wake up to eat!) so those few bad foods did not displace the

good ones.

My birth was painless, and Gaby has been free from disease except for being

constipated from age one month to five months and having excema prior to

that. This was due to my food proteins leaking into the milk. It was a

terrible thing to go through. I actually stopped eating protein foods, as I

knew no other way! My nails developed ditches and my hair fell out. I was

very weak and disoriented. I ate a lot of brown rice to compensate, which

brought my diabetes back until I cut out the carbs a few months ago. I have

only recently become able to digest proteins. Due to the LGS, I cannot

absorb zinc, no matter how much I eat, so I take chelated supplements. It

has been a very rough two years, diet and health wise. I have been

researching non stop the whole time.

On the plus side, it led to me deciding to be a Registered Dietician. I

also want to write books for pregnant and nursing women. My mind has become

opened by my experience. The raw community has a lot of good people, but

many of them are misguided by low fat low protein obsession. Real health

issues are often passed off as " detox " . One lady told me the holes in my

nails were from " fat withdrawal " - it had nothing to do with that, AND I was

still eating a lot of fat at the time. I have never eaten " low fat " - it is

a sure way to high blood sugar and dry skin.

I would add goats milk, but I am lactose intolerant and allergic to dairy

proteins. I've never had goats milk, though. I know my aunt was fed goats

milk from birth, and she supposedly cried " baaa baaa " . LOL! She did not have

any problems with it as it was unpasteurized. Maybe I should give it a

whirl. If I drink/eat cow dairy, raw or pasteurized, I have an instant

asthma attack. I am wary of giving it to Gaby. Maybe in the future, as he

still drinks about a half gallon of my milk a day. Is the cod liver oil a

good source of Omega 3? I have to read Fats that Heal, Fats that Kill again.

I was going to use it for Vitamin D this winter. I tried some flounder

today(like 2 bites), but it gave me a stuffy nose. It was from the regular

grocery store, made for my friend. I think I should eat raw fish or at least

fish that definitely comes from the ocean. I think I'm running on quite a

bit, . Thank you for the response and advice.

Take care,

Michele

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[Guest guest]

Dear Michele,

You are increadable! I DIDN'T eat as good as you did!!! I was

focusing on whole grains and not nearly enough veggies. Your baby

sounds delightful and if I had had a girl, that is what I wanted to

name her!

I also have leaky gut and allergies, but there is so many thing I'm

allergic to that I had just thrown up my hands and eaten everything

and felt sick all of the time. You are an inspiration to me. I

have just started taking Primal Defense www.gardenoflifeusa.com. I

know there has been discussion here about " PD " and I'm not sure what

the concensus was. Look up the websight and tell me what you think,

if you have time. I'm also looking into having a blood test done to

determine what I'm reacting to. I'm making Kimchi, it's raw and the

probiotics are wonderful..loving it! Ask Heidi about Kimchi. She

is the Master!

Truely, if you want to learn about people around the world and

how they eat, go to Dr Price's book, Nutrition and Pysical

Degeneration.

Thank you for your imput. You seem to truely walk your talk.

Judy

> consisted of 1-2 bunches of kale(marinated), tahini sauce made

from 1 cup

> whole sesame seeds in

> the vitamix, lots of almonds and other nuts, figs, sea veggies,

etc. The

> only thing I neglected was a B12 supplement - I thougt I didn't

need one,

> but after breastfeeding a couple months I was very deficient. My

mistake

> while pregnant was eating tofu and grain products. The latter

caused candida

> and subsequent recurrence of leaky gut syndrome. Luckily I was

starving(I

> used to have to wake up to eat!) so those few bad foods did not

displace the

> good ones.

>

> My birth was painless, and Gaby has been free from disease except

for being

> constipated from age one month to five months and having excema

prior to

> that. This was due to my food proteins leaking into the milk. It

was a

> terrible thing to go through. I actually stopped eating protein

foods, as I

> knew no other way! My nails developed ditches and my hair fell

out. I was

> very weak and disoriented. I ate a lot of brown rice to

compensate, which

> brought my diabetes back until I cut out the carbs a few months

ago. I have

> only recently become able to digest proteins. Due to the LGS, I

cannot

> absorb zinc, no matter how much I eat, so I take chelated

supplements. It

> has been a very rough two years, diet and health wise. I have been

> researching non stop the whole time.

