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Hi Helen,

Thanks for the kind words and the update, I am very interested in how you

make out with the Libido hormones, and the thyroid meds, please keep us

posted about that and your upcoming meeting with Burrascano's assistant. I

am sure it will be a rip-roaring success. (Make sure you get there early

enough to grab a seat!) Let us know about the IV meds too, I am praying it

will help you feel good soon. Hope you made it to the store...poor Kitty!

I had to laugh at the Lyme clock comment, so true!

Hugs,

Marta

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I'm really sorry you are having such a hard time of it, Helen.

At least when we say we know how you feel, we actually do!<G>

What is the name of your pain specialist? My Lyme doctor is handling the

pain meds but she is not a pain specialist and the last one i had

dropped me when I went to NIH to try a drug they were using for PHN. I

am on Duragesic for 9 years now and all it does is keep me from going

through withdrawal. I also have MS Contin but it is just too strong for

me so I don't ever take it but I would like to see if a pain specialist

has something else to offer and I already travel to central NJ twice a

month to see my lyme specialist so this might be what I need to do.....

I have been trying to ignore the suicidal ideation for a long time

now....of course it keeps rearing its ugly head but thank God I was

brought up on Jewish guilt, by a real master...so for now I am able to

keep the thoughts in check. They scare me though, I have to say. I got

lost coming home from a friend's house today, the first time I went out

in over 3 months on a social event...in fact I got lost twice and by the

time I got home I was hysterical but I was so late my husband figured

out what was going on and was waiting outside for me. When he saw that I

was crying he immediately came over to me to comfort me so I didn't get

carried away too badly on the " what's the point " trip.

This Lyme life is no easy feat to conquer, that's for SURE!

I guess the solution is for us all to make a pact to hang in there

TOGETHER!!!!!!!!!!!!!!!!

Hugs,

Alison

--

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  • 3 years later...

Ohhhhhhhhhhh... Here's !!!!!!! Good Luck with the Cable modem .

My daughter just got it and she loves it. She was telling me that she

flies around the internet like lightning....... Good to see you here

even if I am a day late!!!!!! ;o

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

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  • 6 years later...
Guest guest

Hi everyone, I am Leah..... The mum of Ethan in the...'Ethan and Family'

photos. I havent been posting for a couple of years or so due to life goings

on.. but just recently joined back in with the group and have been reading all

the posts. Hi Leanne, with the other Ethan, You actually inspired me to write.

Sorry to hear about your dad and i hope al goes well with him and his treatment.

I lost my mum 21/2 years ago to lung and liver cancer that had gone to the brain

with a tumour. she died of a massive brain hemorage 3 weeks after being

diagnosed aged at just 58 yrs. so one of the reasons i sort of lost things for a

while there. My heart goes out to you and yours. And i really wanted to wish

Ethan all the best for his surgery. My Ethan had the surgery as a preschooler so

i understand all you are going through and can honestly say i have never looked

back after ethans surgery. As time goes on his eyes look better and better and

according to the opthomologist he wont need any more. Although he has other

underlying muscle problems and intellectual problems which is now our biggest

battle as he is still in nappies at nearly 10 as he has limited muscle control

of bowel and bladder. he is slowly making progress and he is the mostloving and

kindest child i know. but then i am a little biased!!

Welcome to all the newies to the group, i bet there are heaps now and i will

soon get on and look at all the photos and things wen i have a spare couple of

hours. Take Care everyone

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  • 3 months later...
Guest guest

Thanks Don your the man with the infor.... thanks you have helped me more then you can ever imagine...... Barbara

From: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Tuesday, June 16, 2009 12:09:13 PMSubject: [ ] hi Everybody

I just want to remind everyone two ways this site offers info, besides the forum.

The LINKS section in the homepage menu.

We have a vast and growing links library for your use.

I keep it current.

The MESSAGE section in the homepage menu.

Click on messages.

- Next page, at the top is a search bar.

Type in a keyword, and click search.

All messages posted by members on that topic will show up.

homepage:

http://www.groups. / group/HepCWebWar riors/

love

don in ks

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Im just glad Scarlet gave me chance to help out.

All thanks to her.

love

don in ks

From: Barbara <wbarbarae@...>Subject: Re: [ ] hi Everybody Date: Tuesday, June 16, 2009, 2:53 PM

Thanks Don your the man with the infor.... thanks you have helped me more then you can ever imagine...... Barbara

From: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Tuesday, June 16, 2009 12:09:13 PMSubject: [ ] hi Everybody

I just want to remind everyone two ways this site offers info, besides the forum.

The LINKS section in the homepage menu.

We have a vast and growing links library for your use.

I keep it current.

The MESSAGE section in the homepage menu.

Click on messages.

- Next page, at the top is a search bar.

Type in a keyword, and click search.

All messages posted by members on that topic will show up.

homepage:

http://www.groups. / group/HepCWebWar riors/

love

don in ks

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