headaches

[Guest guest]

> For me, Flagyl was a godsend for my Lyme Meningitis and Encephalopathy.

I did just over a year of Flagyl, stopped it 4-02. I am on Zith/Amox, again

, I had done this combo for 16 months, just before the Flagyl. I see LLMD

in a couple of weeks, I FORGOT to make my appt last month! UGH! LOLOL So

far so good with the Advil , or is it Aleve? LOL I am hoping they keep

working. It amazes me that such a cheap OTC med worked, when all these durn

rx's didn't.

Hope everyone has a FANTASTIC NEW YEAR!!!!!!!!

[Guest guest]

In a message dated 12/20/2002 4:59:03 AM Eastern Standard Time, rod@...

writes:

> I have had horrible intractable headaches for 2 months straight. I have

> tried Imitrex, Verapamil and Frova and another one that didn't work but I

> cannot recall the name. Nothing is helping.

Dear ,

I thought I had tried everything for my migraines, but never heard of either

Verapamil or Frova!

Imitrex comes in tablet form, nasal spray, and injection form. I used to use

it, with so-so results, but better than anything before.

Then I used a newer med called Zomig, which, like Imitrex, is a " -Triptan "

type med. Again, mixed results.

Then a newer triptan med came on the market, called Maxalt-MLT, and for me

this works by far the best.

The MLT stands for " melt, " as it is taken sublingually, it " melts/disssolves "

under your tongue.

It is packaged brilliantly to make it waterproof, as when exposed to

water/humidity, it would break down.

The clever packaging is designed so that you can carry it with you & take it

at any time during a migraine, no matter how far into the headache you are,

and you don't need water to swallow it, it just dissolves. Not only is it

convenient, but it leaves behind a slightly minty taste, very pleasant. I

get no unpleasant side effects at all, just pure headache relief.

You asked, I answered... about what works best for me.

I hope that my experience helps others who suffer from migraines.

Hugs,

a Aida

[Guest guest]

I would look at perhaps what he is eating. For example many cheese

crackers have MSG in them which is known to trigger headaches in some

people.

Is it just during school or summer as well? Have you seen a

neuroligist?

denise

> Hi, My son is a six year old with global dyspraxia.I have done

everything

> there is to do ( speech,ot,oculermotor therapies, cranial

ajustments,efa's) with

> consistent results. My concern is his headaches for years now at

least 3 times

> a week (forehead area above left eye). He will start full day

school with

> support soon and will have more pressure than ever. How can I

remove the added

> stress of a headache so he can over come his disability? Thanks

for your time,

> Peggy

>

>

>

[Guest guest]

I would check with your neurologist. Hope had verbal apraxia, and she

frequently gets headaches in her forehead area and above her eyes. Hers also

include sensitivity to light, get worse with movement, and at times she gets an

upset stomach with them as well. Just from personal experience I thought hers

sounded like migraines, so I checked with her neurologist. With the family

history of migraines and her symptoms he knew that's what it was, so he started

her on medication to prevent them in the first place. It's not as often she

gets them now. at lest she didnt have to suffer with them until she was in her

teens like I did. :-)

Toni

[ ] Headaches

Hi, My son is a six year old with global dyspraxia.I have done everything

there is to do ( speech,ot,oculermotor therapies, cranial ajustments,efa's)

with

consistent results. My concern is his headaches for years now at least 3 times

a week (forehead area above left eye). He will start full day school with

support soon and will have more pressure than ever. How can I remove the added

stress of a headache so he can over come his disability? Thanks for your

time,

Peggy

[Guest guest]

Hi Penni

I found that rocephin did this to me too but i had success resolving

this side effect by taking psyllium husk powder..just a little at

night....about 1/2 teaspoon.

good luck

dona

[ ] headaches

Carol, I'm wondering what were the shots in the back of the head your

daughter was given? I have awful headaches, too.

My daughter's been having terrible stomach aches since being on IV

Rocephin for 2 weeks now. Has anyone else experienced this. Penni

[Guest guest]

> We are using DMSA and are on round 11. My son keeps pointing to

his head and

> crying. I think he is getting headaches from the round. What

should I do?

I would consider reducing the dose by 1/3 or 1/2.

good wishes,

Moria

[Guest guest]

Other people have said that magnesium helps.

Barb

[ ] headaches

> We are using DMSA and are on round 11. My son keeps pointing to his head

and

> crying. I think he is getting headaches from the round. What should I do?