>

> On the plus side, it led to me deciding to be a Registered

Dietician. I

> also want to write books for pregnant and nursing women. My mind

has become

> opened by my experience. The raw community has a lot of good

people, but

> many of them are misguided by low fat low protein obsession. Real

health

> issues are often passed off as " detox " . One lady told me the holes

in my

> nails were from " fat withdrawal " - it had nothing to do with that,

AND I was

> still eating a lot of fat at the time. I have never eaten " low

fat " - it is

> a sure way to high blood sugar and dry skin.

>

> I would add goats milk, but I am lactose intolerant and allergic

to dairy

> proteins. I've never had goats milk, though. I know my aunt was

fed goats

> milk from birth, and she supposedly cried " baaa baaa " . LOL! She

did not have

> any problems with it as it was unpasteurized. Maybe I should give

it a

> whirl. If I drink/eat cow dairy, raw or pasteurized, I have an

instant

> asthma attack. I am wary of giving it to Gaby. Maybe in the

future, as he

> still drinks about a half gallon of my milk a day. Is the cod

liver oil a

> good source of Omega 3? I have to read Fats that Heal, Fats that

Kill again.

> I was going to use it for Vitamin D this winter. I tried some

flounder

> today(like 2 bites), but it gave me a stuffy nose. It was from the

regular

> grocery store, made for my friend. I think I should eat raw fish

or at least

> fish that definitely comes from the ocean. I think I'm running on

quite a

> bit, . Thank you for the response and advice.

>

> Take care,

>

> Michele

>

> _________________________________________________________________

> Our best dial-up offer is back. Get MSN Dial-up Internet Service

for 6

> months @ $9.95/month now! http://join.msn.com/?page=dept/dialup

[Guest guest]

Dear Judy,

I have been taking Primal Defense for a month or so. I notice that taking 6

a day, plus Peptizyde with protein foods(anything over 5g), HCI when needed

and my Prenatal vitamin keeps the excema at bay. I cannot eat any

grains/legumes, though, and have to keep my protein level lower than I'd

like it(I need 100-120 optimally, but eat only 60-70). Without the

supplements my hands are covered in weeping blisters and my face in a rash,

cold symptoms and eventually asthma sets in. I have found

grains/legumes/dairy to be the worst culprits.

I love Kimchi...tried to make my own once, BAD recipe - nasty! Thank you so

much for the compliment. I have baby pictures of Gaby at my website, but I

haven't updated it in 1 1/2 yrs. Too much craziness w/diet, but I;m going to

start soon since I'm off from school for a month.

www.geocities.com/rawbabymama

I'm going to try coconut kefir and see how that works for me. I am loving

the virgin coconut oil.

Take care!

Michele sweating bullets over final exam grade for Biology

>From: " Judy Nielsen " <jjmorgan6@...>

>Reply-

>

>Subject: Re: Intro

>Date: Thu, 11 Dec 2003 16:37:24 -0000ann

>

>Dear Michele,

> You are increadable! I DIDN'T eat as good as you did!!! I was

>focusing on whole grains and not nearly enough veggies. Your baby

>sounds delightful and if I had had a girl, that is what I wanted to

>name her!

> I also have leaky gut and allergies, but there is so many thing I'm

>allergic to that I had just thrown up my hands and eaten everything

>and felt sick all of the time. You are an inspiration to me. I

>have just started taking Primal Defense www.gardenoflifeusa.com. I

>know there has been discussion here about " PD " and I'm not sure what

>the concensus was. Look up the websight and tell me what you think,

>if you have time. I'm also looking into having a blood test done to

>determine what I'm reacting to. I'm making Kimchi, it's raw and the

>probiotics are wonderful..loving it! Ask Heidi about Kimchi. She

>is the Master!

