Re: suture granuloma after lid lift

[Guest guest]

Hi Tessa

Might it be an idea to take a close up photo with a good digital

camera, then try to email it to the consultant at Moorfields. You may be able

to guess their email address by looking at the Moorfields site. Otherwise, tell

me the name of the consultant or surgeon, and I will phone their secretary and

get an email address for you.

Otherwise, you might want to think about contacting Mr

Colin – he does have an email address. That would be going down the

private route. However, he may end up just suggesting that you contact somebody

or do something. I don’t really know.

In this forum there are at least 5 doctors. So perhaps one of

them could reply to you.

Regards

Shireen Mohandes

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of tessa_mackenzie

Sent: 23 February 2010 07:35

blepharophimosis

Subject: blepharophimosis suture granuloma after lid lift

Hi all

Our 2 year old daughter Shanti had sling surgery at Moorfields just before

Christmas. All the stitches absorbed without a problem except for one on the

forehead above her right eye. A small lump has formed, which I am told is

called a suture granuloma. The scab came off the lump once but has since healed

over again but the lump seems to be forming again which I assume means that the

stitch has still not been absorbed. It's not really infected but is sore. Of

course what we should do is go back and get it checked at Moorfields, but.. we

live in Nigeria at the moment and I've had not much luck at all getting anyone

to talk to at Moorfields on the phone. We've seen an opthalmologist here who

thought we could probably leave it until we are back in UK in the summer, we

don't want her to have it cut out here (which would mean a general anaesthetic)

unless absolutely necessary.

Does anyone else have experience of this? Is it likely to go away by itself?

(it's been around for over a month now). Is she likely to have a bigger scar

there if it is cut out? or if we leave it a few more months?

Thanks for any advice!

Tessa

[Guest guest]

Hi Tessa,

I really can't confirm if your situation is exactly like mine (since it is for a doctor to determine what the issue is) but from my own experience I can tell you that my daughter began to develop a "pimple-like" formation at the top of her brow which became a little larger with time. Long story short, it turned out that her body was rejecting the sutures and they needed to be taken out. Not what I had wanted to hear but reality.

Hope this helps.

From: tessa_mackenzie <tessamackenzie@...>blepharophimosis Sent: Tue, February 23, 2010 2:34:36 AMSubject: blepharophimosis suture granuloma after lid lift

Hi allOur 2 year old daughter Shanti had sling surgery at Moorfields just before Christmas. All the stitches absorbed without a problem except for one on the forehead above her right eye. A small lump has formed, which I am told is called a suture granuloma. The scab came off the lump once but has since healed over again but the lump seems to be forming again which I assume means that the stitch has still not been absorbed. It's not really infected but is sore. Of course what we should do is go back and get it checked at Moorfields, but.. we live in Nigeria at the moment and I've had not much luck at all getting anyone to talk to at Moorfields on the phone. We've seen an opthalmologist here who thought we could probably leave it until we are back in UK in the summer, we don't want her to have it cut out here (which would mean a general anaesthetic) unless absolutely necessary. Does anyone else have experience of this? Is it likely to go away

by itself? (it's been around for over a month now). Is she likely to have a bigger scar there if it is cut out? or if we leave it a few more months? Thanks for any advice!Tessa

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

[Guest guest]

Hi Tessa, Clare Teale - Herts UK

Hiya, my daughter Emy had her eye ops at 4 (she is now 14), she developed a lump above her eye, at about 2 years after the ops. (about that time - but cant quite remember).

Our family doctor gave us a strong course of antibiotics (which Mr Collin said was the right one to give - sorry dont know the name of the tablets), this didnt make it go away, so we took her to see Mr Collin in his private office. He booked us in to have it operated on, they put a tiny drain in it, after that when they removed the drain the lump and redness calmed down, and she has a tiny mark left.

I agree with Shireen if you can take a photo and maybe email Mr Collin, he may be able to advice exactly for your situation, as everyone is different. He does have experience and immediate knowledge of these things.

Good luck with it. Maybe you could ask the surgeon at Moorfields or the someone in their team.

