Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Bev, Thanks so much for reaching out to me....I really need to get these things out and I want to do it right the first time around....Im hoping to find a great dr and I dont care where I have to travel..you guys are so great thanks for the support it means the world to me to know I'm not alone. in NY From: "moodynomad@..." <moodynomad@...> Sent: Thu, February 17, 2011 9:21:20 PMSubject: Re: new memeber Hi - don't ever be sorry - vent all you want and ask Anything! This is your safe place where you can find out details about this scary, lonely illness from women who have been in your shoes. My husband and I were on the fritz because my worst part of the illness came in the 1st year of our marriage (last year). He too was convinced i was sick from something else and calling all his Dr friends to try to convince me to stop seeing my alternative drs. it was a nightmare. It just compelled me to prove I wasn't crazy because all they could find in the vials and vials of blood they took was that i had a positive ANA and high cortisol levels. So I did lots and lots of research. Turns out, he's totally on board now and i've educated him completely. Thank God. but I can't imagine the stress with 6 kids!! i'm sorry you don't have your family's support. that is so important. I know a girl who traveled across the US to see Dr Feng in ohio... when they know you're traveling, they do the consult the day before the surgery i think. and as for stiches out- i think i remember her saying you can find a local dr to get them out. She did recover in a hotel room. I think she hired someone to help her the day after. it's all very stressful I know, just wanted to extend my support to you . I had to see many Drs before I could find one that understood and helps. Bev in CA---------- Original Message ----------From: Condon <mamacondon6@...> Subject: new memeberDate: Tue, 15 Feb 2011 05:21:45 -0800 (PST) Hi, Believe it or not I'm not computer savoy at all, I'm not sure I'm in the right format to send a message to the group or not, so i apologize if I'm in the wrong place.I think I signed up for only individual messages? Okay, I'm hoping to get explant surgery by one of the recommended surgeons, but I will travel from NY, how does that work? They do a consult and then you travel back for the surgery on a different day? Do you stay in a hotel while you recover? How about follow up visits? Just wondering if anyone has done it this way , and how it worked in real life. I have six kids and a career in law-enforcement , and if I go to Atlanta, I would have to make all kinds of arrangements...it would be worth it...just would like to talk to someone who has done the long distance explant. I hope I'm not bothering anyone, I feel very alone, my family doesn't know I did this in the first place ,so I can't expect any help there . And my husband and I are having problems ( 20 yrs married) because my health problems are really taking a toll on our marriage. He doesn't understand why I feel horrible all the time because it wont show up on any test. He is starting to say stuff like it's in my head and maybe I should take anxiety meds. or anti-depressants. I don't believe in regular meds and drs. I got to a ND and treat all ailments w/ homeopathic remedies. My dr is not helpful w/ any tests, he wants me to take a pill and relax!! I am really very alone in this fight thanks for being there and listening.....I'm sorry if I'm in the wrong place..if so can someone point out the right spot to go ...I don't do this computer thing at all...Thanks again We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list. ____________________________________________________________$65/Hr Job - 25 OpeningsPart-Time job ($20-$65/hr). Requirements: Home Internet AccessChannel11NewsReport.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Now we have 2 's in the same boat. Welcome in NY! Sorry your suffering the same miserable problems as me or us. This has taken a toll on my marriage for SAME REASONS, he is onboard now finally but he waited till I am half dead so I consider him an idiot. I get sad that my marriage is ok when I'm healthy, so we may not really be through sickness and health. My single friends say how their lonely, but I don't wanna tell them I am too and because these implants ruined everything. (I don't want them to know I have them) I'm waiting to see if Dr, Kolb will take my insurance. I went on 2 horrible consults in Phoenix area. Now, my search for the right doc for right price is on hold cuz I'm moving in which I am sleeping all day so I can't even pack. Well I'm not on the mend yet so have no advice for that, but I'm still sick with implants like you. in Az From: mamacondon6@...Date: Fri, 18 Feb 2011 05:39:42 -0800Subject: Re: new memeber Bev, Thanks so much for reaching out to me....I really need to get these things out and I want to do it right the first time around....Im hoping to find a great dr and I dont care where I have to travel..you guys are so great thanks for the support it means the world to me to know I'm not alone. in NY From: "moodynomad@..." <moodynomad@...