> Truely, if you want to learn about people around the world and

>how they eat, go to Dr Price's book, Nutrition and Pysical

>Degeneration.

> Thank you for your imput. You seem to truely walk your talk.

>Judy

>

>

>

> > consisted of 1-2 bunches of kale(marinated), tahini sauce made

>from 1 cup

> > whole sesame seeds in

> > the vitamix, lots of almonds and other nuts, figs, sea veggies,

>etc. The

> > only thing I neglected was a B12 supplement - I thougt I didn't

>need one,

> > but after breastfeeding a couple months I was very deficient. My

>mistake

> > while pregnant was eating tofu and grain products. The latter

>caused candida

> > and subsequent recurrence of leaky gut syndrome. Luckily I was

>starving(I

> > used to have to wake up to eat!) so those few bad foods did not

>displace the

> > good ones.

> >

> > My birth was painless, and Gaby has been free from disease except

>for being

> > constipated from age one month to five months and having excema

>prior to

> > that. This was due to my food proteins leaking into the milk. It

>was a

> > terrible thing to go through. I actually stopped eating protein

>foods, as I

> > knew no other way! My nails developed ditches and my hair fell

>out. I was

> > very weak and disoriented. I ate a lot of brown rice to

>compensate, which

> > brought my diabetes back until I cut out the carbs a few months

>ago. I have

> > only recently become able to digest proteins. Due to the LGS, I

>cannot

> > absorb zinc, no matter how much I eat, so I take chelated

>supplements. It

> > has been a very rough two years, diet and health wise. I have been

> > researching non stop the whole time.

> >

> > On the plus side, it led to me deciding to be a Registered

>Dietician. I

> > also want to write books for pregnant and nursing women. My mind

>has become

> > opened by my experience. The raw community has a lot of good

>people, but

> > many of them are misguided by low fat low protein obsession. Real

>health

> > issues are often passed off as " detox " . One lady told me the holes

>in my

> > nails were from " fat withdrawal " - it had nothing to do with that,

>AND I was

> > still eating a lot of fat at the time. I have never eaten " low

>fat " - it is

> > a sure way to high blood sugar and dry skin.

> >

> > I would add goats milk, but I am lactose intolerant and allergic

>to dairy

> > proteins. I've never had goats milk, though. I know my aunt was

>fed goats

> > milk from birth, and she supposedly cried " baaa baaa " . LOL! She

>did not have

> > any problems with it as it was unpasteurized. Maybe I should give

>it a

> > whirl. If I drink/eat cow dairy, raw or pasteurized, I have an

>instant

> > asthma attack. I am wary of giving it to Gaby. Maybe in the

>future, as he

> > still drinks about a half gallon of my milk a day. Is the cod

>liver oil a

> > good source of Omega 3? I have to read Fats that Heal, Fats that

>Kill again.

> > I was going to use it for Vitamin D this winter. I tried some

>flounder

> > today(like 2 bites), but it gave me a stuffy nose. It was from the

>regular

> > grocery store, made for my friend. I think I should eat raw fish

>or at least

> > fish that definitely comes from the ocean. I think I'm running on

>quite a

> > bit, . Thank you for the response and advice.

> >

> > Take care,

> >

> > Michele

> >

> > _________________________________________________________________

> > Our best dial-up offer is back. Get MSN Dial-up Internet Service

>for 6

> > months @ $9.95/month now! http://join.msn.com/?page=dept/dialup

>

_________________________________________________________________

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[Guest guest]

LOL, glad I can be of some USE here LOL. Actually I may have converts already.

I've been gushing about this all to my friends at church and several want to

borrow the book and one I had over for lunch yesteday. We had scrambled organic

free range eggs, raw cheddar cheese and crispy pepitas, also another lady from

church gave me a fresh loaf of homemade bread (not NT but very good) so we also

had that with cultured butter and sea salt. She could not stop raving about

lunch! She took me shopping (i'm still in the process of getting my drivers

licence) and I invited her to come into the organic and health store I go to.