Is

> this normal?

>

> Any help is appreciated.

>

> Carolyn

>

>

>

[Guest guest]

> We are using DMSA and are on round 11. My son keeps pointing to his

head and

> crying. I think he is getting headaches from the round. What should

I do? Is

> this normal?

Yeast causes nasty headaches for me.

Dana

[Guest guest]

Oil of oregano is bad stuff for my kid. he gets irritable, headaches, a rash

and seems to be very drained.

[Guest guest]

My daughter gets headaches with yeast, but of course everyone is

different. What about his eyes? Could they bother him at all? YOu

could also keep a food diary if you don't already and try to track a

coorelation.

katherine

Kim Wolford " <kwolford@i...> wrote:

> My son has recently been complaining of headaches. He is 7.5 years

high

> functioning, verbal, just finished round 28 of chelation Andy

Cutler's

> protocol. I have increased the ALA dosage in the last 3 rounds to .5

> mg/#. He is on HNI enzymes (ZP, and AFP Peptizyde). After being

GFCF for

> 2 years, he is no longer on any food restrictions with the enzymes.

He

> takes Vit. C, A, E, CarnAware, milk thistle, Forskolin, zinc (30 mg

> 2x/day), recently added Culturelle for a suspected bacterial issue.

(and

> for just a short time, few days, on Oil of Oregano)

>

> Sometimes I think the headaches are " convenient " excuses to get to

do

> (or not to ;-) things he wants to.... He has never before

complained of

> headaches prior to the last month or so....but his past verbal

skills he

> may have had headaches but just never indicated it. He does not do

any

> head banging or anything like that. Other than " commenting " about

it, it

> does not seem to slow him down at all.

>

> Thanks in advance,

>

> Kim

>

>

>

[Guest guest]

CoQ10 might help with headaches during chelation.

You can also reduce the dose. My son has done 50+ rounds and still

takes 1/3 of his body weight.

> My son has recently been complaining of headaches. He is 7.5 years

high

> functioning, verbal, just finished round 28 of chelation Andy

Cutler's

> protocol. I have increased the ALA dosage in the last 3 rounds to .5

> mg/#. He is on HNI enzymes (ZP, and AFP Peptizyde). After being

GFCF for

> 2 years, he is no longer on any food restrictions with the enzymes.

He

> takes Vit. C, A, E, CarnAware, milk thistle, Forskolin, zinc (30 mg

> 2x/day), recently added Culturelle for a suspected bacterial issue.

(and

> for just a short time, few days, on Oil of Oregano)

>

> Sometimes I think the headaches are " convenient " excuses to get to

do

> (or not to ;-) things he wants to.... He has never before

complained of

> headaches prior to the last month or so....but his past verbal

skills he

> may have had headaches but just never indicated it. He does not do

any

> head banging or anything like that. Other than " commenting " about

it, it

> does not seem to slow him down at all.

>

> Thanks in advance,

>

> Kim

>

>

>

[Guest guest]

> My son has recently been complaining of headaches. He is 7.5 years high

> functioning, verbal, just finished round 28 of chelation Andy Cutler's

> protocol. I have increased the ALA dosage in the last 3 rounds to .5

> mg/#.

I get headaches from yeast, as well as certain foods.

>>He is on HNI enzymes (ZP, and AFP Peptizyde). After being GFCF for

> 2 years, he is no longer on any food restrictions with the enzymes. He

> takes Vit. C, A, E, CarnAware, milk thistle, Forskolin, zinc (30 mg

> 2x/day), recently added Culturelle for a suspected bacterial issue. (and

> for just a short time, few days, on Oil of Oregano)

Several of those supplements would cause headaches for me. Did the

headaches start just after adding or increasing one of them?

Dana

[Guest guest]

> takes Vit. C, A, E,

What is the dose of vitamin A? Toxicity can cause headaches.

Dana

[Guest guest]

>>>> What causes headaches in these children?

Could be a number of things. Sensory problems of assorted varieties.

Food or chemical intolerance. Migraines in kids just like adults get

which might have certain triggers or 'just happen'. Sleep problems

(how great does an adult feel if they are sleep deprived night after

night after night?). Illness from bacteria, yeast, virus. Other

things too.

If the child isn't getting good quality sleep, I would definitely try

to remedy that right off. This can lead to profound improvements.