Clare

From: tessa_mackenzie <tessamackenzie@...>Subject: blepharophimosis suture granuloma after lid liftblepharophimosis Date: Tuesday, 23 February, 2010, 7:34

Hi allOur 2 year old daughter Shanti had sling surgery at Moorfields just before Christmas. All the stitches absorbed without a problem except for one on the forehead above her right eye. A small lump has formed, which I am told is called a suture granuloma. The scab came off the lump once but has since healed over again but the lump seems to be forming again which I assume means that the stitch has still not been absorbed. It's not really infected but is sore. Of course what we should do is go back and get it checked at Moorfields, but.. we live in Nigeria at the moment and I've had not much luck at all getting anyone to talk to at Moorfields on the phone. We've seen an opthalmologist here who thought we could probably leave it until we are back in UK in the summer, we don't want her to have it cut out here (which would mean a general anaesthetic) unless absolutely necessary. Does anyone else have experience of this? Is it likely to go away

by itself? (it's been around for over a month now). Is she likely to have a bigger scar there if it is cut out? or if we leave it a few more months? Thanks for any advice!Tessa

[Guest guest]

Hi Tessa,

In our experience my son's granulomas also turned out to be his body rejecting

the slings. I agree its a great idea to take a good close-up and email the pic

to the experts.

In our case, the lumps came and went for about a year and a half, but towards

the last 6 months of that time changed appearance and obviously became a

problem.

This may not be your case, so please take with a grain of salt.

DB

--- In blepharophimosis , " tessa_mackenzie " <tessamackenzie@...>

wrote:

>

> Hi all

> Our 2 year old daughter Shanti had sling surgery at Moorfields just before

Christmas. All the stitches absorbed without a problem except for one on the

forehead above her right eye. A small lump has formed, which I am told is called

a suture granuloma. The scab came off the lump once but has since healed over

again but the lump seems to be forming again which I assume means that the

stitch has still not been absorbed. It's not really infected but is sore. Of

course what we should do is go back and get it checked at Moorfields, but.. we

live in Nigeria at the moment and I've had not much luck at all getting anyone

to talk to at Moorfields on the phone. We've seen an opthalmologist here who

thought we could probably leave it until we are back in UK in the summer, we

don't want her to have it cut out here (which would mean a general anaesthetic)

unless absolutely necessary.

> Does anyone else have experience of this? Is it likely to go away by itself?

(it's been around for over a month now). Is she likely to have a bigger scar

there if it is cut out? or if we leave it a few more months?

> Thanks for any advice!

> Tessa

>

[Guest guest]

My daughter also had this happen with both

eyes. Dr. Plager had to remove the sutures. She was less than a year old.

She will have another surgery to use the fascia muscle from her thigh some time

this year. She will be 4 in July.

Nicki

Venable

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of debbarfoot

Sent: Tuesday, February 23, 2010

5:46 PM

blepharophimosis

Subject: blepharophimosis Re:

suture granuloma after lid lift

Hi Tessa,

In our experience my son's granulomas also turned out to be his body rejecting

the slings. I agree its a great idea to take a good close-up and email the pic

to the experts.

In our case, the lumps came and went for about a year and a half, but towards

the last 6 months of that time changed appearance and obviously became a

problem.

This may not be your case, so please take with a grain of salt.

DB

>

> Hi all

> Our 2 year old daughter Shanti had sling surgery at Moorfields just before

Christmas. All the stitches absorbed without a problem except for one on the

forehead above her right eye. A small lump has formed, which I am told is

called a suture granuloma. The scab came off the lump once but has since healed

over again but the lump seems to be forming again which I assume means that the

stitch has still not been absorbed. It's not really infected but is sore. Of

course what we should do is go back and get it checked at Moorfields, but.. we

live in Nigeria

at the moment and I've had not much luck at all getting anyone to talk to at Moorfields

on the phone. We've seen an opthalmologist here who thought we could probably

leave it until we are back in UK in the summer, we don't want her to have it

cut out here (which would mean a general anaesthetic) unless absolutely

necessary.

> Does anyone else have experience of this? Is it likely to go away by

itself? (it's been around for over a month now). Is she likely to have a bigger

scar there if it is cut out? or if we leave it a few more months?

> Thanks for any advice!

