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  • 4 years later...

--- In blepharophimosis , lisa obrien <hplisaobr@...>

wrote:

>

> Hi Maeve,

>

> I am 's mum, also from Ireland!!! I have sent you an

email to say Hi!  My beautiful little aged 2 and a half has

BPES too, and had her first op when she was 6mths old in Our Lady's

Hospital, Crumlin with McCreery.  She is off to London for

her next surgery in April of this year to Mr Collin on Harley St.

>

> Delighted you have found the site, it is brilliant!

>

> Talk soon,

>

>

> Kildare, Ireland

>

>

>

>

> ________________________________

> From: maeveokeefe <maeveokeefe@...>

> blepharophimosis

> Sent: Sunday, 1 February, 2009 22:22:55

> Subject: blepharophimosis OMG!

>

>

> This Is Manic!Im 14, from Ireland & I Finally Found Out What My

> Condition Was Called, Its Blepharophimosis! Its So Unreal, I Never

Met

> ANYONE IN THIS WORLD with it, its so great, hoping to get a surgery

> this year, does it leave scard or anything??? please help?

>

>

>

> Send instant messages to your online friends

http://uk.messenger.

>

send me a massage on msn massager lisapower24@... or if you are

on facebook add me

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