Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 Hi. My son with BPES and various delays speech has improved with therapy 3 times per week starting at age one. He is now 5. It is sill delayed mostly with his expressive language. From: Caterina Cipolla <cipolla.caterina@...>blepharophimosis Sent: Wed, March 17, 2010 5:58:31 AMSubject: RE: blepharophimosis Back again Hallo i am caterina and my daughter 18 months, has also BEPS and she is also speech delays. How old are your children?Will it be better in future? Has anybody experience with it?--- joseph pulliam <jcpcarolina (DOT) rr.com> schrieb am Mi, 17.3.2010: Von: joseph pulliam <jcpcarolina (DOT) rr.com>Betreff: RE: blepharophimosis Back againAn: blepharophimosisDatum: Mittwoch, 17. März, 2010 01:36 Uhr My son has BPES, developmental delays and hypotonia. He was recently diagnosed with a duplication on Chromosome 10. The test was done at Duke Children’s Hospital. His physician is Dr. Marie Mc. Maureen From: blepharophimosis [mailto:blepharophi mosis@group s.com] On Behalf Of sandy redgateSent: Tuesday, March 16, 2010 5:06 PMblepharophimosisSubject: Re: blepharophimosis Back again Hi. I'm not from GA, I'm from MA. My son has BPES and also has developmental and speech delays as well as Hypotonia. I've heard from few that share this. Good luck and I am waiting for some add'l results from our Genetics Physician and will share. Sandy From: kim_mcnatt <kim_mcnatt (DOT) com>blepharophimosisSent: Tue, March 16, 2010 4:57:34 PMSubject: blepharophimosis Back again Hello,I have been a member of the support group but have not participated in a long time....Does anyone know of any genetics physicians (other than Emory Clinic) in the Atlanta, Ga area?I have heard they have done recent research on bpes and I am very interested if anyone has any current info. My son, has bpes with developmental delays, speech delays,ect.. .Thanks,Kim ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 Hi If people could let me know what state/town they live in, I will try to contact the genetics expert I know, and ask them for some names of geneticists who work nearby, who may be of help. Thanks Shireen Mohandes London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of sandy redgate Sent: 17 March 2010 10:58 blepharophimosis Subject: Re: blepharophimosis Back again Hi. My son with BPES and various delays speech has improved with therapy 3 times per week starting at age one. He is now 5. It is sill delayed mostly with his expressive language. From: Caterina Cipolla <cipolla.caterina@...> blepharophimosis Sent: Wed, March 17, 2010 5:58:31 AM Subject: RE: blepharophimosis Back again Hallo i am caterina and my daughter 18 months, has also BEPS and she is also speech delays. How old are your children?Will it be better in future? Has anybody experience with it? --- joseph pulliam <jcpcarolina (DOT) rr.com> schrieb am Mi, 17.3.2010: Von: joseph pulliam <jcpcarolina (DOT) rr.com> Betreff: RE: blepharophimosis Back again An: blepharophimosis Datum: Mittwoch, 17. März, 2010 01:36 Uhr My son has BPES, developmental delays and hypotonia. He was recently diagnosed with a duplication on Chromosome 10. The test was done at Duke Children’s Hospital. His physician is Dr. Marie Mc. Maureen From: blepharophimosis [mailto:blepharophi mosis@group s.com] On Behalf Of sandy redgate Sent: Tuesday, March 16, 2010 5:06 PM blepharophimosis Subject: Re: blepharophimosis Back again Hi. I'm not from GA, I'm from MA. My son has BPES and also has developmental and speech delays as well as Hypotonia. I've heard from few that share this. Good luck and I am waiting for some add'l results from our Genetics Physician and will share. Sandy From: kim_mcnatt <kim_mcnatt (DOT) com> blepharophimosis Sent: Tue, March 16, 2010 4:57:34 PM Subject: blepharophimosis Back again Hello, I have been a member of the support group but have not participated in a long time.... Does anyone know of any genetics physicians (other than Emory Clinic) in the Atlanta, Ga area? I have heard they have done recent research on bpes and I am very interested if anyone has any current info. My son, has bpes with developmental delays, speech delays,ect.. . Thanks, Kim ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 My son is 10 years old. He is definetly getting " better " and he has done everything he should do, he has just done it at his own slower pace. He still has ot and speech therapy but he is doing great! My son has adhd which is also a huge obstacle to his learning. --- In blepharophimosis , Caterina Cipolla <cipolla.caterina@...> wrote: > > > Hallo i am caterina and my daughter 18 months, has also BEPS and she is also speech delays. How old are your children?Will it be better in future? Has anybody experience with it? > > --- joseph pulliam <jcp@...> schrieb am Mi, 17.3.2010: > > > Von: joseph pulliam <jcp@...