> Sent: Thu, February 17, 2011 9:21:20 PMSubject: Re: new memeber Hi - don't ever be sorry - vent all you want and ask Anything! This is your safe place where you can find out details about this scary, lonely illness from women who have been in your shoes. My husband and I were on the fritz because my worst part of the illness came in the 1st year of our marriage (last year). He too was convinced i was sick from something else and calling all his Dr friends to try to convince me to stop seeing my alternative drs. it was a nightmare. It just compelled me to prove I wasn't crazy because all they could find in the vials and vials of blood they took was that i had a positive ANA and high cortisol levels. So I did lots and lots of research. Turns out, he's totally on board now and i've educated him completely. Thank God. but I can't imagine the stress with 6 kids!! i'm sorry you don't have your family's support. that is so important. I know a girl who traveled across the US to see Dr Feng in ohio... when they know you're traveling, they do the consult the day before the surgery i think. and as for stiches out- i think i remember her saying you can find a local dr to get them out. She did recover in a hotel room. I think she hired someone to help her the day after. it's all very stressful I know, just wanted to extend my support to you . I had to see many Drs before I could find one that understood and helps. Bev in CA---------- Original Message ----------From: Condon <mamacondon6@...> Subject: new memeberDate: Tue, 15 Feb 2011 05:21:45 -0800 (PST) Hi, Believe it or not I'm not computer savoy at all, I'm not sure I'm in the right format to send a message to the group or not, so i apologize if I'm in the wrong place.I think I signed up for only individual messages? Okay, I'm hoping to get explant surgery by one of the recommended surgeons, but I will travel from NY, how does that work? They do a consult and then you travel back for the surgery on a different day? Do you stay in a hotel while you recover? How about follow up visits? Just wondering if anyone has done it this way , and how it worked in real life. I have six kids and a career in law-enforcement , and if I go to Atlanta, I would have to make all kinds of arrangements...it would be worth it...just would like to talk to someone who has done the long distance explant. I hope I'm not bothering anyone, I feel very alone, my family doesn't know I did this in the first place ,so I can't expect any help there . And my husband and I are having problems ( 20 yrs married) because my health problems are really taking a toll on our marriage. He doesn't understand why I feel horrible all the time because it wont show up on any test. He is starting to say stuff like it's in my head and maybe I should take anxiety meds. or anti-depressants. I don't believe in regular meds and drs. I got to a ND and treat all ailments w/ homeopathic remedies. My dr is not helpful w/ any tests, he wants me to take a pill and relax!! I am really very alone in this fight thanks for being there and listening.....I'm sorry if I'm in the wrong place..if so can someone point out the right spot to go ...I don't do this computer thing at all...Thanks again We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list. ____________________________________________________________$65/Hr Job - 25 OpeningsPart-Time job ($20-$65/hr). Requirements: Home Internet AccessChannel11NewsReport.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hi , My friends and family don't know I have implants either so I am very alone...I have unbelievable news..I called Dr Kolb today and I talked directly to her within minutes of making my very first phone call to her office!!! WOW a Dr that really cares ..I'm in total shock....but pleasantly for a change I am excited that she says she will try to handle my insurance and can see me ASAP.....now I just need to get my husband on board, make work arrangements, babysitting for 6 kids, travel plans etc... I feel like this is an exciting time even though it's incredibly overwhelming I cant wait to start feeling better....I live a very clean life otherwise-organic foods, only homeopathic remedies...I got these toxic bags in a moment of weakness when I didn't feel very good about my worn out. saggy six-baby-body, droopy boobs from nursing. I'm going to try to remember that I have a magnificent body that grew children and nourished them...I need to replace some of the bad talk that I say to myself....and be proud of my body. Thanks so much for listening and being there , I hope you get good news from Dr Kolb let me know how you make out...I think tonight I need to have a sit down w/ hubby and try to get him to hear me...I don't have much hope..I pray you will get the answers you need to be on your way to feeling better..talk to you soon From: Lengyel <tracylengyel@...> Sent: Fri, February 18, 2011 3:22:44 PMSubject: RE: new memeber Now we have 2 's in the same boat. Welcome in NY! Sorry your suffering the same miserable problems as me or us. This has taken a toll on my marriage for SAME REASONS, he is onboard now finally but he waited till I am half dead so I consider him an idiot. I get sad that my marriage is ok when I'm healthy, so we may not really be through sickness and health. My single friends say how their lonely, but I don't wanna tell them I am too and because these implants ruined everything. (I don't want them to know I have them) I'm waiting to see if Dr, Kolb will take my insurance. I went on 2 horrible consults in Phoenix area. Now, my search for the right doc for right price is on hold cuz I'm moving in which I am sleeping all day so I can't even pack. Well I'm not on the mend yet so have no advice for that, but I'm still sick with implants like you. in Az From: mamacondon6@...Date: Fri, 18 Feb 2011 05:39:42 -0800Subject: Re: new memeber Bev, Thanks so much for reaching out to me....I really need to get these things out and I want to do it right the first time around....Im hoping to find a great dr and I dont care where I have to travel..you guys are so great thanks for the support it means the world to me to know I'm not alone. in NY From: "moodynomad@..." <moodynomad@...