She did and fell in love with it like I did LOL.

Kay <gunnarsgirl@...> wrote:Thankfully Mrs. has been asking

some for me.

Mrs. Siemens

Helpmeet to , mommy to Zachary & Lydia

" For I am not ashamed of the gospel of Christ: for it is the power of God unto

salvation.... "

-Romans 1:16a-

---------------------------------

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[Guest guest]

>

> Hi Lori - thanks so much for that tip about ginger root. I have

> researched the internet and found a couple of herbs which might

help

> me, such as Dandelion ( sorry mind blank at present over the

> others:). But when it came to finding them fresh, at the

supermarket

> it was a real no no.

>

> Just recently I have cut out aspartme and artifical sweetners,

and

> now drinking filtered water.

>

> I used to drink a lot of diet drinks, so that was stopped (and

miss

> them sorely) but I love ginger beer, and your recipe on homemade

> ginger ale and ginger tea would be most welcome.

>

> All the best - Carole

> ~~~

>

>

>

>

>

[Guest guest]

Welcome, Judith!

When you tried the methotrexate, were you taking it orally or by

injection? Often times it's tolerated better when taken by injection. Or

what about adding another DMARD to your sulphasalazine for better

results - maybe hydroxychloroquine sulfate (Plaquenil)? What about the

biologics?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Intro

> Hi All

>

> I thought I would tag my hello on the end of Carole's mail as Carole

and I know each other from Cat Lists sharing a mutual hobby of

breeding and showing pedigree cats.

>

> I have a feeling I joined this list a year or so ago but had to

unsubscribe as I could not keep up with the volume of mails. Anyway my

name is Judith I live in the UK in a tiny village on the Essex/Suffolk

borders. I have been a diagnosed RA sufferer for around 4 and a half

years, undiagnosed about 8 years. I have been on Sulphasalazine for

about 3 years and tried Methotrexate several times but although the RA

improves the side effects are awful so it was decided that this

treatment is not suitable for me. My affected joints are my hands and

feet and also my jaw flared up a year ago. I was also diagnosed by my

last rheumie with Fibromyalgia but my present one diagrees and says I

have tennis/golfers elbow and housemaids knee so who knows but I tend to

think my old one was correct. I do suffer complete exhaustion from time

to time as well so whether this is the RA or Fibromyalgia I have no

idea. I don't take anti inflammatories as I had duodenal ulcers from

taking them so the only pain relief I have is co-codamol. I take each

day as it comes on good days I make the most of them bad days I pass as

best I can.

>

> I will try and keep up with all the mails and look forward to reading

them and offering support if I can.

>

> Kind wishes to you all

> Judith

[Guest guest]

Judith,

Biologic DMARDs are the newiest treatments for RA. They are Enbrel, Humira,

Remicaide and Kinert. All are injectables. The Remicaide you get IV

infusions every 6-8 weeks.

I personally use enbrel which I inject twice weekly.

I was told that Paquenil is the mildiest of all the DMARDS. This is where

most docs in this area start patients on. Then they go on to Arava or

Methotrexate. I personally was on Methotrexate for about a year. It was

horrible!!!!

Lots of side effects to include drug induced pneumonitis which can be fatal

if left unchecked. Solution is stop the drug immediately. I started on pills

and then went to injections. I really perferred the injections but my body

just did not tolerate Methotrexate well.

I got the following side effects: nausea, vomiting, diarrhea, dizziness,

headaches, mouth sores, eye sores and throat sores.

Good luck,

toni

In a message dated 6/19/2004 3:09:34 PM Central Daylight Time,

writes:

Message: 26

Date: Sat, 19 Jun 2004 19:43:40 +0100

From: " judith brimsden " <judith.brimsden@...>

Subject: Re: Intro

Hi

I took Metho orally don't think they do by injection here in the UK. My

rheumie is saving the Plaquenil for when I need the 'artillery' he has talked

about

adding it in but wants to wait for a while.