> Tessa

>

[Guest guest]

Thanks all of you so much. Sorry for not responding sooner, our internet

connection suddenly disappeared and it's taken ages to sort it out. A few

questions in case you get a chance to reply again:

For those that had to have the stitches removed - does that mean that the sling

was no longer in place? I thought that if the stitches had been there for a few

weeks then the sling would still hold even if part of them had to be cut out, if

you see what I mean. And does it mean that they will re-do the surgery, or that

they can't redo it because the same thing will probably happen?

I will try emailing a photo to Mr Abou Rayyah, thanks for the offer to call them

Shireen. I will try from here and let you know if I don't have any luck. And

I'll try Mr Collin if I don't get anywhere with Moorfields.

Thanks again

Tessa

> >

> > Hi all

> > Our 2 year old daughter Shanti had sling surgery at Moorfields just before

Christmas. All the stitches absorbed without a problem except for one on the

forehead above her right eye. A small lump has formed, which I am told is called

a suture granuloma. The scab came off the lump once but has since healed over

again but the lump seems to be forming again which I assume means that the

stitch has still not been absorbed. It's not really infected but is sore. Of

course what we should do is go back and get it checked at Moorfields, but.. we

live in Nigeria at the moment and I've had not much luck at all getting anyone

to talk to at Moorfields on the phone. We've seen an opthalmologist here who

thought we could probably leave it until we are back in UK in the summer, we

don't want her to have it cut out here (which would mean a general anaesthetic)

unless absolutely necessary.

> > Does anyone else have experience of this? Is it likely to go away by itself?

(it's been around for over a month now). Is she likely to have a bigger scar

there if it is cut out? or if we leave it a few more months?

> > Thanks for any advice!

> > Tessa

> >

>

Thanks all of you so much. Sorry for not responding sooner, our internet

connection suddenly disappeared and it's taken ages to sort it out. A few

questions in case you get a chance to reply again:

For those that had to have the stitches removed - does that mean that the sling

was no longer in place? I thought that if the stitches had been there for a few

weeks then the sling would still hold even if part of them had to be cut out, if

you see what I mean. And does it mean that they will re-do the surgery, or that

they can't redo it because the same thing will probably happen?

I will try emailing a photo to Mr Abou Rayyah, thanks for the offer to call them

Shireen. I will try from here and let you know if I don't have any luck. And

I'll try Mr Collin if I don't get anywhere with Moorfields.

Thanks again

Tessa

[Guest guest]

Hi Tessa,

I'm happy to provide you with details of our experience. As I mentioned, the pimple like formation began to get larger. The Dr. said it was not an infection but that she was "reacting" to the foreign material used (slings used were synthetic material). As a side note, there could be correlation with the fact that my daughter has eczema and is extremely sensitive to many things.

To answer your question, they did have to remove the sutures, however, we were told that since 2 months had passed since her surgery that she may have developed some scar tissue that will help keep her eyes up...the question was to what degree. That's in fact what seems to have happened. So although the result is not exactly how we wanted it to be her eyes are bigger am I'm guessing that's because of the scar tissue that developed during the time her eyes were "UP". She has absolutely no sutures in her right now and her eyes look pretty good, except for one side of her eye where it dips...I guess no scar tissue formed in that area. You can see her pics under, "a". All of the above is not only my interpretation of things but my Dr's advice to me.

At the end of the day, we have decided that we will likely need to opt for the faschia latte procedure which is more invasive but she likely will not have a reaction to her own material (body).

I hope this helps.

Toronto-Canada

From: tessa_mackenzie <tessamackenzie@...>blepharophimosis Sent: Mon, March 8, 2010 1:30:14 PMSubject: blepharophimosis Re: suture granuloma after lid lift