> Sent: Thu, February 17, 2011 9:21:20 PMSubject: Re: new memeber Hi - don't ever be sorry - vent all you want and ask Anything! This is your safe place where you can find out details about this scary, lonely illness from women who have been in your shoes. My husband and I were on the fritz because my worst part of the illness came in the 1st year of our marriage (last year). He too was convinced i was sick from something else and calling all his Dr friends to try to convince me to stop seeing my alternative drs. it was a nightmare. It just compelled me to prove I wasn't crazy because all they could find in the vials and vials of blood they took was that i had a positive ANA and high cortisol levels. So I did lots and lots of research. Turns out, he's totally on board now and i've educated him completely. Thank God. but I can't imagine the stress with 6 kids!! i'm sorry you don't have your family's support. that is so important. I know a girl who traveled across the US to see Dr Feng in ohio... when they know you're traveling, they do the consult the day before the surgery i think. and as for stiches out- i think i remember her saying you can find a local dr to get them out. She did recover in a hotel room. I think she hired someone to help her the day after. it's all very stressful I know, just wanted to extend my support to you . I had to see many Drs before I could find one that understood and helps. Bev in CA---------- Original Message ----------From: Condon <mamacondon6@...> Subject: new memeberDate: Tue, 15 Feb 2011 05:21:45 -0800 (PST) Hi, Believe it or not I'm not computer savoy at all, I'm not sure I'm in the right format to send a message to the group or not, so i apologize if I'm in the wrong place.I think I signed up for only individual messages? Okay, I'm hoping to get explant surgery by one of the recommended surgeons, but I will travel from NY, how does that work? They do a consult and then you travel back for the surgery on a different day? Do you stay in a hotel while you recover? How about follow up visits? Just wondering if anyone has done it this way , and how it worked in real life. I have six kids and a career in law-enforcement , and if I go to Atlanta, I would have to make all kinds of arrangements...it would be worth it...just would like to talk to someone who has done the long distance explant. I hope I'm not bothering anyone, I feel very alone, my family doesn't know I did this in the first place ,so I can't expect any help there . And my husband and I are having problems ( 20 yrs married) because my health problems are really taking a toll on our marriage. He doesn't understand why I feel horrible all the time because it wont show up on any test. He is starting to say stuff like it's in my head and maybe I should take anxiety meds. or anti-depressants. I don't believe in regular meds and drs. I got to a ND and treat all ailments w/ homeopathic remedies. My dr is not helpful w/ any tests, he wants me to take a pill and relax!! I am really very alone in this fight thanks for being there and listening.....I'm sorry if I'm in the wrong place..if so can someone point out the right spot to go ...I don't do this computer thing at all...Thanks again We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.____________________________________________________________$65/Hr Job - 25 OpeningsPart-Time job ($20-$65/hr). Requirements: Home Internet AccessChannel11NewsReport.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 ~ What a blessing ! Dr Kolb is one of our angels... She has been there ( silicone rupture and became very ill ) and she has a whole protocol for detoxing and healing. I hope to one day see her myself. Everyone is right in that they need to love their body as it is their own personal palace. The body has a miraculous way of healing itself given the right tools, right positive mindset, faith, and proper intake of nutrients. I read a site about intuitive eating which is very interesting approach to a good nutricional lifestyle. http://www.intuitiveeating.org/content/what-intuitive-eating about creating a healthy realationship with food, mind & body. Know you have all the hope in the world always ! Approach everything in life with hope...When you approach your husband do it positively and with hope and his response will be more positive. Positive attracts positive, and negative attracts negative..... Its true.....and if at first he resists, just stay positive about it...and eventually, he will be to. Men have a personality in which they must " fix " things..... and this isnt something they can " fix " so they feel helpless and can be negative about it...so, when you approach him with the problem, you will have the solution at hand, and he wont need to fix something you have the solution to. If he has negative replies to what you say, respond with positive responses... I am sure things will go well. Focus in your mind on that that is positive, vibrant, healthy, happy. This is what will radiate from you....you will begin to feel so much better. If you focus on being ill, feelin