Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Hi Maeve, My Daughter Savannah is also 15 and has BPES...I will get her on here and she would love to talk to you. Neither her or I have ever met anyone who has the same thing. She has had Many reconstructive surgeries which have rendered great success. But I know in her heart she has always wished to have one other person who could understand how she feels and the things she deals with. I am so excited that the two of you are of the same age....I think you will both have much to share. Blessings to you, and I look forward to hearing more and connecting you and Savannah. (Savannah's Mom) > > Hey Guys. Im Maeve, Im just turned 15 and I was wondering if there's many teenagers out there with BPES, 'cos Im from Ireland, where there is about 4 people with BPES, including me and my brother so theres no one really to talk to about it, and my mum doesn't quite know how to talk about it (as it was passed on from my dad) but fair play to her for doing her best. So if anyone there around my age wants to talk about it, Im all for it. > > Thanks . > Maeve. > Quote Link to comment Share on other sites More sharing options...
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