I don't know what you mean by biologics???

Judith

[Guest guest]

Hi

I took Metho orally don't think they do by injection here in the UK. My rheumie

is saving the Plaquenil for when I need the 'artillery' he has talked about

adding it in but wants to wait for a while.

I don't know what you mean by biologics???

Judith

Re: [ ] Intro

Welcome, Judith!

When you tried the methotrexate, were you taking it orally or by

injection? Often times it's tolerated better when taken by injection. Or

what about adding another DMARD to your sulphasalazine for better

results - maybe hydroxychloroquine sulfate (Plaquenil)? What about the

biologics?

[Guest guest]

Hi Carole

I am going to do my best to keep up with the posts I may try digest and see how

that goes, otherwise I will read them on the website like you.

When I was a little girl my brother and I had a ginger beer plant which you had

to feed each day and we used to make the most wonderful ginger beer, although it

was very sugary and I am sure not at all good for the figure and teeth. Hope

you Ginger Ale is a success ....... cheers and good health!!!!!

Love JudithXXX

In , Carole wrote:

Oh Judith, it's so lovely to see you posting here. There is so much

to learn from all these brave and informative ladies (haven't seen

any post from men).

Can't wait to make my first jug of ginger ale LOL. If you are

unable to keep up with the volume of post, why don't you read it

straight from the web site, I do:)

All the best - Carole x

[Guest guest]

Hi Judith,

Welcome back Judith! I haven't been diagnosed yet, but I have pain in the hands

and feet too, as well as bone area of both shoulders and behind my knees. Some

days I feel a heck of a lot older than 57 ! I pray you will be able to feel

better soon. How is the weather where you are? Is it damp? Any way to insulate

from it?

Jefersea

[ ] Re: Lori

Hi Lori - thanks so much for that tip about ginger root. I have

researched the internet and found a couple of herbs which might help

me, such as Dandelion ( sorry mind blank at present over the

others:). But when it came to finding them fresh, at the supermarket

it was a real no no.

Just recently I have cut out aspartme and artifical sweetners, and

now drinking filtered water.

I used to drink a lot of diet drinks, so that was stopped (and miss

them sorely) but I love ginger beer, and your recipe on homemade

ginger ale and ginger tea would be most welcome.

All the best - Carole

~~~

[Guest guest]

Hi Judith...Can I ask you what kind of cats you breed? I just bought my

second Ragdoll cat and I was wondering. Judy

[Guest guest]

>

> Oh Judith, it's so lovely to see you posting here. There is so

much

> to learn from all these brave and informative ladies (haven't

seen

> any post from men).

>

> Can't wait to make my first jug of ginger ale LOL. If you are

> unable to keep up with the volume of post, why don't you read it

> straight from the web site, I do:)

>

> All the best - Carole x

>

>

>

>

[Guest guest]

Hi Judy

I breed Burmese and I also have a Devon Rex who is adorable. Ragdolls are

really cute, truthfully I love all breeds and moggies but I just can't have them

all!!!

Judith

Re: [ ] Intro

Hi Judith...Can I ask you what kind of cats you breed? I just bought my

second Ragdoll cat and I was wondering. Judy

[Guest guest]

If you aren't doing well, Judith, I think it's time to bring out the

artillery.

The biologics include the TNF inhibitors Enbrel (etanercept), Remicade

(infliximab), and Humira (adalimumab) and the IL-1 inhibitor Kineret

(anakinra). Here's a very good article that contains a description of

the currently available biologics:

Hospital for Special Surgery

In-depth topic review of rheumatoid arthritis

http://rheumatology.hss.edu/phys/diseaseReviews/rheumArth/rheumArth_phys.asp

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Intro

>

>

> Welcome, Judith!

>

> When you tried the methotrexate, were you taking it orally or by

> injection? Often times it's tolerated better when taken by

injection. Or

> what about adding another DMARD to your sulphasalazine for better

> results - maybe hydroxychloroquine sulfate (Plaquenil)? What about

the

> biologics?

>

>

>