crappy, and what is not possible, then that is what will be. I am so happy for you ! Happy journey and healing ! ! Dede When the power of love overcomes the love of power the world will know peace. ~ Jimi Hendrix Re: new memeber Hi - don't ever be sorry - vent all you want and ask Anything! This is your safe place where you can find out details about this scary, lonely illness from women who have been in your shoes. My husband and I were on the fritz because my worst part of the illness came in the 1st year of our marriage (last year). He too was convinced i was sick from something else and calling all his Dr friends to try to convince me to stop seeing my alternative drs. it was a nightmare. It just compelled me to prove I wasn't crazy because all they could find in the vials and vials of blood they took was that i had a positive ANA and high cortisol levels. So I did lots and lots of research. Turns out, he's totally on board now and i've educated him completely. Thank God. but I can't imagine the stress with 6 kids!! i'm sorry you don't have your family's support. that is so important. I know a girl who traveled across the US to see Dr Feng in ohio... when they know you're traveling, they do the consult the day before the surgery i think. and as for stiches out- i think i remember her saying you can find a local dr to get them out. She did recover in a hotel room. I think she hired someone to help her the day after. it's all very stressful I know, just wanted to extend my support to you . I had to see many Drs before I could find one that understood and helps. Bev in CA ----- new memeber Date: Tue, 15 Feb 2011 05:21:45 -0800 (PST) Hi, Believe it or not I'm not computer savoy at all, I'm not sure I'm in the right format to send a message to the group or not, so i apologize if I'm in the wrong place.I think I signed up for only individual messages? Okay, I'm hoping to get explant surgery by one of the recommended surgeons, but I will travel from NY, how does that work? They do a consult and then you travel back for the surgery on a different day? Do you stay in a hotel while you recover? How about follow up visits? Just wondering if anyone has done it this way , and how it worked in real life. I have six kids and a career in law-enforcement , and if I go to Atlanta, I would have to make all kinds of arrangements...it would be worth it...just would like to talk to someone who has done the long distance explant. I hope I'm not bothering anyone, I feel very alone, my family doesn't know I did this in the first place ,so I can't expect any help there . And my husband and I are having problems ( 20 yrs married) because my health problems are really taking a toll on our marriage. He doesn't understand why I feel horrible all the time because it wont show up on any test. He is starting to say stuff like it's in my head and maybe I should take anxiety meds. or anti-depressants. I don't believe in regular meds and drs. I got to a ND and treat all ailments w/ homeopathic remedies. My dr is not helpful w/ any tests, he wants me to take a pill and relax!! I am really very alone in this fight thanks for being there and listening.....I'm sorry if I'm in the wrong place..if so can someone point out the right spot to go ...I don't do this computer thing at all...Thanks again We won't tell. Get more on shows you hate to love (and love to hate): TV's Guilty Pleasures list. ____________________________________________________________ $65/Hr Job - 25 Openings Part-Time job ($20-$65/hr). Requirements: Home Internet Access Channel11NewsReport.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Hooray, . Hooray for Dr. Kolb! I'll be praying that good options open for help with the 6 kids as you navigate this. Many of the women who have breast cancer surgery don't want to mention their diagnosis to friends and family. They shouldn't have to. Say you are going to have surgery and need childcare help. Real friends will be there for you and won't push for details that you're not comfortable sharing. Hugs of support, M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 I love you, Dede. I know you wrote these words of support to , but they were just what I needed to hear today too. You are an angel. Hugs, M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 ~ I am so happy that my thoughts and words touched you in a way you needed today ! That makes MY heart happy ! ! I love you too ! you always send hugs of support and are so careing. This is what we all need ! We are sooooo worth it ! Hugs N Prayers Dede When the power of love overcomes the love of power the world will know peace. ~ Jimi Hendrix Re: new memeber I love you, Dede. I know you wrote these words of support to , but they were just what I needed to hear today too. You are an angel. Hugs, M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 You know.....details are just details....no one needs to know. If you feel compelled to have an answer for some, but without tellin full details, the truth is, you have painful masses in there and they are goin in and removing anything that doesnt belong in there. They will also do pathology as well, so it can also be considered as biopsy's of lumps.....dont have to say what kind of lumps.... Hugs Dede When the power of love overcomes the love of power the world will know peace. ~ Jimi Hendrix Re: new memeber Hooray, . Hooray for Dr. Kolb! I'll be praying that good options open for help with the 6 kids as you navigate this. Many of the women who have breast cancer surgery don't want to mention their diagnosis to friends and family. They shouldn't have to. Say you are going to have surgery and need childcare help. Real friends will be there for you and won't push for details that you're not comfortable sharing. Hugs of support, M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Hey In AZ this is from NY I sent you an email directly ,but it may have gotten blocked or sent to your spam..I'm computer illiterate forgive me! I hope you get it . Hear from you soon. . From: Lengyel <tracylengyel@...