.

[Guest guest]

> What causes headaches in these children? My son never had this

> problem until after the vaccine injury.

For my family, headaches are caused by yeast and nitrates. I have

also read messages where MSG causes them.

It can also be phenol intolerance or several other things.

Dana

[Guest guest]

No doubt that it's inflammation....the question is what's triggering

it? Any other symptoms suggestive of an A-CID?

Headaches are a consistently common symptom in cases of A-CIDs.

Do the prudent thing and get the workup done, and if it's

unremarkable, then an abx test may be a good diagnostic tool.

Response to therapy is a good indicator, IMO.

ps...check her diet...too many sugars/starches will trigger

headaches too. I.e., metabolic inflammation.

> My GF is complaining of bad headaches (at the back of the head)

that

> have been getting increasingly worse for the last few months.

Aspirin

> seems to be quickest way of fixing it at the moment.

>

> I have suggested a therapeutic probe with a short course of ABX to

see

> if it wriggles.

>

> Have others found bacteria involved in headaches, or are others

finding

> coagulation to be a cause? If coagulation then what is the cause

(apart

> from bacteria) and what are the suggested treatments.

>

> Heparin and enzymes?

>

> Thanks

>

> Bleu

[Guest guest]

Unless she's experiencing tension headaches from some kind of new

stress, I definitely believe it's inflammation that causes the pain.

I don't know if she's having migraines or soemthing else, but I do

know that all the abx in the world, all the supplements, all the

dietary changes, hormones, and even the migraine meds couldn't make

my migraines go away. Benicar did. I even know people on blood

thinners who still have headaches and migraines.

One thing I never tried, and maybe should have, was feverfew. You

might suggest it to her. Studies show it's really effective, but it

could take a month before she sees any results.

Also, niacin (the real stuff) and Magnesium have been documented to

be effective for some people. I found them inconsistently effective.

And there are new studies that show that using oxygen will abort

migraines. I have an oxygen concentrator and it's been marginally

effective for me.

Of course, hormones play a role in migraines. Is she experiencing

any hormonal changes? Hormonal changes also increase inflammation.

I also think that an electrolyte imbalance plays a role in

migraines, which can be caused by infection.

One time I was out of town, had no migraine meds and a migraine

started coming on. I could tell it was getting pretty bad, fast, and

I was expected to meet some people for lunch. Of course, with a

migraine, you have no appetite. Just the opposite, you feel like

you're going to throw up. The only thing that sounded tolerable was

potatoes and that's all I had, some potatoe skins. Amazingly my

migraine disappeared. I read an article that suggested that

depending on which side of your head a migraine is on, you might

need either potassium or magnesium. I was having a potassium sided

headache that day, and the potatoes were the cure.

The fact that aspirin works for her is one indication she's dealing

with inflammation. I also found that decongestant/vasoconstrictors

like Sudafed worked best on my migraines, along with a NSAID. That's

why so many people mistake migraines as sinus headaches.

My migraines had become almost untouched by standard Migraine meds

like Imitrex. That's why I'm so thankful for the Benicar. I only get

a migraine once every 2 or 3 months now. It used to be at least 5

and more a month.

penny

> My GF is complaining of bad headaches (at the back of the head)

that

> have been getting increasingly worse for the last few months.

Aspirin

> seems to be quickest way of fixing it at the moment.

>

> I have suggested a therapeutic probe with a short course of ABX to

see

> if it wriggles.

>

> Have others found bacteria involved in headaches, or are others

finding

> coagulation to be a cause? If coagulation then what is the cause

(apart

> from bacteria) and what are the suggested treatments.

>

> Heparin and enzymes?

>

> Thanks

>

> Bleu

[Guest guest]

I'll corroborate Penny's experience. I've also seen Benicar make

significant improvements in individuals with migraines.

Migraines and inflammation are intimately related.

It's funny that vasoconstrictors helps...so do vasodilators such as

caffeine...a general phosphodiesterase inhibitor.

I've also seen diet and supplements completely eliminate migraines

in individuals...I think it depends on what's triggering the

inflammation...ie, metabolic or acquired inflammation.

> > My GF is complaining of bad headaches (at the back of the head)

> that

> > have been getting increasingly worse for the last few months.

> Aspirin

> > seems to be quickest way of fixing it at the moment.

> >

> > I have suggested a therapeutic probe with a short course of ABX

to

> see

> > if it wriggles.

