Re: BPES - New England Locals

[Guest guest]

Hi

I'd go if travel were not an issue, meaning it is in the greater Boston area. After Jan 1st would be best.

How is everything? Not much new here. Just helping the kids get through school.

-Chris

From: michelle888_99 <michelle888_99@...>Subject: blepharophimosis BPES - New England Localsblepharophimosis Date: Tuesday, October 20, 2009, 10:40 AM

Hi everyone,I am in the process of putting together a function for people and families affected by BPES. It will be dinner and a HUGE amount of information, doctors, therapies, other peoples experiences. I am trying to get a feel for how many people would be intersted in something like this. Please let me know if you would like to attend. ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first stages. Thanks so much,__________________________________________________

[Guest guest]

Sound's excellent, I would love to attend!

--- In blepharophimosis , " michelle888_99 " <michelle888_99@...>

wrote:

>

> Hi everyone,

>

> I am in the process of putting together a function for people and families

affected by BPES. It will be dinner and a HUGE amount of information, doctors,

therapies, other peoples experiences. I am trying to get a feel for how many

people would be intersted in something like this. Please let me know if you

would like to attend.

>

> ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first

stages.

>

> Thanks so much,

>

>

[Guest guest]

I'd be interested as would my daughter (13 years old).On Oct 20, 2009, at 10:40 AM, michelle888_99 wrote:Hi everyone,I am in the process of putting together a function for people and families affected by BPES. It will be dinner and a HUGE amount of information, doctors, therapies, other peoples experiences. I am trying to get a feel for how many people would be intersted in something like this. Please let me know if you would like to attend. ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first stages. Thanks so much,

[Guest guest]

I'd definitely be interested

Ann

Colorado, USA

--- In blepharophimosis , " michelle888_99 " <michelle888_99@...>

wrote:

>

> Hi everyone,

>

> I am in the process of putting together a function for people and families

affected by BPES. It will be dinner and a HUGE amount of information, doctors,

therapies, other peoples experiences. I am trying to get a feel for how many

people would be intersted in something like this. Please let me know if you

would like to attend.

>

> ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first

stages.

>

> Thanks so much,

>

>

[Guest guest]

We would be interested as well and possibly willing to travel depending on the timing. Thanks for organizing. --Anne Weber--Chicago, IL USA( mom of Weber - 2 1/2 years old)From: paula Radding <pradding@...>blepharophimosis Sent: Tue, October 20, 2009 3:24:27 PMSubject: Re: blepharophimosis BPES - New England Locals

I'd be interested as would my daughter (13 years old).On Oct 20, 2009, at 10:40 AM, michelle888_ 99 wrote:Hi everyone,I am in the process of putting together a function for people and families affected by BPES. It will be dinner and a HUGE amount of information, doctors, therapies, other peoples experiences. I am trying to get a feel for how many people would be intersted in something like this. Please let me know if you would like to attend. ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first stages. Thanks so much,

[Guest guest]

,

It sounds great. Unfortunately it's to far to travel from the Netherlands. Succes with the project.

kind regards,

Dolph Heideman

The Netherlands

From: michelle888_99 <michelle888_99@...>Subject: blepharophimosis BPES - New England Localsblepharophimosis Date: Tuesday, October 20, 2009, 10:40 AM

Hi everyone,I am in the process of putting together a function for people and families affected by BPES. It will be dinner and a HUGE amount of information, doctors, therapies, other peoples experiences. I am trying to get a feel for how many people would be intersted in something like this. Please let me know if you would like to attend. ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first stages. Thanks so much,__________________________________________________

[Guest guest]

I would love to attend me my husband and our 3 kids as long as we could afford

it around that time please let us now as soon as you have a date. maybe even

more of my husbands family also I will have to mention it to them.

--- In blepharophimosis , " michelle888_99 " <michelle888_99@...>

wrote:

>

> Hi everyone,

>

> I am in the process of putting together a function for people and families

affected by BPES. It will be dinner and a HUGE amount of information, doctors,

therapies, other peoples experiences. I am trying to get a feel for how many

people would be intersted in something like this. Please let me know if you

would like to attend.

>

> ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first

stages.

>

> Thanks so much,

>

>

[Guest guest]

Hi ,

This sounds like a wonderful idea. We would love to go - please keep us posted.

From: michelle888_99 <michelle888_99@...>Subject: blepharophimosis BPES - New England Localsblepharophimosis Date: Tuesday, October 20, 2009, 2:40 PM

Hi everyone,I am in the process of putting together a function for people and families affected by BPES. It will be dinner and a HUGE amount of information, doctors, therapies, other peoples experiences. I am trying to get a feel for how many people would be intersted in something like this. Please let me know if you would like to attend. ANY ONE from ANY WHERE can go. Nothing is planned yet, it is in the first stages. Thanks so much,