> Sent: Fri, February 18, 2011 3:22:44 PMSubject: RE: new memeber Now we have 2 's in the same boat. Welcome in NY! Sorry your suffering the same miserable problems as me or us. This has taken a toll on my marriage for SAME REASONS, he is onboard now finally but he waited till I am half dead so I consider him an idiot. I get sad that my marriage is ok when I'm healthy, so we may not really be through sickness and health. My single friends say how their lonely, but I don't wanna tell them I am too and because these implants ruined everything. (I don't want them to know I have them) I'm waiting to see if Dr, Kolb will take my insurance. I went on 2 horrible consults in Phoenix area. Now, my search for the right doc for right price is on hold cuz I'm moving in which I am sleeping all day so I can't even pack. Well I'm not on the mend yet so have no advice for that, but I'm still sick with implants like you. in Az From: mamacondon6@...Date: Fri, 18 Feb 2011 05:39:42 -0800Subject: Re: new memeber Bev, Thanks so much for reaching out to me....I really need to get these things out and I want to do it right the first time around....Im hoping to find a great dr and I dont care where I have to travel..you guys are so great thanks for the support it means the world to me to know I'm not alone. in NY From: "moodynomad@..." <moodynomad@...> Sent: Thu, February 17, 2011 9:21:20 PMSubject: Re: new memeber Hi - don't ever be sorry - vent all you want and ask Anything! This is your safe place where you can find out details about this scary, lonely illness from women who have been in your shoes. My husband and I were on the fritz because my worst part of the illness came in the 1st year of our marriage (last year). He too was convinced i was sick from something else and calling all his Dr friends to try to convince me to stop seeing my alternative drs. it was a nightmare. It just compelled me to prove I wasn't crazy because all they could find in the vials and vials of blood they took was that i had a positive ANA and high cortisol levels. So I did lots and lots of research. Turns out, he's totally on board now and i've educated him completely. Thank God. but I can't imagine the stress with 6 kids!! i'm sorry you don't have your family's support. that is so important. I know a girl who traveled across the US to see Dr Feng in ohio... when they know you're traveling, they do the consult the day before the surgery i think. and as for stiches out- i think i remember her saying you can find a local dr to get them out. She did recover in a hotel room. I think she hired someone to help her the day after. it's all very stressful I know, just wanted to extend my support to you . I had to see many Drs before I could find one that understood and helps. Bev in CA---------- Original Message ----------From: Condon <mamacondon6@...> Subject: new memeberDate: Tue, 15 Feb 2011 05:21:45 -0800 (PST) Hi, Believe it or not I'm not computer savoy at all, I'm not sure I'm in the right format to send a message to the group or not, so i apologize if I'm in the wrong place.I think I signed up for only individual messages? Okay, I'm hoping to get explant surgery by one of the recommended surgeons, but I will travel from NY, how does that work? They do a consult and then you travel back for the surgery on a different day? Do you stay in a hotel while you recover? How about follow up visits? Just wondering if anyone has done it this way , and how it worked in real life. I have six kids and a career in law-enforcement , and if I go to Atlanta, I would have to make all kinds of arrangements...it would be worth it...just would like to talk to someone who has done the long distance explant. I hope I'm not bothering anyone, I feel very alone, my family doesn't know I did this in the first place ,so I can't expect any help there . And my husband and I are having problems ( 20 yrs married) because my health problems are really taking a toll on our marriage. He doesn't understand why I feel horrible all the time because it wont show up on any test. He is starting to say stuff like it's in my head and maybe I should take anxiety meds. or anti-depressants. I don't believe in regular meds and drs. I got to a ND and treat all ailments w/ homeopathic remedies. My dr is not helpful w/ any tests, he wants me to take a pill and relax!! I am really very alone in this fight thanks for being there and listening.....I'm sorry if I'm in the wrong place..if so can someone point out the right spot to go ...I don't do this computer thing at all...Thanks again We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.____________________________________________________________$65/Hr Job - 25 OpeningsPart-Time job ($20-$65/hr). Requirements: Home Internet AccessChannel11NewsReport.com Quote Link to comment Share on other sites More sharing options...
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