> >

> > Have others found bacteria involved in headaches, or are others

> finding

> > coagulation to be a cause? If coagulation then what is the cause

> (apart

> > from bacteria) and what are the suggested treatments.

> >

> > Heparin and enzymes?

> >

> > Thanks

> >

> > Bleu

[Guest guest]

Nelly:

If food (or especially certain foods) really improve a head ache -

what does that imply?

Ice cream or whipping cream would always improved my head ache

pain.. SO I thought it was the action of fats... so maybe some of my

head ache pain was from the nerve endings?

Here's a quote from the article referecned below.

" Unsaturated and essential fatty acids are used to construct

membranes, create electric potentials and move electric currents.

They can also be burned to produce energy if the more vital roles

that these fatty acids play have been adequately fulfilled. "

I think alot of times it's very hard to know what is responsible for

pain.

I used to wake up with a terrible headache (espcially bad at the

back and base of the skull).. and often it would get better as the

morning went on (inflammation?) and if I got right on it with some

dairy fats, I could almost feel the improvement immediately. I don't

think this was 'all in my head '.

Barb

Ref. article:

http://www.ms-society.ie/msnews/issue56/24fat.html

[Guest guest]

How much GSE do u recommend for a 70lb 12 year old?

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

hi,

migraine and autism are actually on the same biochemical link up in the brain -

if he has an asd b/s its possible he may well have some of the food

issues/allergies that are causing his problems

my dad, sister and children are on the spectrum - my brother isnt - but he used

to have dreadful migraines he spent 2 weeks in hosp while they went thru

everything all nhs tests of course so they didnt find a thing - so he adjusted

his diet went gf/cf, that took the edge off them and the individual intolerences

were ascertained and removed - he no longer suffers

hth

emma

cbfllady@... wrote:

My 12 year old has been getting migranes for awhile now (atleast a year)

They finally did an MRI and found nothing. He cries because they hurt him so

bad. Couple years ago we kinda decided it was the lights in school that got

to him so he started wearing a hat in class. Well now hes in middle/senior

high and last week was the first week of school and he loves it, cept they do

NOT have lockers so he has to carry his backpack all day. I dont know if

its the lights bothering him again, the weight of the backpack or what. He

goes back to the ped tomorrow. Anyone know anything that could help? Hes

small

for his age but an awesome kid with lots of friends and very popular with

the girls so I doubt its peer problems and like I said been going on for a few

years. THANK YOU! Tylenol did nothing to help him Friday morning and he

wasn't feeling too good the night before then woke up with a splitting

headache all the way across the forehead.

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

Don't know if I can help, but here's a few thoughts...Has he been

vaccinated? I know kids are supposed to get additional MMR before 6th grade.

My son started a headache within a month of that dose that didn't go away

for 3 months. He had a CAT scan, too, that showed nothing. It did eventually

go away, but I don't know what to attribute that to. You may want to seek

chiropractic for him. Bookbags can be very damaging, especially for the

smaller kids. I've heard they shouldn't carry more than 18% of their body

weight on their back. That's 18lbs for a 100lb kid. We weighed my son's

bookbag a few times and found he was carrying 22lbs average, daily, with a

body weight of 65lbs! You should try to carry 18% of your body weight on

your back, just for a little while and see how it makes you feel. My son has

been in chiropractic since December, and I think it's made a huge difference

in his overall health. Of course, now that we homeschool, we don't have the

backpack issue, and he seldom has headaches, or at least ones that Tylenol

can't handle, anymore.

That's all I can think of right now.

Kandi

-- Headaches

My 12 year old has been getting migranes for awhile now (atleast a year)

They finally did an MRI and found nothing. He cries because they hurt him

so

bad. Couple years ago we kinda decided it was the lights in school that

got

to him so he started wearing a hat in class. Well now hes in middle/senior

high and last week was the first week of school and he loves it, cept they

do

NOT have lockers so he has to carry his backpack all day. I dont know if

its the lights bothering him again, the weight of the backpack or what. He

goes back to the ped tomorrow. Anyone know anything that could help? Hes

small

for his age but an awesome kid with lots of friends and very popular with

the girls so I doubt its peer problems and like I said been going on for a

few

years. THANK YOU! Tylenol did nothing to help him Friday morning and

he

wasn't feeling too good the night before then woke up with a splitting

headache all the way across the forehead.