Thanks all of you so much. Sorry for not responding sooner, our internet connection suddenly disappeared and it's taken ages to sort it out. A few questions in case you get a chance to reply again:For those that had to have the stitches removed - does that mean that the sling was no longer in place? I thought that if the stitches had been there for a few weeks then the sling would still hold even if part of them had to be cut out, if you see what I mean. And does it mean that they will re-do the surgery, or that they can't redo it because the same thing will probably happen?I will try emailing a photo to Mr Abou Rayyah, thanks for the offer to call them Shireen. I will try from here and let you know if I don't have any luck. And I'll try Mr Collin if I don't get anywhere with Moorfields. Thanks againTessa> >> > Hi all> > Our 2 year old daughter Shanti had sling surgery at Moorfields just before Christmas. All the stitches absorbed without a problem except for one on the forehead above her right eye. A small lump has formed, which I am told is called a suture granuloma. The scab came off the lump once but has since healed over again but the lump seems to be forming again which I assume means that the stitch has still not been absorbed. It's not really infected but is sore. Of course what we should do is go back and get it checked at Moorfields, but.. we live in Nigeria at the moment and I've had not much luck at all getting anyone to talk to at Moorfields on the phone. We've seen an opthalmologist here who thought we could probably leave it until we are back in UK in the summer, we don't want her to have it cut out

here (which would mean a general anaesthetic) unless absolutely necessary.> > Does anyone else have experience of this? Is it likely to go away by itself? (it's been around for over a month now). Is she likely to have a bigger scar there if it is cut out? or if we leave it a few more months?> > Thanks for any advice!> > Tessa> >>Thanks all of you so much. Sorry for not responding sooner, our internet connection suddenly disappeared and it's taken ages to sort it out. A few questions in case you get a chance to reply again:For those that had to have the stitches removed - does that mean that the sling was no longer in place? I thought that if the stitches had been there for a few weeks then the sling would still hold even if part of them had to be cut out, if you see what I mean. And does it mean that they will re-do the surgery, or that they can't redo it because the same thing will probably

happen?I will try emailing a photo to Mr Abou Rayyah, thanks for the offer to call them Shireen. I will try from here and let you know if I don't have any luck. And I'll try Mr Collin if I don't get anywhere with Moorfields. Thanks againTessa

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[Guest guest]

Tessa and ,

This is exactly what happened with my daughter AVERY. She

also had the synthetic material removed because her body was rejecting it. She

also will be having the faschia latte procedure later this year since she will

be turning 4 this July. Interesting…we thought she was the only child

rejecting the synthetic material.

Nicki Venable

Fort Wayne, Indiana

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Farruggio

Sent: Tuesday, March 09, 2010 9:10

AM

blepharophimosis

Subject: Re: blepharophimosis

Re: suture granuloma after lid lift

Hi Tessa,

I'm happy to provide you with details of our experience. As I

mentioned, the pimple like formation began to get larger. The

Dr. said it was not an infection but that she was

" reacting " to the foreign material used (slings used were synthetic

material). As a side note, there could be correlation with the fact that

my daughter has eczema and is extremely sensitive to many things.

To answer your question, they did have to remove the sutures, however,

we were told that since 2 months had passed since her surgery that she may

have developed some scar tissue that will help keep her eyes up...the question

was to what degree. That's in fact what seems to have happened. So

although the result is not exactly how we wanted it to be her eyes are bigger

am I'm guessing that's because of the scar tissue that developed during the

time her eyes were " UP " . She has absolutely no sutures in her

right now and her eyes look pretty good, except for one side of her eye

where it dips...I guess no scar tissue formed in that area. You can see

her pics under, " a " . All of the above is not only my

interpretation of things but my Dr's advice to me.

At the end of the day, we have decided that we will likely need to opt

for the faschia latte procedure which is more invasive but she likely will

not have a reaction to her own material (body).

I hope this helps.

Toronto-Canada

From: tessa_mackenzie

<tessamackenziefastmail (DOT) fm>

blepharophimosis

Sent: Mon, March 8, 2010 1:30:14

PM

Subject: blepharophimosis Re:

suture granuloma after lid lift

Thanks all of you so much. Sorry for not responding

sooner, our internet connection suddenly disappeared and it's taken ages to

sort it out. A few questions in case you get a chance to reply again:

For those that had to have the stitches removed - does that mean that the sling

was no longer in place? I thought that if the stitches had been there for a few

weeks then the sling would still hold even if part of them had to be cut out,

if you see what I mean. And does it mean that they will re-do the surgery, or

that they can't redo it because the same thing will probably happen?