> > Betreff: RE: blepharophimosis Back again > An: blepharophimosis > Datum: Mittwoch, 17. März, 2010 01:36 Uhr > > >  > > > > > > My son has BPES, developmental delays and hypotonia. He was recently diagnosed with a duplication on Chromosome 10. The test was done at Duke Children’s Hospital. His physician is Dr. Marie Mc. >  > Maureen >  > > > From: blepharophimosis [mailto:blepharophi mosis@group s.com] On Behalf Of sandy redgate > Sent: Tuesday, March 16, 2010 5:06 PM > blepharophimosis > Subject: Re: blepharophimosis Back again >  >  > > > > > > Hi. I'm not from GA, I'm from MA. My son has BPES and also has developmental and speech delays as well as Hypotonia. I've heard from few that share this. > >  > > Good luck and I am waiting for some add'l results from our Genetics Physician and will share. > >  > > Sandy > >  > > > > > From: kim_mcnatt <kim_mcnatt (DOT) com> > blepharophimosis > Sent: Tue, March 16, 2010 4:57:34 PM > Subject: blepharophimosis Back again > >  > > Hello, > I have been a member of the support group but have not participated in a long time.... > Does anyone know of any genetics physicians (other than Emory Clinic) in the Atlanta, Ga area? > I have heard they have done recent research on bpes and I am very interested if anyone has any current info. My son, has bpes with developmental delays, speech delays,ect.. . > Thanks, > Kim >  > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 we live near Atlanta, Georgia > > Hi > > If people could let me know what state/town they live in, I will try to contact the genetics expert I know, and ask them for some names of geneticists who work nearby, who may be of help. > > Thanks > > Shireen Mohandes > > London, England > > > > From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of sandy redgate > Sent: 17 March 2010 10:58 > blepharophimosis > Subject: Re: blepharophimosis Back again > > > > > > Hi. My son with BPES and various delays speech has improved with therapy 3 times per week starting at age one. He is now 5. It is sill delayed mostly with his expressive language. > > > > _____ > > From: Caterina Cipolla <cipolla.caterina@...> > blepharophimosis > Sent: Wed, March 17, 2010 5:58:31 AM > Subject: RE: blepharophimosis Back again > > > > > > Hallo i am caterina and my daughter 18 months, has also BEPS and she is also speech delays. How old are your children?Will it be better in future? Has anybody experience with it? > > --- joseph pulliam <jcpcarolina (DOT) rr.com <http://rr.com/> > schrieb am Mi, 17.3.2010: > > > Von: joseph pulliam <jcpcarolina (DOT) rr.com> > Betreff: RE: blepharophimosis Back again > An: blepharophimosis > Datum: Mittwoch, 17. März, 2010 01:36 Uhr > > > > My son has BPES, developmental delays and hypotonia. He was recently diagnosed with a duplication on Chromosome 10. The test was done at Duke Children’s Hospital. His physician is Dr. Marie Mc. > > > > Maureen > > > > From: blepharophimosis [mailto:blepharophi mosis@group s.com <http://s.com/> ] On Behalf Of sandy redgate > Sent: Tuesday, March 16, 2010 5:06 PM > blepharophimosis > Subject: Re: blepharophimosis Back again > > > > > > Hi. I'm not from GA, I'm from MA. My son has BPES and also has developmental and speech delays as well as Hypotonia. I've heard from few that share this. > > > > Good luck and I am waiting for some add'l results from our Genetics Physician and will share. > > > > Sandy > > > > _____ > > From: kim_mcnatt <kim_mcnatt (DOT) com> > blepharophimosis > Sent: Tue, March 16, 2010 4:57:34 PM > Subject: blepharophimosis Back again > > > > Hello, > I have been a member of the support group but have not participated in a long time.... > Does anyone know of any genetics physicians (other than Emory Clinic) in the Atlanta, Ga area? > I have heard they have done recent research on bpes and I am very interested if anyone has any current info. My son, has bpes with developmental delays, speech delays,ect.. . > Thanks, > Kim > > > > > ____________ _________ _________ _________ _________ __ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2010 Report Share Posted September 15, 2010 > > hi > i am the vegiterian who was going to complete bee's diet on eggs i havent had a chance to start yet because of family problems > > i have alot of financial probs at the moment so can afford to start this diet yet, i have planned to start this diet sometime nxt year...but i will buy myself another mini cooker nd fridge to keep in the garage so i can eat meat for the time im on the diet.. this will take a good few months as im broke > > i have acne, hairloss,hirsuitism, tiredness and a few other small problems.. if im fully on the diet for two years my reccomended time these issues should go away?? > > i dont mean to doubt you bee and im no way defaming you i utterly respect ur passion this is why im making this sacrifice on the belief i can be healed but i saw this post from this lady who did your diet for 2 yrs she said she got more ill and got kidney stones(it was on some forum).. im worried that ill be with the same issues as i have now and be out of pocket.. plus my family are strict veggie's and hate me right now and i have to eat in the garage and wash my plate outside if i do decide to do this. +++Hi Niki, It is obvious the lady who " thought " she got more ill or got kidney stones was not following my program accurately. If my program caused problems we wouldn't have so many members of this group getting healthy on it, and I wouldn't be healthy myself. However I'm very healthy at 68 years old! For encouragement and inspiration see these wonderful Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php Bee Quote Link to comment Share on other sites More sharing options...
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