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

> My 12 year old has been getting migranes for awhile now

I get migraines if I eat MSG or nitrates, even with enzymes, or if I

have yeast in my head.

>>He cries because they hurt him so

> bad.

Yep, nasty things. Poor guy, I can certainly relate.

>>Tylenol did nothing to help him Friday morning

For the MSG/nitrate headaches, nothing helps me either. For yeast

headaches, LOTS of GSE will work.

>> and he

> wasn't feeling too good the night before then woke up with a splitting

> headache all the way across the forehead.

Yep, this is exactly how I feel too.

Dana

[Guest guest]

There may be certain food/chemical triggers for his migraines. My SIL

doesn't eat glutamates (which MSG is one of) or she gets them. She

said if she eats chocolate very much they come, but she can have it

once a week and is fine. Amines are another common item. Some

chemical smells may be a problem too (the new school may have a smell

from a cleaner or some other source that is setting him off).

Another trigger is weather changes. While I haven't found a way to

harness the weather patterns, just knowing it affects us helps

greatly in managing what we do or don't do. Smells, various colors,

and weather can set off ours.

We also take amitryptiline for migraines. It is one of several meds

for migraines. That med finally gave some massive relieve from the

pain after I suffered migraines for several decades. My older son

improved by about 50% in one week on that med alone - that is,

his 'autism' symptoms and behaviors dropped in half.

Some people swear by Imitrex. That works differently than

amitryptiline for a different type of migraine. The amitriptiline has

been a lifesaver! If you son is frequently racked by headaches to

point he isn't sleeping well, you might consider a migraine med at

least until you find other triggers just so he isn't in so much pain.

Magnesium may help. Often given for migraines.

Here is a link on the different migraines in children and adults.

http://www.aafp.org/afp/20020215/625.html

.

[Guest guest]

When my daughter was a child she was getting constant migraines (as

her father also had as a child) and it turned out she was " allergic "

to cheese, and the school lunches had cheese in them about 2/3 of the

time. I finally made an agreement with the school lunch lady that if

the lunch had cheese, got a peanut butter sandwich for lunch

instead (well, OK, now she is allergic to peanuts, but then it

helped). She saw a neurologist when she was a teenager with

migraines and she also got grand mal seizures, which the neurologist

said were triggered by the migraines...that's how bad they were.

After a few years on anti-seizure drugs she discovered that taking

high doses of B6 every day was sufficient to control her migraine.

She's 37 now and is a Board Certified Small Animal Internal Medicine

specialist (cannot resist brag), married with two young children of

her own, and she still takes B6 every day. Thought you all would be

interested...she can't touch chocolate, or red wine, or bananas or

avocadoes, and is also sensitive to corn and lettuce (sounds like one

of ours, doesn't she?).

I guess this is OT but I also found that B6 is excellent for

pregnancy nausea. The OBs use it IV when they have patients with

uncontrollable vomiting, but it works by mouth too.

Peace,

Kathy E.

Kathleen_E@...

On Aug 14, 2005, at 2:08 PM, jornmatt wrote:

> There may be certain food/chemical triggers for his migraines. My SIL

> doesn't eat glutamates (which MSG is one of) or she gets them. She

> said if she eats chocolate very much they come, but she can have it

> once a week and is fine. Amines are another common item. Some

> chemical smells may be a problem too (the new school may have a smell

> from a cleaner or some other source that is setting him off).

>

> Another trigger is weather changes. While I haven't found a way to

> harness the weather patterns, just knowing it affects us helps

> greatly in managing what we do or don't do. Smells, various colors,

> and weather can set off ours.

>

> We also take amitryptiline for migraines. It is one of several meds

> for migraines. That med finally gave some massive relieve from the

> pain after I suffered migraines for several decades. My older son

> improved by about 50% in one week on that med alone - that is,

> his 'autism' symptoms and behaviors dropped in half.

>

> Some people swear by Imitrex. That works differently than

> amitryptiline for a different type of migraine. The amitriptiline has

> been a lifesaver! If you son is frequently racked by headaches to

> point he isn't sleeping well, you might consider a migraine med at

> least until you find other triggers just so he isn't in so much pain.

> Magnesium may help. Often given for migraines.

>

> Here is a link on the different migraines in children and adults.

> http://www.aafp.org/afp/20020215/625.html

>

>

> .

>

>

>

>

>

>