I will try emailing a photo to Mr Abou Rayyah, thanks for the offer to call

them Shireen. I will try from here and let you know if I don't have any luck.

And I'll try Mr Collin if I don't get anywhere with Moorfields.

Thanks again

Tessa

> >

> > Hi all

> > Our 2 year old daughter Shanti had sling surgery at Moorfields just

before Christmas. All the stitches absorbed without a problem except for one on

the forehead above her right eye. A small lump has formed, which I am told is

called a suture granuloma. The scab came off the lump once but has since healed

over again but the lump seems to be forming again which I assume means that the

stitch has still not been absorbed. It's not really infected but is sore. Of

course what we should do is go back and get it checked at Moorfields, but.. we

live in Nigeria

at the moment and I've had not much luck at all getting anyone to talk to at

Moorfields on the phone. We've seen an opthalmologist here who thought we could

probably leave it until we are back in UK in the summer, we don't want her to

have it cut out here (which would mean a general anaesthetic) unless absolutely

necessary.

> > Does anyone else have experience of this? Is it likely to go away by

itself? (it's been around for over a month now). Is she likely to have a bigger

scar there if it is cut out? or if we leave it a few more months?

> > Thanks for any advice!

> > Tessa

> >

>

Thanks all of you so much. Sorry for not responding sooner, our internet

connection suddenly disappeared and it's taken ages to sort it out. A few

questions in case you get a chance to reply again:

For those that had to have the stitches removed - does that mean that the sling

was no longer in place? I thought that if the stitches had been there for a few

weeks then the sling would still hold even if part of them had to be cut out,

if you see what I mean. And does it mean that they will re-do the surgery, or

that they can't redo it because the same thing will probably happen?

I will try emailing a photo to Mr Abou Rayyah, thanks for the offer to call

them Shireen. I will try from here and let you know if I don't have any luck.

And I'll try Mr Collin if I don't get anywhere with Moorfields.

Thanks again

Tessa

Looking for the perfect gift? Give the gift of Flickr!

[Guest guest]

Many thanks Nicki and . That's very helpful. Shanti's right eye lid where

the granuloma has formed is now considerably lower than the left. It's hard to

say whether it has slipped because of the granuloma or if it would have done

anyway - my son, Bipin had the same operation and both his lids slipped

considerably over time, although they are still lifted enough to do the job. I

think I will try and contact Mr Collin and get his opinion - does anyone have an

email address for him?

Many thanks!

Tessa

> > >

> > > Hi all

> > > Our 2 year old daughter Shanti had sling surgery at Moorfields just before

Christmas. All the stitches absorbed without a problem except for one on the

forehead above her right eye. A small lump has formed, which I am told is called

a suture granuloma. The scab came off the lump once but has since healed over

again but the lump seems to be forming again which I assume means that the

stitch has still not been absorbed. It's not really infected but is sore. Of

course what we should do is go back and get it checked at Moorfields, but.. we

live in Nigeria at the moment and I've had not much luck at all getting anyone

to talk to at Moorfields on the phone. We've seen an opthalmologist here who

thought we could probably leave it until we are back in UK in the summer, we

don't want her to have it cut out here (which would mean a general anaesthetic)

unless absolutely necessary.

> > > Does anyone else have experience of this? Is it likely to go away by

itself? (it's been around for over a month now). Is she likely to have a bigger

scar there if it is cut out? or if we leave it a few more months?

> > > Thanks for any advice!

> > > Tessa

> > >

> >

> Thanks all of you so much. Sorry for not responding sooner, our internet

connection suddenly disappeared and it's taken ages to sort it out. A few

questions in case you get a chance to reply again:

> For those that had to have the stitches removed - does that mean that the

sling was no longer in place? I thought that if the stitches had been there for

a few weeks then the sling would still hold even if part of them had to be cut

out, if you see what I mean. And does it mean that they will re-do the surgery,

or that they can't redo it because the same thing will probably happen?

> I will try emailing a photo to Mr Abou Rayyah, thanks for the offer to call

them Shireen. I will try from here and let you know if I don't have any luck.

And I'll try Mr Collin if I don't get anywhere with Moorfields.

> Thanks again

> Tessa

>

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